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CT Scan shows "suspicious nodules"
Hi - I am new here and was hoping to get some help from you. I was diagnosed in January 2014 with Anal Cancer. There was the tumor and also 2 lymphnodes in the area affected. The OR was very confident that I would be cured. Anyway, I just had a follow up CT scan and I was told there were 3 suspicious nodules in the lungs.…
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NY/NJ area hospitals?
For the past 18 months, due to anal cancer, I've been utilizing MD Anderson for some of my care. I've been mostly happy with care received. They are one of the few in this country with a specialization in anal cancer treatment. For reasons too complicated to explain here, I may have to move to Northern New Jersey. It's…
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Foundation One Testing
Has anyone else had this testing done? Was it at all useful to you and did your insurance pay for it? My onc sent off tumor tissue for testing and they solemnly issued a 19-page report that has 18 pages of medical gobbledegook and one of legal gobbledegook. They apparently identified five mutations in my tumor, none of…
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9 years for me
This day, 9 years ago, I was diagnosed with T3,N0,M0 anal cancer. 9 years later, doing amazing with a great attitude and a little man who is turning 10 at Christmas. I remember seeing a post on occasion when I was first diagnosed of a 'long time' survivor and I hope that I can at least inspire one other person to keep…
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TallOrder
-Hello, Just wanted to make sure you saw the post on the thread you commented in with Winniepeg, see below Winnies last post here was 5-26-14 just over a year ago. Last on line 7-7-15 if you look at her profilie. Winnie are you out there will you post and let us know how you are. Thank you, Lori * Also, if you look at the…
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Three Years
Three years to the day when I found out I was cancer free after chemo and radiation for Stage III Anal Cancer! I praise God for every day of my life and all the blessings I've received. Blessings to all those on this board who are fighting the fight! Life is good and worth the struggles we all must go through. My best to…
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Sour mouth
Today it is was first day for chemo and radiation.i have Xeloda in the morning and evening - 1650 mg for each. Metomicin infusion And radiation.i fill ok,but around evening I founded I have a sour throat and it fill like my mouth it sour ,in throat I have few yellow dots. What I need to do? It a first day only??????
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Just for fun!!!
Hi all, this was shared by a friend on my facebook news feed and I think maybe we should all have on our cars..... katheryn
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Mucous
Hi I am a 42 year old female diagnosed in Feb and I finished treatment 5 fu and mytomicin c abad 30 rounds radiation at the end of May. I have my scope scheduled for Thursday to see if the treatment was successful. I am terrified and have scope anxiety. I am still having mucous come out before and during my poops. Is this…
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Anal cancer III stage
i was diagnosed with anal cancer. I am 32 years old with two great kids and best husband. I has my biopsy on July 2, it was positive . I have a tumor 4cm with big mess.i did CT scan and MRI. I done my. PT scan too On Friday. I don't know results yet. Monday I have my colonoscopy schedule for 6 am . And Wednesday my…
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Help with incontinence
Following radiation treatment in March, I experienced a few months of IBS-type symptoms, including incontinence. It had been healing through late June and early July. Now, after going back to chemotherapy, I've been experiencing symptoms all over again. Earlier this morning, after going out for a walk, I had a sudden urge…
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Update
Just a mini update. We had the second opinion yesterday. She didn't have any of our details! She has since seen the MRI and agrees that whatever it may be is indistinct. They have requested the histology and I believe they will do their own pathology tests on the sample taken during the biopsy last month. One other thing,…
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Cazz Update
Having just completed four rounds of Cisplatin/5-FU, I went last week to MD Anderson for a CT scan to see what affect it had. I had what they are calling a mixed response. Two of my biggest liver tumors grew, one by a lot, while the third stayed the same. All of the lymph nodes shrank a little bit and there were no new…
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Stage IV Updated
Sorry for long absence. It has been an ordeal the past several months. I last posted in February. Since then, I underwent 5 1/2 weeks of radiation at MD Anderson, followed by 3 months of painful recuperation. I was just starting to feel better when I went back to MD Anderson for cat scan follow up. They told me NED in anal…
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Poop
I've been lurking on this site for years and am so very grateful for all the advice you've shared. I am almost five years post treatment and have an embarrassing question. When I have a bowel movement, they are soft and there is almost always some that doesn't get pushed all the way out. I end up using a huge amount of…
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Brachytherapy clinical trials
Hey guys, So I was checking out the link provided by ouch ouch ouch and Martha back last year about a clinical trial for high dosage Brachytherapy in New York. It appears to be open still now. Is there any reason why British nationals could not enroll on it, if we were willing to pay?
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perianal squamous cell carcinoma in sitiu
I posted here previously here about my ordeal with this and having it removed etc, and am so delighted today to hear the good news that my biopsys are clear - no evidence of further dysplasia. Even though, reading other peoples posts, this wasn't as serious a situation as others were in, it has certainly been hugely…
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MD Anderson
We are going to get a second opinion with the Royal Marsden in London and possibly a third with BUPA. I've heard a lot about MD Anderson in Texas, that it's supposed to be the best around etc. Does anyone know how the process would work for U.K nationals to seek a referal to MD Anderson? We wouldn't want to fly all the way…
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Just a very quick question about colostomy forums and websites
Hi guys, This is a complete long shot, but I am trying to find any programs out there which might be looking for "human guinea pigs" on which to use an artificial anal sphincter. I know they did some experiments a few years ago which were successful. My mum would be keen on this if such an idea existed. Could anyone…
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Biopsy results
Not great news, unfortunately. The results show a few cancer cells remaining. We're talking minimetres. Mum has to have her anal sphincter out in a curative operation to remove the tumour. There will be margins etc. Right now we're all shocked and devastated. Oh an mum will have to wear one of those bags for the rest of…
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Ugh, please help, again!
Hey guys, So we are waiting for next Tuesday to get the MRI and biopsy results. Our head nurse who knows my mum gets anxious rung today to confirm a CT scan in July. Apparently, this is norma as mum had a CT scan last July and you supposedly have them every year. However, the oncologist said she'd have the CT in October,…
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Giving Hope
I haven't posted on here for a year. Alot has happen. I start with I am 38 and have 3 sons. Ayear ago I was diagnosis with stage 3b anal cancer. 3 of my lymph node showed sign of cancer also I had anal occlusion which I had to have a temp cholestomy. I recieved all this in 1 week. Which was the hardest thing you will hear…
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My 6 month check up- Laz
Yesterday I received a news that my CT is clear against. I was a little worried because the CEA in my blood went from 1.3 to 1.7. Under 2.5 is normal. I have been feeling good most of the time, working hard and started some new business adventures. I am always a little cautious though: the "what if?" Is always in my head…