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Anal Cancer

Archives for March 2015

mom's home!
Hi all! After 7 days in the hospital my mom is finally home! She still has severe pain when urinating but is not screaming anymore (thank god) now is the waiting game 6 weeks of torture! She is still weak but says she sees small improvements day by day! My question was what is the most common way, or norm round of tests to…
Diarreah....
I have had diarreah, mucus discharge, bleeding and surprises that soiled my pants. NOTHING seemed to help. My cousin suggested (strongly) that I try a low carb diet. Almost Atkins. I rolled my eyes, then decided to give it a try! It works!!! (At least for me). I was worried about constipation and I haven't had any problems…
Hi everybody
Hey everyone, this is a quick message from my mum..... Dear all, Thank you for all of the help you have given me and my son. It is so good to be recovering. Whilst I am feeling better, I still find that I have so many questions in my head. I am 5 and a half months post tx, the painful bm's are getting better slowly, but at…
UCSF 2nd Opinion
I went for a 2nd opinion yesterday to the GI Oncology Dept - not the Anal Cancer Clinic, I'm not sure why, except that the Anal clinic has a 4 month wait for a new consult. The doctor I saw told me pretty much what my own oncologist has told me and, very disappointingly, only pointed to the standard treatment for…
Loose ends being tied.
Today is my 1 year diagnosis day, though I was ill for months before while brushing it off. What a roller coaster day that was. MEDIPORT - Gone! I insisted that I have an anesthesiologist for the removal and what a huge difference! No pain, diaphoresis, or vaso-vagal effects at all. I still have steri-strips on and the…
weekend retreat for survivors
If anyone is interested I just obtained some great info on a weekend retreat for survivors and caregivers. The retreat is called "Stowe Weekend of Hope" it is being held in Stowe Vermont the weekend of May 1st 2015. It is an annual event and rooms are donated by area hotels A $50.00 deposit is needed to secure a spot (they…
Post radiation/Chemo side effects
Hello everyone. My husband finished chemo and radiation treatments for T2N0M0 anal cancer August 2014. About 2 months after, he began having strange symptoms. Rash to his entire body,with edema to his lower extremities and his radiated pelvic and anal areas. And he had a wound, which was from his tumor, how we discovered…
pleural base nodule
Has anyone had a pleural base nodule on lung that Met from squamous cell anal cancer? I think the pleural base means on the lining of lung area???? I Have one on the lower lobe of left lung and oncologist is just watching it and said he didn't thinik it was anything. Thanks for any thoughts and experiences. tory
Dark spots on skin
Has anyone else developed freckle-like spots on their skin? I just noticed a lot of them in my "bikini" area where I usually shave. I sure hope they go away afterwards--I'll never wear a swimsuit again! Becky
Xeloda--red spots on skin?
I have been taking Xeloda and I have a number of little red blotchy spots in differnt places: arms back of hand, legs, one ankle,etc. They do not hurt or itch . I had a dermatology consult and the Dr thought it was probably from Xeloda , as did my onc. The Xeloda is also making my freckles big and ugly and I think there or…
Good news Bad news
The good news is I had my second set of scans this past week and met with the oncologist and all good all clear, I am to be scanned again in 6 months. The bad news is I lost a very good friend this week to the evil of cancer. She went to a local hospital in February to have her gall bladder removed (routine so we thought)…
STAGE 3A RECTAL DEPOSITS AFTER RADATION
aNY SURVIVORS OUT THERE bEEN TOLD THEY HAD RECTAL CANCER deposits after radiation, in theiir pathology report from APR? My oncologsit said I only had two lymph nodes T3N2M0 and not to worry! Surgeron is saying have poor prognosis due to some malignancy cells after radiation.
5 years along with latest CT.
Hi everyone: March 17 was 5 years since they took a biopsy that stated I have Squamous Cell Anal Cancer. So I survived the 5 years and hoping for many more. Last CT scan on Friday, March 13 showed a new pleural based nodule on the lower lobe of the left lung. Will be seeing the pulmonologist next Friday and Oncologist on…
advice
Hi all, My mon is in her last week do radiation, she is done on monday. She is extremely uncomfortable and burned. Her dr offered her a break but she is done on Monday. Her question is would it be worth it. Her pain is almost unbearable but after today she only has 3 more treatments
DVT in Picc line vein
Well another unpleasant surprise. I found out yesterday that I have developed a DVT in the vein that my Picc line is in. This has completely unnerved me and I'm now on Lovenox injections twice a day and am scheduled to have the line removed tomorrow. I am uncomfortable with this procedure being done in the outpatient…
Is there a cure for HPV?
Just wondering. Sure would like to get rid of it. I had no idea I had HPV until the cancer showed up. I am aware that HPV can cause other cancers other than anal or rectal cancers. If there isn't a cure, then I need to find a way to so what I can to avoid anymore. I heard that a vegetarin diet is one of the best ways to…
Brother recently diagnosed; journey begins with proton radiation therapy & chemo
greetings, my brother is 64 years old, HIV survivor for over 30 years and very lucky to have minimal complications over the years from having HIV. T cell counts over 500 and viral load non-existant, as of Dec 2014, even tho he was having some 'hemmoroid' problems. Anal abscesses prevented delays in diagnosis for anal scc…
My Presentation at the International Anal Neoplasia Society conference
As I had previously posted, I was asked by Justine Almada of the HPV and Anal Cancer Foundation to give a presentation about my cancer journey to the attendees of the International Anal Neoplasia Society conference in Atlanta. And as I promised, I am posting my presentation for everyone to read. It was such a great…
Today is a GOOD day
I just want to share with you all that today is my 2 year mark (the day I finished treatment in 2013 for T2 or 3, N0, M0). I had MANY appointments in January (some how they all ended up in Jan. instead of March).....pelvic & abdominal MRI, blood work, high resolution anoscopy, oncologist & radiologist check-ups and all…
good news post colonoscopy
Hi to everyone. Just got home from colonoscopy. Just some rectal irritation. Yeah! Will visit my medical oncologist on Monday to figure out why I am chilled and why the Vitamin d levels keep dropping. Got to get to the bottom of all this. I know we all just want to feel better. Thanks to all of you for your encourgament.…
feeling a bit chilled but no fever
Hi everyone. Just wondering if anyone has ever felt a sense of infection,slight chills, no fever. I am 1 1/2 yrs post treatment. colonoscopy tomorrow. Please feel free to tell me any feelings you might have experienced. I am so afraid. We will see..thanks to all of you...Donna
Hoping for Breast Cancer - Really!
I was diagnosed with anal cancer in August 2014 and sent for the usual scans which showed another large tumor on my hip. The biopsy of the hip bone came back as breast cancer! Many scans, ultrasounds mri’s later, no primary breast cancer could be found. I went through the usual 5-FU, mytomycin and radiation treatment with…
update on mom
Hi all!, My mom is in her 5th week of radiation and started second round of chemo today 96 hr pump. Shes been ok for the most part, very sore from radiation. She tolerated the first round of chemo ok, her biggest issue was mouth sores, she did have some.nausea but nothing severe she did need a transfusion along the way…
am I getting the correct treatment???
I've posted here before about the removal of a perianal squamous cell carcinoma in situ which I had done last August. It was between 1 and 2 cm in size. That's over with and went well thank goodness. My doctor- a colorectal surgeon- wanted to do a procedure called 'anal mapping' which meant taking 20 or so random biopsies…
Psyllium
I am looking for directions on the use of psyllium to help lessen urgency and frequency of BMs. When I had my check-up in January, my doctor said to try psyllium for this issue. He said to start with 1/2 a dose. I tried for about a week and it seemed like it was having the opposite affect on me (more frequent BMs). This…
Low Vitamin D levels and low platelet levels
I am 2 years post treatment and today I had my CT scan to see if I am still cancer free. However, I'm concerned. Prior to my treatment I had blood tests done and my Vitamin D is low so now I'm on meds for that. Also my platelets are low and my Mean Platelet Volume is high. The doctor wants to see the CT scan results before…
Question about reoccurrence (again!)
Hey guys, We were doing really well, but unfortunately my mum knows some idiots who, incidentally, weren't there when we needed them, but now she's NED they are all there with theit "good messages". Anyway, one of them mentioned to my mum yesterday about somebody with bowel cancer and somebody with breast cancer who both…
post radiation side effects
Hi Eveyone. I am 1 1/2 yrs. out post radiation/chemo treatments. I have had compression fractures in my lower back and fractures in my pelvis post radiation treatments. Told I have severe osteoporosis now. I am 57 ys. old and am 5'10; not a typical candidate for this type of osteoporosis. I am having some severe hip joint…
International Anal Neoplasia Society Conference
Before I get to the main topic of this post, I wanted to update my status. I saw my colorectal doctor this morning for my 6-month follow-up, including DRE and anoscope, and in her words, “I can’t tell you were even radiated”--trust me, I was!! That is the first time in 6 ½ years she’s ever said that, so I was very happy!…
Cancer newbie--stage IIIA/B
Hey everyone, I've been reading some of your posts for a couple weeks now and had gleaned quite a bit of hope until just recently when my PET scan showed that I have a positive lymph node in my pelvis. Up until that time, I was actually looking forward to getting through the chemo/radiation treatments and getting on with…

Anal Cancer

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