Anal Cancer
Discussion List
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for the newbies
First off, sorry that you have to be here... but know that we are all praying for you and will be here to support you and give you whatever tips we can to make your journey easier. One thing I definitely learned today is that when going thru the radiation and the chemo, both the butthole and the vaginal entrance will…
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A Warning about Scans
My daughter wanted my scans and pre-treatment appointments to move a little faster (we are Canadians), so she had me join her in Florida (where she has a second home). She got the process rolling for me in Florida and I flew down, had both a CT scan and a PET scan, consultations with both chemo and radiation oncologists…
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Denise
I know you are in a rough place right now. I am praying for you and thinking of you frequently during each day. You're almost there. It will get better I promise, just 1 day, 1 hour at a time. I care, big hugs! Randy
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Treatment Starts
Thanks to all for the info and support from my previous posts!!!! Survived day one, 29 to go. Question now is at what point during radiation treatmen should I begin to use sugessted creams like augaphor? Now or when I begin to experience issues?? Thanks again Scott
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Go Martha!!!
Martha's running her marathon today. Let's all give her a cheer!!! Edit: Oops, sorry - it was yesterday, doh. Martha, I hope you're feeling okay today and I thank you so much for dedicating a mile to us.
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And I hear it gets worse!
I just finished week 1: four days of Mitomycin, 5-FU and five IMRT treatments. I feel so weak and I have terrible bowel cramps and diarrhea. My mouth is also pretty sore. I have spent all weekend sleeping (except for excursions to the bathroom). I have IBS and I am very prone to constipation at the best of times. I am…
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Radiation Burn Spray
Hi, this may be of use to anyone but was thinking of Pattie at this time. I know she mentioned starting treatment this week. The spray I used to ease the pain on my butt, groin area is called Dermoplast...it is usually given to women to spray on after childbirth and can be purchased over the counter at most pharmacies, I…
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New here-my story
Hi everyone, I found this website through Relay for Life - I started a team in our community. I am 51 years old and was diagnosed with Stage Four Anal Cancer on August 10, 2011. I was devasted. I had just retired July 1st. How could I get cancer and it reach stage 4 without even knowing it? Of course, a few months earlier…
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Need advice, so confused
Ok this past week has been a whirlwind of tests, pet,ct, chest x-ray all clear. Which was great news.....now the confusing part My Diagnosis: distal rectl polyp, left anterior quadrant, transana excision: invasive squamous cell carcinoma, size 0.6cm, sugical resection margins ar univolved staging pT1, pNX, pMx This…
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Light drainage question?
I am about 1yr. post treatment and a question came up at my doc appointment today. I was seeing someone I have not seen before as a consultation before a colonoscopy (I have a colostomy as a result of my AC) and so he wanted to discuss the procedure. In going over my condition he seemed bothered about the fact that I have…
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Very Young, Treatment starting soon.
I was diagnosed after what was suppose to be a hemorrhoid removal surgery in 2/12. Ended up being warts/tumors. Luckily the tumor ended up only measuring about 5mm but the doctor did not do any sort of "margins". I am scheduled for 6 weeks of radiation plus chemo (2 treatments with Mitomycin and 2 (4day) treatments of 5FU…
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"perfect"
Last time I saw my colo-rectal surgeon, he pronounced me "normal". Yesterday he pronounced me "perfect!" ha, ha, ha! It May 5th 2011 I was diagnosed with invasive squamous cell anal cancer T2N1Mo. What a difference a year can make. I am officially just in the system now for follow up exams but no more interesting tumors to…
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So much admiration
I just wanted to take a minute to let you all know what an inspiration you are to me. I do not have cancer, but I've had other issues that led me to this board and after reading what all you go thru....I'm in awe!!! I would probably lay down and just cry all the time, but y'all seem to handle it all with such grace and…
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I think I have Anal Cancer
Hi everyone, let me start with saying I think I have anal cancer, and I'm scheduled to see a GI specialist tomorrow afternoon. I just wanted to post my doubts and questions because I am so nervous... to see what you guys might think. I am 29 years old and have a two year old so I am terrified. First Symptoms: - About a…
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Mile 24
Hi Everyone-- I hope y'all had the best possible weekend and that your week is off to a good start. I wanted to let all my friends on CSN know that I will be gone for a few days beginning April 19th. Thursday, I am leaving for Indiana, where I will be running in my very first marathon ever on Saturday, April 21st. I am…
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My Story
Hi All, So glad I found this forum, I couldn't find many forums on this type of cancer that would teach me something, you all are helping to educate me. So let me begin.......... Routine colonoscopy, they found two polyps, I was diagnosed with invasive squamous cell carincoma, margins uninvolved. The first copy I got there…
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I turned the corner
Just wanted to say today I turned the corner and the pain is almost gone! I can actually sit on my behind as opposed to my hip!!! The burns are healing fast and I feel sooo much better. My last treatment was 10 days ago. You were right Martha, one day you feel miserable and then overnight things change. My stamina is still…
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Pain-fighting foods - worth a read from livestrong.com
http://www.livestrong.com/blog/10-pain-fighting-foods/?utm_source=newsletter&utm_medium=email&utm_campaign=04112012 Pain-Fighting Foods Your body is under attack—only you probably don’t realize it. Inflammation. It’s a normal process that is designed to help your body recover, which causes the occasional ache or pain. In…
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Will I need help?
I have just read "Kicking Cancer in the Butt" very informative but it has got me wondering if I can go through this treatment on my own? I will be starting the chemo and radiation in a couple weeks. I am a recent widow and moved to this place while I was caregiving my husband to be closer to the hospital so I don't know a…
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What if...
I just had a thought, most of the recent posts are from people who are newly diagnosed or just 1-3or4 yrs post treatment. The majority of us are doing well, and although side effects are there we seem to deal. What if AC recurrs, is there a standard treatment like there was the first time? I'm guessing it becomes pretty…
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Finally a surgeon
Ok, I finally got an appointment with a surgeon. He's not a color-rectal surgeon, per se, but he specializes in hemmarhoid surgery, so SURELY he'll know what he's looking at. I go the 17th. I think I'm only going to get peace of mind, but it's worth it to know I'm ok, right?
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Another DRE!
So apparently the receptionist at my doctor booked me for an appointment yesterday that was supposed to be next month. I saw the doctor in February and had a DRE and thought I was supposed to go today but it was next month. Anyway he gave me another DRE and said things looked good. He did say that I had a "couple" of…
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Heard about the possible cancer vaccine????
While I was waiting for my hubby at the VA waiting room, I came across a Time magazine from 2011, discussing a possible vaccine for cancer treatment/prevention. It is of course in "trials" and mainly for breast cancer victims, at least that's what I remember reading. Has anyone else seen this or anything like it?…
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Recently Diagnosed / Long Term Bowel Control Issues
Hi All Just recently diagnosed(03/28) and begin treatment(no surgery) next monday. First of all I can't express how much it means to have found this website, not only for all of the information of my upcomming rigors, but the emotional and moral support provided by and for the members. As I'm sure you all can attest to the…
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Sympathetic Pain?
Just wondering if this has happened to anyone else. I'm about three weeks status post my last surgery, and all of a sudden this morning I developed a horrific spasm in my lower back, in the area of the lumbosacral junction. Since I just happened to have an appt with my primary MD today I told him about it, and he thinks it…
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Anyone diagnose without any bleeding?
Just wondering if anyone was diagnosed without any bleeding symptoms or was taken by surprise with diagnosis due to no symptoms?? Please share your story. Thank you in advance. Dottie
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reflux
Hi, I have felt "lumpy" in my chest when I swallow or eat for years and it is getting worse. I know I have asthma reflux from the endoscopy that was done ten years ago. I am going back for another one soon and of course am really trying not to "go there" to the cancer thing. My neighbor died of esophogeal cancer and my…
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What do y'all think about
Possibly putting together an "Anal Cancer 101" for the newbies? I think that it could start off with we are here to support each other and there are no off limit/embarrassing questions. What do we all say (or think) when someone new posts? "Sorry you had to find us, but we are glad that you did." It could have the links to…
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Reading posts
I was just diagnosed with anal cancer yesterday and so have been reading through some posts for info. and keep on hearing about problems with BM's. Were these problems as a result of the radiation? I will be starting my treatment in about 2 weeks. Louise
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treatment options ?
Hi - Recently diagnosed (Feb 28) with squamous cell anal cancer after months of being treated for hemorrhoids. (I also had salivary gland cancer in '93 - treated w/ surgery & radiation.) Doctors are recommending chemo & radiation, but I have some misgivings, especially regarding chemo. Wondering if anyone has done any…