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Peritoneal Cancer

Archives for November 2011

On the subject of abdominal distendedness
Hi, this is something I was aware of when I was first diagnosed in October last year, and it has become an issue again this time round. Others here may not have had this experience if it is more to do with having a combination of distendedness as well as being severely overweight to begin with. Although I have, as others…
Diet after TX is done?
Just interested in knowing what is your diet after your chemo has been completed. I eat veg and fruits...but not so much fruit...I have a delicate stomach...and somethings I don't dare eat for fear of "results"....just curious what the rest of you eat....when in remission..... red meat? fish? chicken? pasta? We don't eat…
Mother-in-law has PPC
My Mother-in-law was diagnosed with PPC in April and her numbers have been going up very quickly. She has had 6 rounds of chemo and this has been a scary situation watching her stomach area grow massively. She looks to be 7-8 months pregnant and because of her age 74 her doctor really hasn't given us much hope on her…
Medical support when in remission?
Hi all, what are your experiences from being in remission? Besides monitoring your overall wellbeing and CA125, are you given any hormones or other medical treatment to keep stability (i.e to prevent cancercells from growing)? Steroids? Other food restrictions? Thank you, Sophie
Happy thankgiving from Canada
Happy thanksgiving to all the Americans on this discussion board (ours was in October). Eat lots of turkey and take it easy! Cheryl
Yay , we got the steroids for mum today!
Yay , we managed to get some more steroids for mum today , so we are hoping that they will boost her up. She is eating next to nothing and is being sick alot, so hopefully they will make her feel better and give her some fight back , because at the moment she is loosing badly, she is not ready to loose and nor are we , no…
CARBO & GEMZAR
Ooops I posted a day or 2 ago and made a spelling error. Thanks for pointing it out to me ! :) I appreciate it. ..... I said I am NOT having a recurrence but I meant I am NOW having one. anyway, nobody responded yet regarding being on the ABT-888 study (parp) but with that , I am on Carbo & Gemzar. Has anybody been on this…
Mom's Diagnosis
I'm new to this forum but from what I've read, there are lots of people to talk to here and that's exactly what I need. My mom was diagnosed in May 2010 with PPC. She went through 6 rounds of chemo, had her debulking surgery, and then had either 4 or 6 (can't remember), more rounds of chemo. The first few rounds of chemo…
Stability
Hi all! Mum has some stability now being in remission and we are all happy about it! But she also has attacks of anxiety and as I have read here, that is not uncommon.. She is afraid that it is growing (CA125 up slowly)and she was devestated last CT because nothing had change for the better? But not worse either! But her…
ANYBODY IN THE ABT-888 STUDY ???
Hi, I was dx with stage 4 primary peritoneal in june, 2009. I did IP chemo - taxol & cisplatin. I was in remission for almost 2 years and am not having a recurrence. I started the PARP trial a few weeks ago. I am on the ABT-888 trial. I get carbo & gemzar and will start taking the abt/parp pills very soon. Just wondering…
Pseudomyxoma survivor support network
Hi all I am new to this forum so I hope to get to know some of you better and get to read your stories. I am posting as I was diagnosed with pseudomyxoma peritonei in 2008 and wrongly given less than 3 months to live. I would love to hear from anyone touched by this cancer. x
Avastin
Anyone on this discussion board on Avastin? It has been dumped in the States for women with ovarian cancer I hear and is about to be in Canada. The side effects were quite something apparently and the chemical was not felt to be worth the effects - in other words, it wasn't doing its job? Cheryl
Secondary Peritoneal Cancer Good Chemo Results
Hi all: For those with secondary peritoneal cancer, I just got the results of an MRI I had done last week and they were good - no new growth, nodules haven't increased in size at all, and some have shrunk in size. I only have 6 nodules. No other signs of cancer anywhere. So the oxaliplatin-irenotecan-5FU chemo (I had 12…
@ Tina
Mums not doing very well on the topo, she has been really poorly, and keeps being sick despite different concoctions of anti sickness meds. And today we found out her platelets are to low for her third lot tomorrow However she has only has two treatments,from the first cycle, she has hers for 3 weeks then a week off. I…
16 chemo infusions, clear CT!
Just wanted to share with my "survivors" on ACS that I had my CT scan on Monday November 14th and my doctor reported to me yesterday that my CT scan was "clear"! I am so happy. I am on a clinical study. I was diagnosed June 2010, peritoneal cancer. At that time I had a full hysterectomy, followed by taxol/carbo/avastin. I…
AAAAHHH!
My mom does not have to go back to doc until January. She is a little worried. It is making me very anxious. She says she's having nausea again and burning in her stomach and she thinks the cancer is growing back. I know for a fact the doc is just giving her body a break. However, she never had a great digestive system. I…
Taxol/Gemzar - side effects, how quickly hair loss?
Hi, Tina has already said that Gemzar is new and hold promise as a treatment. I'm not worrying at this stage. I'm not worried either about losing my hair but I'd like to be prepared not to find it coming out suddenly all over my face like it happened last time (on Carbo/Taxol). I'd rather have it cut off before then. I…
Can ascites build up in abdomen within days?
Hi, having had my CA125 go up to 6,000 and having started a bad cough, I would have sworn that I had ascited built up in my abdomen. My onc. referred me for a CT scans of chest, abdomen and pelvis and could not see any fluid except a very little in the pelvis. I start my new chemo this Wednesday. About 5 days after having…
Amazing CA 125 results :)
Hiya just thought I would stop by and let you all know my amazing news. Been to see my Oncologist today for my CA 125 results. Last time the numbers were 991 and todsay it was 327 :) I could not believe it so my oncologist printed them out for me to see it in writing lol. This was my 3rd result and the numbers have dropped…
Anyone taking just AVASTIN, having side affects?
I am on Avastin, maintenance since last December, last infusion was Oct 27th, 2011. Since June, 2011 I have had diaherra episodes, my doctor is not concerned, but I am. I take a probiotic and yogurt everyday and nothing helps. I am tired of it! anyone have suggestions or have you felt this way....it is causing anxiety...I…
Feet problems..
Hi all! Mums got her feet badly soare.. Her oncologist says it might be permanent. What are you experiences from this side effect from carbo/taxol? She has hard time walking and falls over now and then. Mum is a fit woman (besides the cancer) and 61 so this is totally new to her. She had 7 rounds now waiting for scan next…
Is there a stage 5
Hi, I've been doing a lot of researching online tonight and although there is mention of stage 3 and 4, there is no mention of stage 5. I read that there is only stage 3 and stage 4, and stage 3 is when the cancer is contained to the peritoneum. Stage 4 is when it has travelled to somewhere else, including the pelvis or to…
Anyone know how many members are in our Peritoneum Cancer board?
Just wondering how our numbers pan out compared to other boards. I know that Peritoneum Cancer is said to be rare, but I wonder just how rare. Anyone done any reading on the subject? Thanks, AussieMaddie
Latest CT scan and CA-125
I just had my latest CT scan, X-ray and labs. My CA-125 was up from 63 to somewhere in the nineties. He said my tumors are growing and he is especially worried about one that is near my colon and intestines. So now I have to change chemos again since it isn't working for me. He is giving me the option of which regime we…
Mom's follow-up at 9am.
Today we find out what her next step is going to be. Hoping he said the last chemo did it's job and he schedules the catscans. Wanting to know whether the cancer stuck to just her spleen or disappeared off there all together. The woman needs a break. She gets better everyday but she still looks so much older than she is.…
Peritoneum nodules and radiation
Hi all: I wonder if any one has had radiation applied to cancerous peritoneum nodules? I only have 5 or 6 little nodules and to me it makes sense that targetted radiation to them could work. My oncologist muttered something about the liver blah blah blah but to me it seems that as long as the nodules aren't on the liver…
Mom diagnosis
Hello all- I just found this resource so I would love to ask all of you some questions. My mom has had quite the last 15 months. Aug 9, 2010, she was diagnosed with stage 2 colon cancer. In the same scan, they discovered breast cancer. It was stage 3 with the Her2 nue/ positive gene. The breast cancer was worse so they…

Peritoneal Cancer

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