Esophageal Cancer
Discussion List
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Surgery scheduled and negative nodes!
Surgery is scheduled for Larry March 22nd. All biopsies are negative! A visit for pre-op tests and visit to oncologist before surgery and we should be good to go! Rollercoaster is a on the upward track right now.
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Best Juicing Recipes/Ingredients
Hello, My mom is newly diagnosed with EC, stage 2. She is not a candidate for surgery. She is currently undergoing chemo/radiation. I am looking for any insights regarding the best juicing recipes to help combat this. These seem to be the common suggestions I have found, but I would like more opinions: carrots strawberries…
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More confusion
Good news, bad news.....The surgeon's nurse called today. She said the biopsies of the lymph nodes were negative, but the other biopsies were not back yet. I wasn;t aware there were other biopsies! Maybe they took fluid? Anyways she also wanted to know why surgery was cancelled! We didn't cancel, the surgeon didn't cancel,…
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Smoking
After my Mom’s diagnosis of EC in November I thought she had quit, but then during treatment (2 rounds of chemo and 6 weeks of radiation), found out she had started again. I had a very frank conversation with her about it, and then she seemed to be back on track with quitting. I just found out that she is STILL smoking. I…
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Help needed
My husband has been thru laryngeal cancer, radiation, chemo/surgery no spread in lymph nodes. Then last year cancer of the cervical of the esophagus was found with no spread. Another radiation and chemo. PET/CT and scope were clear in September and October. January's PET/CT scan showed a small spot in his right lung that…
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Opinions about Dr. Luketich Vs. MD anderson Houston
I listened to the great advice I recieved and I'm getting a second opinion from Dr. Luketich. Since we live in Phoenix they were willing to review my father's history to see if he's truely not a great canidate for MEI. Chuck the PA was so nice and understanding and said they didn't want us to travel that far if it wasn't…
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Port removal
Hi, Soon Jon will have his port removed (the thing never worked). Now my question. Is this done under anesthesia? Does he have to fast? Will this take long? The nurse just said we will take the port out. When he had it put in outpatient it took 1hr then recovery room. Jon is doing ok considering all this cancer dishes out.…
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c24/7
Has anyone heard or used the c24/7 supplement for cancer? My husband had an esophogectymy in June2012 and is not getting better. He is still on a feeding tube and continuse to lose weight. He has lost almost 60 lbs which he didn't need to lose. I am desperate to help him! any wisdom you can impaert would be welcome.
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Feeling so overwhelmed
What a crazy 2 weeks. Post chemoradiation pet/ct results showed many lymph nodes that lit up. Devastated. Surgeon appointment went smooth as he is the nicest, confident, and calming physician I have ever met. He not being totally convinced these nodes are cancer scheduled a bronchoscope with ultrasound to biopsy nodes.…
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Gastroparesis/delayed stomach emptying?
I’m two years, three months out from my MIE (unfortunately I’ve had recurrences) and over the past six months have suffered with frequent vomiting. My doctors have diagnosed the issue as a gastroparesis and have recommended a dilation of the pyloric valve to allow food to empty into the intestines more rapidly. We have…
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Having a hard time maintaining positivity
It’s 9am. I put on my raincoat, grab the dog leash, and head out into the damp Oregon morning with my collie. As I pass our mailbox, I pull my phone out from my fleece lined pocket and plug in some headphones. The phone rings. My mothers voice travels over the 90 mi from her house to me, while I take my dog on his morning…
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Question
My father had chemo/radiation tx and we were told yesterday that the tumor was still there but much smaller(endoscopic surery). At this point he's not a canidate for MEI etc.... Is it possible to due more radiation/chemo and get the rest of the tumor?
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Can chemo/radiation alone work for EC?
I've been checking out all the posts on this site for awhile and was looking for some hope that my father's EC (stage 3) could be rid of with just chemo/radiation alone. He can't have the surgery, but does anyone know if esphogas resections help battle this?
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My mom has a new question???
What do you put in a J tube for feedings?
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My mom has a new question???
What do you put in a J tube for feedings?
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Daughter seeking answers/advice - Mom diagnosed with stage III in October
Kind of a long post, so to summarize, my questions are: * What makes someone a candidate for surgery? My Mom is still very underweight (under 100 lbs at 5’6), has little to no energy, and when was diagnosed had an ~3 in long tumor almost completely occluding her esophagus (which we’re obviously hoping has shrunk now). Her…
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I have been blessed with another year
About this time last year I went to the dr about my problems with swallowing and started the EC journey. This has been a daunting journey, I've had my really bad days especially during recovery from surgery but many more good days. I didn't expect to move from stage 3 to stage 4 but I am trying to stay positive, I can eat…
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3rd "Birthday"
It was 3 years ago today that I had my Ivor Lewis surgery. It has been a long, difficult journey—definitely a roller coaster ride. My life has been forever changed due to my esophagectomy in ways that only another person who has experienced EC surgery can understand. Having to sleep elevated, watching what I eat and how I…
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Altra ~ One day you’ll see your dear daddy again! He’s not gone forever.
Dearest Altra, Just read your comments under the topic, “A DIFFICULT QUESTION” (http://csn.cancer.org/node/254406). Hope you will take these comments from my heart to yours. Just couldn’t help but be saddened by your words. “Nick” was unable to make it through the tough struggle that is “Esophageal Cancer”, a formidable…
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My mother is newly diagnosed! Looking for best ENT/thoracic surgeon at MD Anderson Houston tx
Hello, my mother has been a survivor for 9 years of Squamous cell carcinoma in epiglottis! she began rapid weight loss that lead to biopsy and now it is back on the back wall of her larynx! We went to doctor yesterday and now he is saying high chance it's in esophagus. I would like to know what surgeons people would…
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In limbo, surgeon visit
Appointment today with Dr Mark Orringer. He is not convinced that all of the lymph nodes that lit up are cancer.He saidhe has never seen anything like this. The good news is they didnt wipe the surgery date off the calendar. Larry will have to have biopsy of trachea. If it is cancer no surgery, the nodes in the lungs are…
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Yesterday is over dilation is OK
Hi, OMG what a day yesterday. We did just what you had suggested went to the surgeon. He checked everything out and all looks good. Now Jon is a big guy we do have one of those beds you know sleep nuber (very expensive). Anyway we have had it for a while. Jon was in a building colaps a few years ago so it helps his back.…
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Valentines - list of EC links and organizations
For Valentine's day, just a chip in the iceberg, but some information hoping to bring you some warmth, that you are not alone, and possible save you clicking all over the web. * There are organizations out there trying to help EC. * There are places were people impacted by EC get together. Including this discussion board.…
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Stage 4
If a person is stage 4 and becomes NED do you need to stay on chemo? I was stage 3 at the start but in Sept (post surgery) i had 7 additional lymph nodes light up. My lymph nodes are responding to the post op chemo, now just one of the seven is still light up on the recent PET scan. when I asked the oncologist how many…
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A Difficult Question
When we first learned of my husband's diagnosis of Stage 4 and his prognosis, it was as if time stopped. I immediately began research and found the stories on this forum both encouraging and heartbreaking as well as a little bit frightening. When I hear of how much suffering people with EC have gone through, I can't help…
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dialtion now asperating
Hi, Firefighter Jon had dialtion Friday (the day of the big storm). He did well and when he ate noticed a big difference YA! It took forever to get home snow,traffic and all. Jon ate good Saturday little but no trouble. Sunday OK. Then Monday night he asperated a little but brought it under control. Last night it was…
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THE and pretracheal node question
Ok, I'm being a little impatient waiting for Thursday appt with surgeon. My question is does anyone know if the surgeon is able to remove a pretracheal node during a THE surgery? I have researched endlessly, and I know that he can remove other nodes during surgery, however dont know if this particular one that is 4cm can…
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Post EC surgery diagnosis of cancer in abdominal fluid
My father was diagnosed this summer (July 2012) with stage III esophogeal cancer. After three months of chemo & radiation, he underwent surgery this past fall (late-Oct) during which they removed 2/3rds of his espoh and 90% of his stomach. Margins were clear as were his lymph nodes so we were feeling very positive. It…
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RFA - Radiofrequency Ablation - Anyone have any information?
I do not post here much but come here often to read your posts and learn more about EC. I can't seem to bring myslef to actually write, not sure why? A little background - My sweet husband Rocky was DX October, 2011 with EC Stage IVB (mets to the liver and lymph nodes). Not ONE symptom other than fatigue, we would later…
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Post Surgery Chemo and Herceptin
I have been a vistor to this site for a few months now but just today became a member. My husband was diagnosed 9/28/12 T2N0M0. He went through 5 weeks of radiation and chemo therapy with Carboplatin and Paclitaxel. He waited 6 weeks and then had surgery 1/8/13 for complete esophaectomy minimally invasive. He has exceeded…