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New Here
Hi All, My husband was diagnosed a few days ago and I guess I'm just looking for a place to "go" where someone knows what we're going through and are going to be going through. We really don't know much right now. He has a Pet/CT in a few days. Praying for him. Praying for you ALL. Chris 3
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Starting new chemo protocol after herceptin
Round 2 of chemo- by mario33ec on Sat May 12, 2012 01:45 PM Quote | Reply Hi all, Have been on Herceptin for almost six months but Ct shows that it ain't working no more so now I am told the next dose is 5fu and irrocentin (sp?). Has anyone started with Herceptin and then moved onto this? Was there any success? I know that…
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5-Fu + Cisplatin vs 5-FU + leucovorin + oxaliplatin (FOLFOX) with unsure stage roughly 2 or 3
Hi everybody! Hope all is well with you and I will follow up with y'all... I was dx with EC junction with upper stomach on April 5th 2012, and I will start chemoradiotherapy on May 21st. I am having a difficult decision between two drugs they offer from two different oncologist.... Have you had those chemo drugs or…
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In the Dallas area
Would like to find some to talk or email about anyone who has esophageal cancer. my wife is taking treatment for stage three and is having a hard time, she wants to give up
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Haven't checked this board in ages
It's been a couple of years since I finished my treatment,radiation and chemo,Cisplatin and F5U...Just got another clean Pet/Ct scan,NED since treatment ended..I was staged 2-b and turned down the surgery,didn't want a big life style change...So far so good,my Dr. thinks I may be one of the few who beat it but I think it's…
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Preparing for MIE Surgery on 5/15/12-Very anxious about what to expect
I was diagnosed on 1/11/2012 while working in Honolulu with stage 2, t3 adenocarcinoma at the distal junction. I immediately flew home to Texas and had chemoradiation therapy (7 weeks out) and just had another EUS. My GI stated that he found no evidence of the tumor but did see inflammation and redness that he believed to…
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Don met with radiation onc today for second opinion of post op treatment
Hello All! I posted much of this on a reply to William and Mishti on a post Mishti started about her dad, but want to let those of you who didn't see that post know what is going on with Don - I am modifying this slightly so that it only pertains to Don's situation. William and I have an agreement to disagree at times and…
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If it sounds too good to be true it usually is
I also have read many articles on so-called vitamins, fruits, drugs, etc that will help with EC. I used the Indian spice curcumin every day in Vince's food as MD ANDERSON had done a study on's It's worth for EC. As I have said before EC is a vicious beast and using things randomly that may or may not be effective is not a…
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G tube vs J tube
Well, my dad did get the feeding tube. He has a G tube instead of the J tube. The Dr. told my parents the reason for this is because the J-tube is smaller and can not get enough nutrition in him. Since having the tube, he has been really sick to his stomache and throws up often, if he doesn't he feels like he is going to.…
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Tom's lung fluid test came back negative..no cancer cells found
So now he'll go June 12th for a ct scan and if it shows no growth since he's been off chemo for 4 months..ct in 3 months. So taking advantage of the time and no chemo...we're going to Vegas June 5-10th. He loves to go, me not so much. But it's warm now, and the pool will be calling me...No painting this time..and I buy my…
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Finally-happy news from us!!!!!!!!!
Hello everyone, I wanted to share our happy news. We are moving in a month, not far from where we have been for 17 years, but moving to a smaller home,a more afforadable home. My house is on the market and my younger sister has stepped up to the plate and helped us buy this home. Although I have had many tears packing my…
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Positive radial (Circumferential) margin- Post surgery lab reports-
Hi Friends, My dad had a surgery on 3 April this and we have got his lab reports. It says that the radial margin of the removed esophagus still has cancer. When we asked the doctor, he said that since the disease was advanced. The radial margin that is the area on the outer layer of the removed esophagus has come positive.…
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Hello
Hi everyone I hope you don't mind me butting in as I live in the UK. I do have a holiday home in Davenport Orlando. I have followed your threads since I found this site a few months ago! I must admit that we have the Macmillan site in the UK which is very similar to this site in what it offers. However I do find the…
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An update on my husband Tom
I read the board every night but I don't post very often. It's been awhile since I upddated Tom's condition etc. For new people, he was diagnosed with squamos ec in July 2009. His initial treatment was taxol, cisplation and erbitux in a clinical trial at the U of Chicago. Concurrently he had radiation every day for 6 weeks…
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Excessive Spitting-any tips?
Hi all, So the last few weeks I have been spitting constantly during the day. My Doctor prescribed some pills called Maxeran this week but so far they have not helped. If anybody has any tips or similiar symptoms please let me know. I think the issue is either my body producing too much saliva or not being able to swallow…
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Good news, perhaps???
My partner James (Stage iv Dx 8/11) underwent a procedure to have the two tumours removed from his liver last week, which went well. The biopsy from his oesophagus also came back negative, so we are ‘tumour free’ at this point in time. The surgeon who performed the liver operation is sceptical about the original diagnosis…
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Sore throat
I'm back with another question. I am 1year out from my surgery and still panic with every little pain. I have been doing ok lately until my throat became sore. I went to my primary dr and he said it was nothing, maybe some sinus drainage. I was wondering if anyone else experienced a sore throat. Do you think the cancer…
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last week of chemo(5fme)
All done with radiation, monday I get rid of BOB (that is what I call my pump).Time sure fLYs when you're having fun!! I am ready to see doctor and talk about my surgery. Ct may 19 and Doc Orringer(sp) may31.Everything has been great if thats even possible. I am happy to hear about the sucess stories and very sad about our…
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Fluid build up?
Can someone answer this for me? Jr. just went for his chemo and said he gained 11 lbs. but it is fluid. He isn't home yet, will find out more when he gets back. Mom said she has noticed he looks like he has gained weight in his stomach (Probably abdomen). His arms and face and legs are all so very skinny. Is this normal or…
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My Beloved Don is Gone
It has been four months since I lost my sweetheart of 61 years to this terrible EC. I am doing pretty good but of course some days are harder than others. I have no doubt that I will one day join him in heaven. It is very lonely, but I am not alone. I have my God with me every day. I hope you are all doing well. I thank…
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Optimistic survivors of Stage 3 and 4 adenocarcinoma?
Hello all, this is my first post. I am so moved by the posts I have read -- your stories of battling this terrible disease, and struggling with caring for loved ones who suffer from it. Here's my story: I'm a 49 year old female, married, with two kids (ages 15 and 9). Last June, I was diagnosed with Stage 3 adenocarcinoma…
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A friend in need is a friend in....
Hello everyone! My name is Jacque and my father John was diagnosed with stage IV esophageal cancer in December 2011. The biopsy showed it was a non-small cell carcinoma. The PET scan revealed a spot on his rib and adrenal as well as the large esophageal mass. After 9 weeks of chemo (5-FU, cisplatin, and epirubicin) he had…