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Uterine/Endometrial Cancer

Archives for June 2021

Charweaver47 – Please see this post regarding uterine carcinosarcoma (MMMT)
Your new post was to a very old, very long thread. I've started this new topic for you so that others can see it and respond more easily. I was diagnosed with Stage 3B carcinosarcoma (MMMT) in 2016. You can read about my cancer experience by clicking on my username under my profile photo. Since MMMT is a rare form of…
Questions To Ask Radiation Oncologist For External Radiation
Hi All - I have an appointmnet this Monday afternoon with a radiation oncologist that my gynecologist oncologist referred me to for 25 external radiation treatments she feels I need post-op for my stage 1b grade 3 EC. I am still in the process of getting second opinions about next steps/treatemnt from one local GO and…
low BP after chemo infusions ??
As I mentioned in my earlier post, I had my chemo infusion a week ago today. Did pretty well in regards to side effects until yesterday around noon when I had an "episode" where I think I was close to passing out. I had the same thing happen on day 8 after my 3rd cycle of chemo. Ended up in the ED that day because I also…
Weight, Exercise, and Gynecological Cancers
Hi, Ladies! i've been doing so much research in the last year and have finally decided I would/should throw something out there for y'all to think about. My main point is that I'm more than a little irritated that I had to discover these things by myself! So....I'm 66 now. I'm tall and large-boned. I'm the opposite of a…
Clinical Trial Testing the Addition of the Immunotherapy Drug, Pembrolizumab, to the Usual Radiation
Has anyone been or currently in this trial or on this drug and have any opinions about it? By reading the info I think I would qulaify and it isbeing done at my location. Not sure I want to but before asking my doctor thought I would ask here. Testing the Addition of the Immunotherapy Drug, Pembrolizumab, to the Usual…
First Jemperli (dostarlimab) infusion today
Mixed bag today when I went to a local satellite clinic for Huntsman for my 3d Keytruda infusion. Nurse told me they had the new drug and were going to give it to me as soon as I signed the acknowledgement form. Good news there although I hadn't had any really negative side effects from Keytruda the Jemperli was approved…
MY FINAL PATHOLOGY - ANY INSIGHTS OR SUGGESTIONS?
Got my call this mroning from my GO. Stage 1B Gradec 3. Tumor confined to uterus. All lymph node negative. Shocked at how many nodes were taken and worried about lymphedema risk. I had BC and lymph nodoes removed on both sides 5+ years ago. I was told that I need 25 external radiation treatments to start in about 4 weeks…
MD Anderson Question
Is anyone currently or has anyone either been treated at or had a seconds opinion at MD Anderons for post-surgical treatment and/or follow-up surveillance and if so, who your oncologist was and your thoughts on them. Also if you were treated threre, did you also see or coordinate anything with their Integratuve Medicine…
Post-Surgery Walking (Steps)
Hi All - I am 8 days post-op robotic and curious how much walking I should be doing in terms of daily steps. It's been wicked hot (high 90's/almost triple digits) and the mosquitos are bad so I have pretty mcuh bene housebound walking loops around our one story house. I have done between 2500-3300 steps a day and…
Icing, I think it helped.
Hi all, I started chemo again yesterday. Cycle 4 yesterday, with a break in between for radiation therepy. For those who don't know, I am undergoing "sandwich therapy" for Grade 1, Stage 3B Endometrioid carcinoma. This regimen consists of 3 cycles of chemo, followed by 25 sessions of EBRT (external radiation) and 3…
just diagnosed with endometroid adenocarcinoma stage 1
I was just diagnosed with stage 1 utereine cancer and have an appointment with a gyn/onc next week. I am so nervous about all this. .I am on HRT and they told me to just stop it.. I dont want to stop it cold turkey and I am hoping I can take it after surgery.. I wont be able to function without it. . has anyone else had…
supplements/hyaluronic acid
I havent been on here for quite a while. I am 2 years and 4 months from my last chemo and I am doing fine, except for arthritis in my hips and fibromyalgia which has been worse ever since chemo. My question is: I want to take a supplement for my hips that has hyaluronic acid in it, which is supposed to be very helpful, but…
Had My Robotic Surgery Thursday But I Am Very Grumpy At Home Today (Saturday)
Just a quick note to say hi and update. I was able to have the robotic surgery and that went well and the doctor did not have to remove anything more than planned - uterus, cervix, tubes, ovaries and sentinel nodes. My surgery was a little after 7am and I was in my room by 1:30. I had a great nurse and aide when I got to…
Chemo and keytruda
I have endometrial adenocarcinoma, stage 4 and after chemo I am now on key truss for life. I have noticed lately my thinking is off. I confuse dates, times, appointmrnts. Example is talking with a peer and saying I knew we had the program this month. There was a pause....it was LAST month. My mind was blank. Anyone else…
Lusafag: Your Treatment Dilemma
Lusafag I hope you'll forgive me if I recap what you've posted in several messages since it many be easier for others to respond to your questions if they have a better understanding of your situation by reading it in one message. As I understand it, you and your husband are doctors in Pakistan, but since neither of you…
Newbie Update - Pre-Surgery Scans Were Clear!
As I mentioned, I am newly diagnosed and will be having my hysterectomy this Thursday June 10th but my gyno ocno sent me for cat scans from neck to pelvis a week ago Friday. This is her protocol to see the whole picture before rather than after. I had them done late Friday but I wnated her to call me with the results but…
I Am New Also
Hello. I am newly diagnosed with Uterine Cancer, Carcinosarcoma. Last CT scan tomorrow with surgery scheduled for June 23, 2021. I am in that initial scary place however look forward to reading about your journeys as I believe they will help me with my own. Any suggestions appreciated.
Laparascopic vs Robotic vs Abdominal Surgery
Hi everyone. While my surgeon told me she may have to do open surgery she has me book for the below HOWEVER after doing a lot of research over the weekend I do not want robotic surgery for a number of reasons. I am concerned abourt my age, the position they have to put you in and issues that i alreday have with my eye…

Uterine/Endometrial Cancer

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