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To freeze eggs or not to freeze eggs, that is the question
Hi everyone! I have just been diagnosed and have been given bout a three month window to potentially pursue some egg freezing. I'm 29 and have never had a significant other. I have always thought that one day I would be pregnant and have a baby of my own, but now I need to have a hysterectomy and can never scare little…
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VAT assisted lung biopsy
Hi all. Hope you are all doing well in these crazy times. I was diagnosed with endometrial cancer last year; grade was 3 so I had a hysterectomy really fast on April 15. I was staged 1A. The pre-operative scans revealed 2 lung nodules (stable at 3mm each up till now), but also a section that is 0.9cm of ground-glass…
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Chemotherapy
I just had a post operative appointment with my surgeon. He successfully removed the cancerous left para-aortic lymph node (on June 29, 2020) that had been a recurrence from the Stage IB, FIGO 2 endometrioid endometrial adenocarcenoma (Total hysterectomy in Jan 2020). He now recommends chemotherapy and possibly targeted…
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SHARE- resources.
I volunteer with this group. They have online support groups and other resources some of you may find helpful. They recently launched their uterine cancer support resources. https://myemail.constantcontact.com/Introducing-SHARE-s-New-Uterine-Cancer-Newsletter-.html?soid=1101376025441&aid=EMTJA7nfX80
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At Wits End - follow up to guidance welcome.
I am truly at Wits End. I went for yet another biopsy this morning following that marathon period of more than a month. It was so painful! The last two biopsies were hardly uncomfortable but this one was torture (even with a lidocaine injection). Maybe because the endometrial stripe was just 5mm? In any case, he had to do…
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YAY! Port removal.
Had my port removed one week ago today. Everything went well. I finished treatment in March of 2019. All is well. Now, if only this damn virus would go away, I want to travel.
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Drug Costs Lotto- vent alert
Just want to vent....I've been on the phone most of the afternoon trying to find a way to reduce my drug costs. I have a Medicare Part D plan through United Healthcare AARP (it sucks compared to my previous commercial plans). Although Medicare is great, the drug plan sucks. i currently am in the "doughnut hole" because of…
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UPSC and hormone replacement?
I know there are many UPSC survivors on the board, so perhaps one of you can help. Although I'm in my 60s, I learned I was not technically hormonally in menopause when I saw the gyn last July who referred me to the gyn/oncologist who became my doctor. The referring gyn is very into hormone replacement and gave me a lot of…
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upcoming D&C
I have PCOS and my last ultrasound was done in 2017. Recently, I started with a new MD who happens to be a gyn onc. I saw this dr because I have a history of vin 3 and my previous gyn moved to a different location. My ultrasound from 2017 had a stripe of 1.4 cm. She told me that she was going to schedule another ultrasound…
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Endometrial Biopsy
My conclusion is don't let them do this painful procedure when they often don't get enough tissue to tell you anything. https://www.cancertherapyadvisor.com/home/cancer-topics/gynecologic-cancer/endometrial-cancer-study-reveals-practice-gap-treatment/
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Guidance Welcomed
Hi, this saga of mine doesn't seem to stop. After being treated for simple hyperplasia last summer (2019) I had a biopsy which was hyperplasia free (following 4 months on megestrol acetate). My periods did return but about every 6 to 7 weeks (despite being 52 my bloodwork says I'm not menopausal). Then just over a month…
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Treatments done but . . .
Hi, I was diagnosed last fall 2019, with carcinosarcoma. Had surgery immediately was then diagnosed at Stage IIIc.1 - radical hysterectomy and 6 cycles of carbo. and taxal with 28 radiation sessions sandwiched in between. CT scans shows NED - and yet I am struggling mentally with moving on - I have this constant awareness…