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Uterine/Endometrial Cancer
Archives for July 2020
Discussion List
To freeze eggs or not to freeze eggs, that is the question
Hi everyone! I have just been diagnosed and have been given bout a three month window to potentially pursue some egg freezing. I'm 29 and have never had a significant other. I have always thought that one day I would be pregnant and have a baby of my own, but now I need to have a hysterectomy and can never scare little…
VAT assisted lung biopsy
Hi all. Hope you are all doing well in these crazy times. I was diagnosed with endometrial cancer last year; grade was 3 so I had a hysterectomy really fast on April 15. I was staged 1A. The pre-operative scans revealed 2 lung nodules (stable at 3mm each up till now), but also a section that is 0.9cm of ground-glass…
Chemotherapy
I just had a post operative appointment with my surgeon. He successfully removed the cancerous left para-aortic lymph node (on June 29, 2020) that had been a recurrence from the Stage IB, FIGO 2 endometrioid endometrial adenocarcenoma (Total hysterectomy in Jan 2020). He now recommends chemotherapy and possibly targeted…
SHARE- resources.
I volunteer with this group. They have online support groups and other resources some of you may find helpful. They recently launched their uterine cancer support resources. https://myemail.constantcontact.com/Introducing-SHARE-s-New-Uterine-Cancer-Newsletter-.html?soid=1101376025441&aid=EMTJA7nfX80
At Wits End - follow up to guidance welcome.
I am truly at Wits End. I went for yet another biopsy this morning following that marathon period of more than a month. It was so painful! The last two biopsies were hardly uncomfortable but this one was torture (even with a lidocaine injection). Maybe because the endometrial stripe was just 5mm? In any case, he had to do…
YAY! Port removal.
Had my port removed one week ago today. Everything went well. I finished treatment in March of 2019. All is well. Now, if only this damn virus would go away, I want to travel.
Drug Costs Lotto- vent alert
Just want to vent....I've been on the phone most of the afternoon trying to find a way to reduce my drug costs. I have a Medicare Part D plan through United Healthcare AARP (it sucks compared to my previous commercial plans). Although Medicare is great, the drug plan sucks. i currently am in the "doughnut hole" because of…
UPSC and hormone replacement?
I know there are many UPSC survivors on the board, so perhaps one of you can help. Although I'm in my 60s, I learned I was not technically hormonally in menopause when I saw the gyn last July who referred me to the gyn/oncologist who became my doctor. The referring gyn is very into hormone replacement and gave me a lot of…
upcoming D&C
I have PCOS and my last ultrasound was done in 2017. Recently, I started with a new MD who happens to be a gyn onc. I saw this dr because I have a history of vin 3 and my previous gyn moved to a different location. My ultrasound from 2017 had a stripe of 1.4 cm. She told me that she was going to schedule another ultrasound…
Endometrial Biopsy
My conclusion is don't let them do this painful procedure when they often don't get enough tissue to tell you anything. https://www.cancertherapyadvisor.com/home/cancer-topics/gynecologic-cancer/endometrial-cancer-study-reveals-practice-gap-treatment/
Guidance Welcomed
Hi, this saga of mine doesn't seem to stop. After being treated for simple hyperplasia last summer (2019) I had a biopsy which was hyperplasia free (following 4 months on megestrol acetate). My periods did return but about every 6 to 7 weeks (despite being 52 my bloodwork says I'm not menopausal). Then just over a month…
Treatments done but . . .
Hi, I was diagnosed last fall 2019, with carcinosarcoma. Had surgery immediately was then diagnosed at Stage IIIc.1 - radical hysterectomy and 6 cycles of carbo. and taxal with 28 radiation sessions sandwiched in between. CT scans shows NED - and yet I am struggling mentally with moving on - I have this constant awareness…
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