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Megace
So I always say if the cancer doesn't kill you...the treatment will. Megace bought me 3 years of NED but I just want to let you know the trade offs. Constant hunger with a 20 pound weight gain (but that seems to be it. Dead or fat? I'll take fat!). I developed diabetes and am on 48 units of insulin plus prandin but it's…
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Virtual Visits
How are you all finding your virtual visits? I like them for visits that you really only are talking and it saves me travel time. I agree with others that sometimes you need a "touch" visit and also I'm sure it is frustrating for people that are not tech savvy. But I myself hope we continue to have this option post-virus…
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I'm tired of the at risk warning, enough!
Yes, everyone who has an illness and is being treated by doctors have been told this, and cancer patients are extremely vulnerable, but my state is really pushing the stay home if you are elderly or at risk. To the point, that they are hinting that they would open up the economy, but still mandate (or at least insist) that…
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Sad news from Cheers regarding her Mother
Cheers just wrote to say her mother passed away from her struggle with uterine carcinosarcoma (MMMT) in January, 2020. Cheers reports that her mother persevered during her long fight with cancer, despite setbacks from her various treatments, but in the end, she couldn't beat back this insidious disease. You can read about…
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Those of us with USPC...
If any, how many recurrencea have you had? How far apart? And how what it treated? I’m at the end of treatment of my first recurrences. I was only NED for 9 months :( First I was treated with 6 x carboplatin and taxol with massive surgery in between. First recurrence was treated with 6 x carboplatin and doxil, due to…
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Bleeding after sex and dilator use
Has anyone experienced vaginal bleeding after sex and dilator use 14 months after brachytherapy? I had my surgery for stage 1b, grade 2 in August 2018. I had 3 rounds of brachy therapy starting 10 weeks post op. after brachytherapy I had a very watery discharge for almost 10 months. It finally stopped in Sept 2019! My…
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Scheduling all the doctors
I am finally done with treatment (6 rounds of carbo/taxol) followed by 25 radiation. My oncologist told me I would see one of the three doctors involved (gyn onc, radiation onc and onc) every three months. However, I have appointments with all three scheduled in one week (May29-June3). I was wondering how others juggled…
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How long should I worry about developing lymphedema?
I'm now 26 months post-surgery and have no lymphedema symptoms. They took all my pelvic nodes, so I've been worried about it. I exercise vigorously every day and am quite active. I've read that for breast cancer survivors, the risk of developing lymphedema drops off dramatically after 3 years. Does anyone know how long…
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Has anyone heard from Kaleena?
Has anyone heard from Kaleena? She hasn't been here for a month and I'm a little worried about her. Things we not going so good with her. Love, Eldri
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My Lenvima/Keytruda experience so far - please share yours
My recurrence diagnosis was Aug 19, 2019. Metastatic UPSC to multiple lymph nodes. Did 6 more cycles of Taxol/Carbo ending 12/30/19. PET scans Jan & Mar indicated some response, but also spread to more lymph nodes. Started Keytrud, 200 mg infusion on 4/6. On 4/7 started Lenvima 14 mg. By day #3 my blood pressure was way…
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New "My Posts" Function
If you haven't checked your "My CSN Space" section recently, you may not have seen the new "My Posts" function. This function enables you to: * See a list of the posts that you've initiated (the "Content" option). * See a list of the posts that you have commented on (the "Comments" option). Since we know that the CSN's…
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Two years cancer free :)
I just had my regular follow up 2 days ago. As it turned out, I got a twofer out of it because I had a UTI and she took care of that for me. This marks 2 years post treatment (or close to it)! She scheduled my next follow up for 4-6 months instead of 3-4. It's nice to note that this makes me happy now instead of anxious,…
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Next Appointment
When is your gyno/oncologist going to begin seeing you in the office again. I was supposed to have a 3 month checkup March 24, it was canceled and no other apoint meant made. Bloodwork was done, appeared to be ok. My next follow up should be in June. I am a stage 1a upsc survivor, hysterectomy was performed October 2018. I…
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Happy 80!
Donna Faye! Happy 80th birthday!!
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Coronavirus, cancer and all alone
I guess tonight I'm struggling with all of the above, I am blessed with four years of not active cancer, yet I know I have to stay at home to protect myself. So I stay at home, day after day. But I'm all alone, family is distant, and the phone calls, or emails from family are too infrequent as they are only trying to get…
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10 years cancer free today UPSC Brachytherapy saves lives
Had my annual exam today and am 10 years cancer free. Another lady who did chemo with me just found out she had a reoccurance with UPSC at her 10 year checkup. The difference between her treatment and mine was I had the internal radiation (brachytherapy) and she opted not to do it. Her only new symptoms were a reoccuring…
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CA125 question
Hi all. I had my first recurrence in November last year. My first dx was September 2018. Stage 4B USPC..... did 3 taxol/carboplatin, massive surgery and finished of with 3 chemotherapy. CA125 was 13. Now I’m doing doxil and carboplatin. I’ve had 4 rounds. CA125 was 160, rose to 180 after first infusion. Then 85, 65 and 45…