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Well, It’s Back
I got the results of my 6 month CT scan and there's a tiny, tiny area of disease on the left peritoneal area. We would not even see it but for the CT scan. Needless to say, I'm heartbroken. But I shouldn't be so surprised. The Megace was only going to work so long. So we've decided to try 21 days of tamoxifen and 21 days…
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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…
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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…
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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…
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Keytruda/Lenvima ---- DAY 2
I want to step back to day one when we met with the pharmacist to review both Keytruda and Lenvima. He said that Lenvima was a “super-charged Avastin” or “Avastin on steroids”. Now Little Annie had been on Avastin for six months and we think that is a “miracle” drug for what it has done. Last summer, Little Annie had five…
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Keytruda/Lenvima ---- DAY 1
Well, I was hoping that Donna Faye would be first to report any side effects from this Keytruda/Lenvima treatment. This combination was FDA approved for some Endometrial Cancers on September 17, 2019 so I would have thought several ladies would have been on this treatment My timeline: December 2017 - Hysterectomy and UPSC…
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New use for the box from the dilator
Okay, ladies, get ready for an off-color laugh. My husband was intrigued by the instructions written on the box for the dilator, "Use ten minutes daily". So he posed with the empty box - bet you can all guess where he put it! Incredible, how he can laugh in the face of this, and make me laugh too! I definitely married the…
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Is it Lymphadema
good afternoon ladies, it's been a few weeks since I last posted here but I am again in search of your wisdom and knowledge. So, I completed 25 rounds of radiation on the 27th of Jan and it went fairly well with fatigue being the most significant issue. Towards the middle of the treatment I noticed swelling in the groin…
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Moving forward
Hello, I havent posted on here for quite some time. I was. thinking of something today that i was hoping to post about. So some of you ladies who have been on here since i started know that my uterine cancer was the second cancer i was diagnosed with. My first cancer was Hogkins Lymphoma and was diagnosed with it about 25…
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IMPORTANT for potential Lenvima/Keytruda users
This is very important information if you are thinking of going on this drug. I feel so fortunate to have an oncologist who will call a halt when she thinks it is needed. I thought I was to begin treatment today. HOWEVER, the pharmacologist came in and went through all the possible side effects and how I was not to wait if…
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Dedifferentiated adenocarcinoma
Ladies, first of all I admire your strength and thankful for this forum... I'm writing on behalf of my mother, she is just 58 years young and has been diagnosed with dedifferentiated adenocarcinoma stage 2. She had her surgery on November 21st and this went well and her gyn/onc from Cleveland clinic cancer center very…
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And so it begins
The sun is finally rising but I have been awake for some hours. No matter how many times one faces the beginning of new treatment ( this is my 4th time), it is daunting. Once again I am beginning w/o a port. I do not know why this always is the way but it has been. (3 times I have had chemo more than 3 infusions and never…
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For new members, treatment recommendations
https://www.mdanderson.org/content/dam/mdanderson/documents/for-physicians/algorithms/cancer-treatment/ca-treatment-endometrial-web-algorithm.pdf This is a good link to current treatment recommendations for endometrial cancer
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P53 Positive
I met with my oncologist today and she was a little confused by my pathology report. It said I had endometrioid adenocarcinoma grade 3, but it also said I was p53 positive. She said those two things usually don't go together. p53 positive typically goes with serous carcinoma. Furthermore, it is usually with postmenopausal…
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Apologies
Ladies, please forgive me. I've been unable to keep up with the joys and trials here lately. My husband is retiring from the military in a couple weeks and we are packing up our quarters here in Texas and preparing to move across the country. I know I've missed welcoming new members and cheering others on, and I'm sorry.…
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Monitoring for a Cancer Recurrence
I’ve seen many women on this site develop recurrences who are no longer with us, Stage 1 cancer patients who have developed recurrences, people who have survived five years, seven years, who then developed recurrences and women who want to know what to look for to watch for a recurrence. The cancer industry says there are…
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Identifying who will/won't benefit from checkpoint therapy
This research is hot off the presses and I don't imagine the procedure mentioned in it is widely known or maybe even usable yet. But I wanted to flag it here for anyone of us who is now or may be down the road considering checkpoint therapy, a type of immunotherapy. I plan to pack it away in case my own onc brings up…
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It's always something... oncologist thinks I have splenic marginal zone lymphoma
Well, the enlarged spleen that the first gyn med oncologist said was due to cirrhosis (even though I don't drink, and had normal liver function), now appears to be splenic marginal zone lymphoma, a slow-growing lymphoma, and I've probably had it for at least 4 years. I'm having the PET/CT on Wednesday to see whether I'm…
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Radiation treatment after hysterectomy
I just had a robotic-assisted laproscopic hysterectomy 3 weeks ago. I was diagnosed with Stage 1B Grade 2-3 Endometrial Adenocarcinoma. My doctor recommended I have radiation therapy to prevent the recurrence of cancer. Is the radiation necessary? Does radiation damage healthy cells? Has anyone had this diagnosis, but not…
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Keytruda
I don't use this forum (bad news is discourage here it seems), but I have posted updates abut being on Keytruda before. I have been on it for 3 1/2 years now before it was approved for MSI-H and so far so good. I now have opted for every 6 weeks and I have refused all other treatements except Anastrozole. Search for my…
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Can't be afraid to talk about cancer "down there"
Ladies, I want to share a story about an interaction I had with a young woman yesterday. Weather is supposed to be cold and crappy here in Indianapolis this weekend and I decided to eliminate one stop for Saturday and pop in to the grocery store on Friday on my way home from work. When I pushed the shopping cart back to my…
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Decision Made
I am one fortunate woman. Today my RN son called at 3 and we went over the latest notes on my treatment choices. Then my oncologist called at 6 pm after a long day in clinic and answered all my concerns. At 7p my daughter came and shared what her gyn friend had said. I have decided to go on the pembro/lenvatin regimen. I…
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How fast does serous carcinoma spread
Waiting 3 weeks after biopsy to see oncologist After biopsy showed high grade serous carcinom And also atypical on pap. Is that typical? How fast does this spread? I first noticed very slight pinkish discharge in oct or nov 2019 ask doctor shortly after for GYN appointment to check it out... he didn’t get around to it till…
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Biopsies vs. D&C
Hi, I was diagnosed with simple cystic hyperplasia in July 2019 along ovarian cysts based on a uterine biopsy. I'm 51 years old. My endometrial lining at the time was 12mm. I was told this has a very low chance of becoming malignant over time. My gynecologist put me on 80mg of megestrol acetate for 4 months. Then I…