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Uterine/Endometrial Cancer

Archives for March 2016

Well.....
As some of you know East Texas and West Louisiana have been slammed by the flooding. I thought my house might be in the clear this time, but I can't take the chance on staying here with my 90 year old mother. We had three feet in the house last time. So, I will be bugging out tomorrow with her. My house is inbetween the…
New and just beginning
A little about myself I guess is in order. Currently 36 (just had birthday on the 10th). For years I delt with abnormal periods, between ages of 20-28 I had no period. All the while I've been diagnosed as 1. Morbidly obese (was loosing weight though, YAY me. Went from 340 to 263 but that is on hold for now) 2. PCOS 3.…
Moli updating
Hello ladies I hope today finds you all in good spirit and tomorrow will come with clearer views and NED. My Journey continues . Just as I expected, my surgery is postponed although I had my pre-op meeting on Friday I still have a meeting with the plastic surgeon on Tuesday instead of surgery, due to the fact that I…
Grateful to be alive!
It's a beautiful day in Green Bay. The sun is shining and it's supposed to be in the 60s. I think our long winter is finally over about a month earlier than usual. I was outside with Spunky (my little Maltese) this morning and I realized how happy I am and then I felt guilty for feeling happy. Do other cancer survivors…
Chemo #6 Completed
I have just completed 6 treatments of Carboplatin and Taxolplatin and have had only a slight reduction in the nodules in my lungs. The doctor wants to try two more rounds. One oncologist wants me to stop after that and the other more experienced oncologist thinks I could go on trying to get rid of the nodules. Has anyone…
Just beginning this journey
Recent biopsy results confirmed Grade 2 adenocarcinoma. Met with surgeon and hysterectomy scheduled April 4 with vaginal extraction, robot removal of two seminal nodes. Both surgeons fairly confident that treatment plan likely will include follow up monitoring or perhaps radiation. Possible, but not expected, chemo.…
chemo #5, no taxol today
I had good blood results yesterday, but doctor said no taxol today because of my feet. He said he wanted to skip it today and see if the neuropathy gets better by next time. I really begged him but he said it would not make a difference in my prognosis. He also said the only other thing he would consider would be switching…
Grams has her 5th round of chemo tomorrow
Hey ladies, just wanted to check in grams is doing good, she goes in tomorrow for her 5th round tomorrow, my aunt is up with her for this one, so prayers that she aces this one also. Her last round is april 1st and I will be up north with her for that round. Her brother, my great uncle Darrel started chemo last week and he…
Stage IV UPSC Survivor Checking In...All Good
Hi Ladies! I just wanted to check in, let you all know I hold you in thought daily, and that after my latest labs/chemo, my CA125 is down to 10 which supports last month's CT scan which showed spots on my liver completely gone, lymph nodes back to normal, and nothing new or suspicious!! Yay!! Just want to keep spreading…
Cisplatin in combination w radiation
Hello ladies, I am currently on break from frontline treatment. After my 6 rounds of taxel/carbo (w one transfusion) I felt so beat up I asked my onco team if I could have 4 weeks off, instead of 3, before starting radiation. Since the chemo stays in your system for five weeks after infusion they agreed. When I went for my…
Update after failed Carbo/Taxol
Hello Ladies, I dont know if any of you remember reading my posts about my sister. In a nutshell....a year ago she found out she had Uterine cancer. (she's 46). They did a total hysterectomy, removed some nodes for testing and did a wash. They staged her at 1A because it had not gone more than 30% into the uterine wall.…
CA125
For the past 2 years my CA 125 has been <6. I had clear cell uterine camcer and had chemo and radiation. This time my CA 125 was 8 and while the chemo nurse says no worries my doctor says let's recheck in one month. Does anyone else habe any issues with fluctuations in ca 125?
Heading to the doctor tomorrow
It's been a little over five months since my hysterectomy and this morning I found blood. I called my oncologist's office and my chemo nurse called me back. She said it was probably some "granulation" in the vaginal cuff and would have to be cauterized. I FINALLY got my port site healed after how many months and now…
Genomics
Not sure if there is a thread on here about genomics. Apparently latest research shows that some high grade endometroid tumors have certain types of genomic alterations also found in serous tumors and may benefit from more aggressive treatment after surgery. Plan to ask my surgeon to make sure genetic testing is done on my…
How are you...
Nempark, just checking on you and your husband. How are things going? Thinking of you. Double Whammy are you ok? Kathy G. just checking! Who ever I missed, I missed you in my heart!
Technical difficulties
Ok, I just typed a big long post to the new thread cheese queen posted and only one sentence is showing. Help! What am I doing wrong?
New wardrobe or not?
I've lost almost 35# since I was diagnosed which is really good although when I was lying on the bathroom floor, barfing up my dinner, I didn't think so. Anyway, all my clothes are too big. I usually wear a turtleneck sweater and jeans in the winter so I took my sweaters and, using my sewing machine, turned them inside…
Ok, I'm definitley in this sorority now
Hi All, CheeseQueen here and here is my story so far: Post-menopausal for 20 years, had early menopause at age 39 (don't be deceived by my profile picture, that was in 1976!). In January, started having bleeding. Had been to gyno in November, no problems. * 1/5/16 Gyno retired in December, had to see colllegue in practice…
UPSC Fighters- My Mom's story of hope! NED after 4 years
Ladies - wanted to share a glimmer of hope. My Mom was diagnosed in 2011 with UPSC Grade 3A. Had radical hysterectomy followed by the standard taxol/carboplatin every 3 weeks. Had ascites and CA125 in 200's throughout 2014. In early 2015 she had a recurrence of 3 nodules in her pelvis and Dr. Chu of Fox Chase Cancer Center…
new report out on ovarian cancer
Google, new report out on ovarian cancer. It's heartening to know that they are acknowledging that the clinical trials are fewer than some other cancers, they recognize that ovarian cancer is a makeup of different types of cancer, and it's "diabolical". Also lists high grade serous needs to prioritized. There's hope for us…
When is Moli's surgery?
When I Moli's surgery? I was thinking it was this week but....my mind is not working so good these days. Has anybody heard from her? Love, Eldri
Massages?
I wanted to give myself a mini treat (I can't go to somewhere fun right now), so I tried to book an appointment for a simple swedish massage with hot stones at a spa that is connected to one of our large hospitals. They even advertise cancer care as a specialty, and list amoung services reflexology and massage, along with…
Driving Miss Norma
I wanted to share a wonderful adventure about a 91 year old woman, who two days after the death of her husband of 67 years learns she has uterine cancer. She declines treatment and hits the road with her son and daughter in law. They've been traveling in an RV for the last six months and Norma is having the time of her…
Port today
Well, I made it to Gulf Shores and am home again
Will it never end??
I went to my doctor's office today for labs and a blood pressure check. I was there for almost TWO hours. Seems this morning when they came to work their computers wouldn't recognize February 29th and crashed. Then their automatic calling system called people last Friday and told those who had a March 1st appointment that…
How "bad" is chemo?
I have stage 4 ovarian cancer*, and I start chemo on Friday. I recovered mostly from debulking and hysterectomy (got all visible cancer). I am eating normally, active, and besides some residual tiredness, I feel good. I'm just trying to figure out how much of my "normal" lifestyle I can return to once I start chemo and…
Always things to be thankful for
my thankfulness cup is overflowing. We have just been blessed with a new great grand child. 8lb 12 oz. 22 inches. His name is Uriah and he is very adorable. Hugs and prayers to all, Lou Ann

Uterine/Endometrial Cancer

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