Uterine Cancer
Discussion List
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Pissed
I just found out I have cervical cancer and I am pissed. I refuse to waste 1 minute on not saying exactly what I feel to everyone. My emotions are raw. It's not like what I am saying hasn't been said and I am not the only person ever to feel this way. So I am probably just taking up space on a forum that no one will ever…
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CT results not good
Hi everyone, Well after 8 rounds of carbo/taxol I had a CT scan and got the results this week. The tumors responded to the first 4 rounds..shrunk over 40%...but not so well after. Two of the three tumors have started growing again and it also looks like it has invaded my bladder. I am being sent to OHSU for a consult on…
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Confused about my options with Carcinosarcoma
I am a bit confused about my options. I was diagnosed 1a stage 3 aggression carcinosarcoma. within 2 weeks of diagnosis, I had a complete hysterectomy, lymphnodes removed, ovaries, everything gone. No cancer found anywhere but the uterine wall where there was a tumor (which I found odd that the CT scan never picked up, it…
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MRI RESULTS
In preparation for radiation to my two brain tumor sites, I had an MRI on Monday. My rad/onc nurse called yesterday to let me know that there are no changes showing from my CT Scan, no additional cell growth is noted and that results are what my Dr. wanted to see. On Monday, I go for the simulation to start 5 radiation…
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aromatase inhibitors
Can someone please give me some advice. I live in Austalia and have been reading the discussions on this site for the past couple of weeks and you all seem so knowledgeable about your diagnosis and treatments. I am feeling helpless and not sure what to do. I was diagnosed with grade 1 endometrial adenocarcinoma which had…
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whole abdomen radiation
I am an endometrial cancer patient, stage 3. I just had a consult with a radiation oncologist in Boston at Mass General. He recommended that I have whole abdomen radiation following my chemotherapy (carboplatin and taxol). Has anyone had whole abdomen radiation or have any information about it? Can you tell me what your…
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Officially NED! (after lung mets--"persistent" Stage IIIC2 endometrial cancer dx Jan 2011)
Yesterday I had my fifth CT scan. The second one, in September 2011, had the worst results: it showed several small lung nodules and several suspicious para-aortal lymph nodes. This was after six months of cisplatin and doxorubicin, and I was floored that the chemo hadn't worked. It was then that I started on Megace--and…
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Hippocrates Center program Florida
Dear Warriorettes, Hopefully Rad treatment over Tuesday next and we're scheduled to be on the ten hour direct flight to NY. My sister's youngest is marrying on the Fourth. Just heard a lecture on Hippocrates Center in Florida. What have you guys head about it. Did any of you go? Raw food, wheat grass mind body, expensive,…
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Lump on my inner thigh
Hi, I must finished my Chemo and Radiation. Interal in May I was Stage 1A. This morning I noticed a small lump on my back inner thigh,, I totally freaked out. Called my doctor got a apt tomorrow. Has anyone here experienced this. It's hard and a little larger than a pea. I examine my body daily so I didn't notice this When…
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A wonderful day to all!
To all my "sisters" have a great day and a wonderful start to the new week. I have a family bridal shower today and I am so looking forward to seeing cousins I was so close too and haven't seen in years. Cancer has given me new persepectives in having connections to those you love. Hugs to all, Pat
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Anyone have any experience on Femara (letrozole)?
Hi Ladies The ugly beast has raised it's head again and my latest CT/PET scan indicates that I have got my third recurrence. It's still confined to the pelvis (no organ or lymph node involvement by the looks of it), but my team reckon it is too close to sidewall to operate and get clear margins (although my scans are going…
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Probably a dumb question, but......
Ok, I have UPSC(1a,c). I was told I have a good chance to not reoccur and if it has been five years I am considered "cured". I was also told that if I do reoccur it will be considered "incurable" just treatable. Is this correct? Aren't there too many variables, such as where, how much,personal condition,ect? Best, debrajo
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Confused about CA125
I'm really confused as to if the CA125 was a good marker for my Mom. She's always had low numbers, prior to her surgery it was 9, and after each chemo is was either 6,5,or 4. This last one was 3. So after reading some of your posts, I'm just wondering was this test a good marker for her because her numbers didn't change…
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still kicking stage 4 b endometrial cancer part 2
just thought Id peek in and see how everyone is doing, praying for all just got back from the doc and was told cancer free , this is 3 years now, so wish I could go tell my first doc off, as he told me I would be dead in 1 to 2 years ! love the doc I have now, so positive, which is what everyone needs! if your doc is being…
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Does this happen to anyone else?
It's the middle of the night and I just raked up enough courage to ask this. Does anyone else have a severe aversion to intimacy..of any kind? I find that being touched by anyone, anywhere, is absolutely repulsive to me. The very thought of having sex or a routine check-up makes me sick to my stomach. Even a hug from one…
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Endometroid Adenocarcinoma
Hi, my name is elaine I was just diagnose with Endometroid Adenocarcinoma is there anyone whas been diagnose with this cancer? And choose not to have a hesterectormy...
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Only 5 Chemo Treatments???
Today Mom went in to have her sixth and final chemo treatment, but when we told her dr about how she almost passed out last night after taking a bath. I don't know whether she got overheated, low hemoglobin or what, but her dr said we should just stop at 5. My Mom does have multiple health problems such as chronic kidney…
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Had last chemo for this round
Had a CAT scan last week which showed significant reduction in all of the enlarged lymph nodes. It did not address the blood clots in the lungs though. The doctor said it takes a special test to show the blood clots. It was just an accident that the caught the blood clot on the other CAT scan. My marker went from 81.2 to…
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To have or not to have brachytheraphy
Hello everyone! I've been visiting this site for a while and finally decided to join. You ladies have really helped me a lot. My Mom was diagnosed with UPSC, stage 1A back in December and is finishing her last treatment on Friday, thank God! Our concern is the next step, which her oncologist wants to be brachytheraphy. We…
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Thankfulness
I could not possibly ask for more... I am so incredibly thankful. Even if this time here is short, there is no doubt it will be sweet. Love you all, Rachelle
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WHERE IS MAGGIE WILSON?
I was too busy to post, since my daughter is fighting Leukemia. But I read all the time. I also keep every one in my prayers. But it's a long time I haven't seen anything from Maggie. May God bless all of you and give you peace and endurance to manage and fight this horrible disease. Love to all of you. June
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UPSC Survivors---I need your help.
My mom was recently diagnosed with UPSC. She goes in for her hysterectomy etc on the 26th of June. I'm sure you all know already but the reading I've been doing online about UPSC is pretty grim. What I would like to know from those who have been fighting this disease, what has been successful for you in your treatment. Did…
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Choices or false belief of a control freak...
Ok the Data is in from last week's ct pet. 1- new super clavicular lymph node 1.5 cm lower neck up close and personal to tracea . 2- mid, behind abdominal wall, 2cm mass 3-left retro peritoneal 2cm node, near aortic projection near Gastro I think. Blood tests and ca markers just fine! Choices: 1-do nothing, which can be…
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The intergrative Doctor...again!
Lab's just in: Besides taking me off all supplements(Cur cumin, Pepper, Black Raspberries,ect) he has now taken me off ALL B-vitamins, Folic Acid, Iron,and my regular multivitamin, and has me on D-3 only. Maybe it's me, but fatigue has hit me like a brick wall! Said the T-3 thyroid was normal but the other TH(something, I…
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how many of you are peri-menopausel?
I am a breast cancer survivor, and am currently taking tamoxifen which although small increases our risk of Uterine cancer. On another forum someone posted about an article by the director of MO of an SF Bay Area cancer center: If a patient is premenopausal and continues to menstruate on tamoxifen, which happens quite…
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The Board
Somebody said to me yesterday, what I am going through is not fair and I don't deserve it. My response was none of us, any of the children, NOBODY deserves this....and, I DO NOT walk this road alone. I walk along side all you, following those who have come before us and, hopefully, adding some comfort to those that follow.…
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Curious
I read the posts and find that most of you have several CAT/Pet/ MRI'S. Except for right before surgery when I had an MRI, I have never had another scan of any kind. Is this normal? I have the CA125, Pap, internal check, but that's it. Even on my first year anniversary and the second year....just wondering? Best debrajo
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Advice for sister with uterine cancer mets lung and abdomen
Hi I've been reading many posts on this site since my sister was diagnosed 6 weeks ago. You are all certainly an inspiration. I wish all the very best and continued good health. I am concerned about my sister diagnosis and prognosis the more I read on many levels. My sister is 45 yrs old, prior to this in reasonable…
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update
daughter home after having her radical hysterectomy endometrial uterine cancer May 24. Doctor is sure he removed it all and the good news is the stomach tumor that showed in the MRI was not a tumor but a shadow from the enlarged uterus! Tissue samples have been sent and may get that result the end of this week. The lung…
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New DX
Hi...this is my first post..I began having light spotting mid march, after 9 years of menopause. Had a biopsy on the 23rd of May (i work for the Dr, so i didn't have to wait, but I did a bit,to get a pre-planned trip taken.. then had a full physical) and on the 29th got the results of positive for endometrial…