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Effectiveness of LID
Hi gals and guys, After three days of my LID, I'm thinking it would probably be a good idea to do a spot urine iodine test just before I start the RAI treatment to make sure I'm able to lower my iodine levels enough. As far as I can tell from looking at my RAI treatment schedule, I don't have one scheduled. I say this,…
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no oncologist
Has anyone heard of not having an oncologist after getting a cancer diagnoses? I had a right thyroidectomy in February with a diagnoses of Hurthle cell carcinoma. I am having the left side and lymph nodes removed April 6th and I have not seen an oncologist yet. Is this normal?
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Very frustrated with my endocrinologist and staff
As I have ranted before they have never had me do the LID diet and still aren't requesting that I do, however I am taking it upon myself to do that. I had to reschedule my scan and this time she set me up with Mon. Tues and Wed. thyrogen injections, bloodwork Thursday and scan on Friday. The previous appointment, she had…
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I am new need advice
I was just diagnosed with nodules follicular lesions with hurtle cells ...i have a paralyzed vocal cord on my left side but most of the nodules are on the right side...said if they removed the thyroid and damage my other vocal cord when they remove the thyroid i would have to wear a trach the rest of my life...has this…
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Thyrogen
I had my first thyrogen injection this morning and all is well so far. So... in tomorrow for the second injection, scan dose of radiation on Wednesday and then in Friday for the scan. This will determine the action plan. More radiation or surgery and radiation again... is there really one that is better than the other? :-/…
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Careless Measures Re: RAI
It has come to my attention that some doctors are not warning or informing people in the US about the importance of isolation after RAI. This leads me to believe that some people are not careful because they are not told when it comes to protecting others from the radiation. Is this why the cases of Thyroid cancer is…
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Blood Work
I had my Thyroid removed and Radiation 4 months ago. My endo had her nurse draw blood for a baseline reading. When I asked the nurse what test were being done (as she drew 4 or 5 vials of blood) she told me my Thyroid levels, calcium levels, and then said "to see if the cancer has come back". She said they would have the…
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Newbie in need of support
Hi everyone, I hope it's ok to be posting here as I don't yet have a diagnosis of cancer, but I've benn reading the boards for a few days now and have been so reassured by all the in formation and support offered here. After feeling a large lump on my Thyroid last December and having many ultrasounds, 2 biopsies and seeing…
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Unexplained weight loss
I had a TT in the summer of 2009. I underwent RAI this past October, 2010 in the hospital. I am currently taking levothyroxine 224mcg. My TSH is 0.3, my endo says it's right where it should be. Since last year, I have currently lost 28 lbs. I'm not complaining about the weight loss, just surprised since I was told I would…
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fatigue and synthroid dosage
Hello everyone, I am currently undergoing treatment for papillary thyroid cancer that has spread to the lymph nodes in my neck. My synthroid dose is 150 mcg (I am a 22 yo female and weight about 125 lbs). I am 2 1/2 mo post TT and still feel very tired all the time. its starting to worry me, as I haven't even gone hypo for…
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realization that I have cancer
I didn't start researching anything until my cousin was diagnosed with thyroid cancer. I have had a rare hurthle cell cancer since 2005. Her Drs treatments were different than mine. Her Dr. is in Houston Texas and mine in South Carolina. My Dr. never did bloodwork before or after my scans. She never mentioned a low iodine…
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Here we go again!
Just had an US of the neck. Palpable nodes are suspicious only five weeks after RAI. Looks like I will be having my fourth surgery if the FNA comes back positive again. This damn cancer is relentless! Julie-SunnyAZ
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PET scan
Hi, all. I had a PET scan last week, and I found out yesterday that it showed abnormalities in my C4 & C5 area, left neck, upper chest, nasal area, and liver. I am going in for CT scans next week. I have 2 lymph nodes in the left side of my neck that a biopsy showed to be cancerous and am in the process of scheduling…
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Whole body scan results?
Well, it's been a while since I have posted. It's been 4 months since I had my TT and there hasn't been much going on. I am seeing a new endo that I really like and a new radiation oncologist that I also really like. I had my whole body scan last Friday and got the results on monday. Doctor said that there is a suspicous…
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Low Iodine Diet
Hey y'all. I have read about this diet and have the No/Yes list. I am starting this diet this coming Monday. I know a lot of you guys have done this or are doing it. I would love to have actual suggestions for breakfast, lunch and dinner because this seems the hardest for me to figure out ... Thanks in advance.
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9 1/2 years post thyroidectomy and thyroglobulin levels going from .6 to 1.0
My Dr. would like to run a full body scan based on the recent increase in otherwise fairly stable tg levels between .2 and .6 for many years. Is there anyone who is this far out from diagnosis that can share their experiences in tg levels changing?
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Meds you can take after thyroid problems
With the pollen and allergy season arriving, I'm just curious about the sinus/allergy medications you can take. I was told not to take anything that says in the very fine print not to take if you have have thyroid problems, so I was wondering how these meds affected the majority with thyroid issues and what to take.
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radiation causing leukemia
Has anyone ever heard of someone having throat cancer and getting leukemia from having radiation? Just posting this question as someone I know said this happen to a friend and I haven't heard of that being a side effect......
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Thyroglobulin After Surgery
Does anyone know how fast your thyroglobulin levels are supposed to drop after lymph node surgery? I had surgery on december 21 to remove lymphnodes and a blood test on February 21 and my results said my levels were at 14 and the antibodies were under 20. My doctor wants me to have RAI again but I'm waiting to hear back…
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Next phase .... RA Treatment
Well it has been awhile since I have posted anything. I had my TT on 2/7/11 and doing okay (anxiety, fatigue, emotional brakdowns).... Currently about 1 month into taking Levothroxine (125mcg). I had my consult today with the Radiologist and will be having the RA treatment soon....... LI Diet start 3/21 4/11 Thyrogen shot…
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Help, is it Cancer?
Hi, I have been coming to this site for support for my mom's recent non-hodgekin's lymphoma diagnosis (past 6 months). We now discovered my dad has a thyroid mass. So I find myself back here for possibly my dad now. Here is the run-down: My dad who is 79 years old had some bumps on both arms and one on his right upper…
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Daily Replacement Hormone?
Hey i was wondering what your doctors have you taking for your replacement hormone every morning? Ive been on 400 mcg for four or five years and before was around 200 with my blood tests coming back saying i needed more but my first doctor was very slow to increase it.
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Breathing Problems & Sutent
My wife (34 yrs old) was diagnosed with Thyroid Cancer in June 2010. Had a TT and removed 60ish lymph nodes from neck with 50% being cancerous. During the pre-treatment for RAI they found micro-nodules are throughout her lungs. Were told not to worry because there were a lot of small particles and that a high dose of RAI…
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Can anyone share experience with papillary carcinoma in "hot" nodule
Hi, I am newly diagnosed, and so scared that this cancer has spread through my body. And it seems like it will be FOREVER before I have any answers. One question that I have is because the hot nodule is functioning in some way, it is more likely to have blood flowing through it and thus moving cancer cells? I know that is…
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breast cancer and thyroid
Does anyone think that it is weird that I am a breast cancer patient, and an ultrasound of my thyroid showed 2 nodules, and then one more on the next test? And no biopsy? Just repeat ultrasound in 6 months?
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Thyrogen
Hello all, I have brought this up before, but my Dr. keeps insisting that I do not need to go on a low iodine diet but that I do need to stop my synthroid before my thyrogen scan. Everything that I have read says the opposite of what she is telling me. Everytime before my other scans I had been on the atkins diet which…
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Battling Thyroid Nodules
Hi everyone. I am new to this site, so please be patient. In November, 2009 I was diagnosed with multi nodular thyroid by ultrasound. Had an FNA - benign. Repeat six months ultra sound, nodule grew somewhat, repeat FNA nodule - benign. Recently in February had another ultrasound, showed nodule had grown significantly. Dr.…
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Going to snap!
I had my TT done Nov 1, 2010. My RAI done in Jan 2011 and now they are decreasing my synthroid from 250 mcg to 225 mcg. I am finding out that I am super sensitive to the thyroid drugs. I had a reaction to the generic med- skin peeling off in sheets, hives everywhere, hair falling out in clumps.... started taking the brand…
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early on in the process...
Hi, I am a 22 yo female recently diagnosed with metastatic papillary carcinoma. I has a TT and lymph node dissection at the beginning of january (two incisions), and 17 of the 20 lymph nodes they removed tested positive for tumor. The tumor on my thyroid was pretty small and not really palpable. My PCP discovered this…
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Still totally exhausted 3 months after total thyroidectomy
I had a total thyroidectomy 3 months ago and I am still feel quite exhausted! I was told by the surgeon that my thyroid was wrapped around my wind pipe and my esophagus, and that cancer cell had been found. The surgery went well, and the pain was tolerable, not a big issue. The problems that I am having at the moment are,…