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prepairing for RI treatment
this is my first post here so I will give my background Summary so far I was diagnosed with a large thyroid mass Dec 2009 Bremerton Naval Hospital in Jan 2010 they determined the mass was follicular cells but could not determine by fine needle aspiration if it was cancerous or not but since it was making it hard to breath…
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TT surgery site
I had a TT on April 12(2 weeks ago) due to papillary carcinoma. I didn't have to have any glands removed so it was just a standard TT. I was curious about how long it took for other peoples surgery site to heal. My incision looks good but it is still quite swollen(about the size of an egg), and it is also hard to the…
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Stopped taking thyroid medication and......
Had total thyroidectomy last November due to Hurthle Cells Ardinicoma (non-cancerous) along with two suspicious lymph nodes. Since I took Lex 137 MG, my body gradually went crazy with unexplainable symptoms (heavy leg, constantly tired/sleepy, quick weight gains). So three days ago I decided to quit taking the meds and…
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Tomorrow is the day!!
Having all kinds of emotions.....want to have it over, scared and terrified at the same time! It's the date of my first test shot for RI. Please pray that these Hurthle cells are not iodine resistant and are really hungry for the iodine and that this works! Wed is the body scan, Thursday is the full shot, and May 6'th is…
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Question about muscle and joint pain
Hi, I am new to this discussion board. I recently had a TT on April 12 for papillary carcinoma cancer. When I left the hospital the next day my calcium levels were good. My Dr. told me that if I got bad muscle cramping to go to the ER. The first night home, in the middle of the night, my fiance had to bring me to the ER…
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The Fight Continues
I was diagnosed with Hurthle cell back in 2000 it started in my right thyroid which was then removed. In 2008 it reappeared this time attached to my voice box, i then had a vertical resection of my voice box and they removed the right half of the voice box, so my voice is not good but still there. A month later i then had…
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Voice changes?
I had my thyroid removed on the 12 of Feb 2010 for Pap cancer. I dont know if I have to have RAI yet my doctor is going to do a scan in six months. I have one problem but I dont know if it is connected or not. As the day goes on my voice cracks like I have a bad cold but I dont. It comes and goes I can be have a…
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Hurthle cell surgery questions
Hi everyone, I have been found to have a Hurthle cell lesion based on FNA and am being suggested to go for lobectomy to check for cancer. I have been told that my 1.5 cm nodule is most likely due to my newly diagnosed Hashimoto's thyroiditis, but since cancer can't be ruled out, to do the surgery. I have done substantial…
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thyrogen 14...body scan negative...dr says to come back in 4 months and insurance coverage
I heard from my doctor about my body scan being negative w/Tg being at 14. He said to come back in 4 months after having blood work done at that time. (Did not order PET/CT) I am setting up an appt. w/an oncologist w/Illinois Cancer Care to get a second opinion. I am eager to hear what he has to say. The problem is that he…
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Liquid radiation treatment
My daughter is 12 years old and diagnoised with papillary carcinoma when she had her radiation treatment she was given liquid, I see alot of people on this blog were given pills. Does anyone know is there a difference?
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Driving while on LID and during RI treatments
I am getting my first RI treatment. Went off meds on Wednesday, and went on LID on Wednesday as well. My first test shot is on 4/26. My questions is are you able to drive to this or not??? I also have jobs scheduled and I'm not sure whether to cancel them or not?? What did everyone do about working??? Can anyone tell me…
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Thyrogen Injections
I am going to get the thyrogen injections next monday and tuesday. I am a little nervous to find out what the results will be, because I have been having very painful salivary glands. It comes and goes with very bad swelling, and i usually don't eat when they are like this. They also are very painful on one side…
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Should family members and children be tested
I was diagnosed with Hurthle Cell Cancer of the Thyroid at 49 years old. My brother had a benign nodule removed last year, and I was told by my PCP that thyroid nodules often run in families. Has anyone been told if their family members should be checked with an ultrasound (mine was pretty much found by accident...no…
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TT Surgery Postponed - Hurthle Cell Neoplasm
Hi All, I was all set for my surgery tomorrow and then became ill Friday, the day after my complete all-day pre-op appointment. I have an elevated red and white blood count and some other CBC abnormalities, diarrhea (now resolved) and upper abdominal pain. My GP ordered a stat ultrasound and now per that report, I might…
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Question for those who did RAI anad Thyrogen
Hello, I am going to undergo RAI soon just waiting for my Thyrogen shots to come in. After I take the shots, what happens? Do I just go in 3 days later for the RAI? Plus I have 22 month old twins as well as 10 year old twins at home. I have told my doc I prefer to do the RAi in the hospital...he said since the radiology…
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What do i say to my daughter?
We just found out that our daughter has thyroid cancer. She had one lobe of her thyroid removed two weeks ago and the pathologist report came in today that she has a micro invasive follicular cancer. In another two weeks she is scheduled to have the rest of her thyroid removed. She is only 26. What can I tell her that will…
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Recurrent papillary cancer possibly due to insufficient dose of RAI-131 for ablation?
Hi, Glad to find a site and discussion board like this... I'm new on this site so please bear with me. I'm 36 yrs old, diagnosed with a nodule (abt 1.8cm) suspected of malignancy 2yrs ago. I had neartotal thyroidectomy same year, and the nodule was found positive of papillary CA. About 2 months after, I had I-131 RAI…
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My Tg is 14...body scan came back negative...now what
I posted some stuff last week about my Tg being elevated to a 14 from always being 0.2 1 1/2 years after TT and lymph node removal for papillary cancer. My body scan and uptake scan on neck came back negative. My doctor is out of town all week and have to wait until next week to see if he wants to do anything else. I put a…