Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines.
Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide.
Other areas of CSN are restricted to members only and cannot be found by search engines.
Rare and Other Cancers
Archives for September 2015
Discussion List
Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Any Adrenal Cortical Carcinoma Survivors, please share your story!
My husband (32 years old) was diagnosed in July with Stage 3 Adrenal Cortical Carcinoma after having surgery to remove a 14 cm mass. The surgery was performed by a well-renowed local endocrine surgeon, but after finding out that it was indeed cancerous, we made the decision to seek medical help at MD Anderson in Houston. A…
mmmt of ovary stage 3c any survivors ?
My mother 51 years of age diagnosed with mmmt of ovary stage 3c very rare cancer. Got optimally debulked 3 weeks back. We will b meeting an oncologist tomorrow and we are hell scared any survivors? Please help we are looking for hope
Surgical Recommendations for Advanced Gallbladder (GBC) Stage IV
Hi, everyone. I am helping to find a surgeon for a dear friend diagnosed with Stage IV GBC (Gallbladder cancer) in November, 2014. She did well on Gemzar/Cisplatin but when it quit working, opted for genetic testing through Perthera (using Caris and FoundationOne labs) to see if she had HER2 expression, which has recently…
Just a celebration of life
Today marks 7 years since my Whipple surgery for stage 3 pancreatic cancer! I posted this not to brag, but, to let folks know there is always a chance to beat the odds and to never just give up! Wishing everyone a BLESSED DAY!
Urethral Cancer
Hi Everyone, Has anybody else ever had urethral cancer? I had been going to my doctor for about two years complaining of blood in my urine and pain. He said it was my prostate and treated it as such. The symptoms got worse and after many months of medications he sent me to a urologist. The urologist was not happy when he…
appendix caner
My husband was just diagnosed with mucinous adenocarcinoma with appendix primary. After researching it we think the debulking surgery and HIPEC are his best option. Just wondering where some of you had it done and if you can give me any information. We live in Illinois but are willing to travel to find the best.