Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines.
Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide.
Other areas of CSN are restricted to members only and cannot be found by search engines.
Rare and Other Cancers
Archives for January 2014
Discussion List
Chemoembolization of liver mets in carcinoid
My husband is having chemoembolization of his liver mets due to his carcinoid. He recently has been having right sided abdominal pain. The CT scan showed a slight enlargement of one of the liver mets. They think the enlargement is due to bleeding of the met. What can we expect in terms of the procedure and aftercare? Is…
Pancreatic cancer which involves the Superior Mesenteric Vein
My husand has been told he has pancreatic cancer on Nov 1, 2013. The tumor involves the Superior Mesenteric Vein. He has been through 4 rounds of Chemo and is on a clinical trial with fluorouracil [5-FU], leucovorin, irinotecan and oxaliplatin. Mass Gen Hospital would like him to start 4 more rounds. If the vien was not…
CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
Pancreatic cancer in 23 year old
Hi My cousin has complained of back pain and the such for a few months now. They assumed it was gastric so gave her a bunch of PPIs, but it wasn't going away. I assumed it was H.Pylori. After multiple tests, they have found masses in her pancreas. They have just done a biopsy and said that they need to do more tests as…
haelan 951 ?
Hi there..Unfortunately my mother has just been diagnosed with pancreatic cancer, she has been told she has 10 months with out chemotherapy to live, but with the chemotherapy they can extend her life by 3 months !,we are looking at everything & everywhere for some sort of answer. ?.. So much information to take in , but…
Gallbladder Cancer - 2014 (Any Stage)
Here is a new forum topic for all stages of gallbladder cancer for 2014. Lily50’s great idea to consolidate GBC discussions should continue. GBC is, sadly, just one of countless “Rare and Other Cancers” on this discussion board. It is tough to keep up with the posts when there are different threads going on. By way of…
Leiomyosarcoma
I am a survivor of lieomysarcoma which is a 1 in 4 million probability. I saw a posting of someone who shares this cancer and would like to talk more. Ironically, there was another lady in my small town that is surviving this same cancer. Is this coincedence, is the diagnosis occurring more frequently, is this type of…
ocular melanoma
Almost3 years ago I was diagnosed with ocular melanoma. I was good about 2 yrs straight for going to my check ups but the last year I haven't gone and am having some simular symptoms again. Does anyone know where I can find information on statistics after being diagnosed ex. Chances of it spreading and what to look for?