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Rare and Other Cancers

Archives for November 2011

myelofibrosis
my dad was diagnosed a year ago with myelofibrosis, now his doctor advised him to have his spleen remove. He is 65 yrs old, I'm afraid that the surgery is too risky for him due to his age. I've read some articles about disadvantage of spleen removal which is mainly the risk of infections. anybody's opinion is much…
radiation for pancreatic cancer
Husband has pancreatic locally advanced stage 3, non-resectable (at this point). Considering radiation after we finish Fulfironox for 12 weeks. Has anyone done radiation after Fulfironox? And, if not, what have you done?
Spindle cell carcinoma
Hi everyone, I am new on this board. Diagnosed in April 2011 with a large tumor in my L3 vertebrae, and tumors in my lung. It took more than a week to get the pathology report at City of Hope after two biopsies, one on my spine and one in my lung. They are calling it spindle cell carcinoma, although they admit whatever I…
pancreatic cancer that has spread to the lungs
My husband has pancreatic cancer that had already spread to his lungs. Lots of different chemo's and treatments. Doctor now wants him to go into a Clinical Trial. Is anyone else going through this? I have questions....
Looking for information on Small Cell Neuroendocrine Carcinoma of Esophagus with METs to Liver
Hi, I just joined this group in the hopes of finding out some information that will help me understand what my family is about to endure. On October 10 my 66 yr old mother in law had an endoscopy becuase of a gastro pain...they thought she had reflux. (She has a terrible pain in her chest that she felt starting in the…
neuroendocrine/carcinoid
Hello, I recently was diganosed with a carcinoid tumor in my face. It went from my lung to my faced. The area where I live is totally incompetent they played with my life since Feb this year. Then I went to FoxChase Ctr in Phila they did the same thing. I just found this site and I'm tryhing to find out where I can find a…
pheochromocytoma
Anybody here been diagnosed or even hear of Pheochromocytoma? I have tried other sites for support and info for years, and been shot down. Sometimes I think they don't believe me!! Am a 22 year survivor, at least that was the date of diagnosis. Now a tumor in left kidney apparently unrelated to the pheo, and I only have…
gallbladder cancer stage 4
HI, My name is Evelyne, I was diagnosed with cancer back in August. After what seemed like an eternity of waiting to hear what type of cancer I had and a lot of tests, I was finally told in September that I had gallbladder cancer stage 4 and only had 6 to 9 months to live. I was offered an aggressive type of chemo…
financial support
Does anyone know of any organizations that could help me financially while going through treatments? I am a single mom.
Intravascular B Cell Lymphoma
I was wondering if anyone has any experience with Intravascular B Cell Lymphoma? My Dad was recently diagnosed with this very rare, aggressive sub-type of NHL. Apparently it's so rare that it is usually found post-mortem so we are so grateful for the doctors who didn't give up until they found out what was really going on.…
Mucoeprdernoid carcinoma
is there anyone out there with this? My family ,my wife is my support she is fantastic. I found out last week my employer walmart is trminating me because i have cancer and can't go back for full duty, i was released for light duty but thats not good enough for them. I will loose my insurance for my wife and myyself , they…

Rare and Other Cancers

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