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Rare and Other Cancers

Archives for August 2011

PRRT for carcinoids
Have just been diagnosed with @ least 1 carcinoid tumor 2x3 on the liver with other lesions showing on the liver. Enlarged lymph nodes. So far they have not found the primary tumor. Have an Octreoscan scheduled with the VA in November. I have read about PRRT with Lu-177 treatments in Germany & I understand they have them…
Palliative Treatment Question
Hi all, I just found this discussion board today! We are new to GB cancer; my Mom is 85 and was diagnosed in mid-April with Stage 4. It has invaded the liver and some local lymph nodes. She had 7 infusions of Gemzar since June to no avail. The CT scan on July 23 showed the tumor had grown about 1-inch all around. The good…
Stage IV 4 months post surgery
Well, it has been 4 months since my surgery. I am doing very well. I have lost overall around 60lbs. Weighing 207 right now. Just had PET scan July 29th. NED...THANK YOU GOD!!! Doctor's say I am looking very good.i will have scans every three months for about the next two years. I start back to work tomorrow. Just for an…
Esthesioneuroblastoma
Has anyone with this type of cancer been treated @ Loma Linda Medical Center in Loma Linda, CA?
Issels treatment
Hello I would like to post my opinion if anyone is looking for an alternative treatment and is considering the issels treatment. My mother was had endstage gallbladder cancer and she was giving only 6 months to live and was in the hospice program. I was not ready to except that there's no other ways to save her and just…
High Chromogranin A (ECL) Blood Test
I had a blood test and it is called Chromogranin A (ECL) test. The results is 433 according to my primary care doctor she said it is elevated. I have an appointment coming up for to see a gastroenerologist but not for two weeks to explain what it is. Can anyone tell me what it could be? I check the internet and I just want…
Question about Pancreatic Cancer
I am a 55 year old male in very good physical condition. I was diagnosed with Pancreatic cancer after having some abdominal pain for a couple of weeks. I am in stage 1. I am in my final week of both radiation and 5fu therapy. My hope is to get to M.D. Anderson and have the tumor removed. My question is should i go ahead…
Questions for You...
Hi, I'm from the Breast Cancer forum. My husband's uncle was diagnosed last month with Stage 4 Cancer of Unknown Primary. The cancer was detected in the lymph nodes in his neck. His entire lymphatic system is infiltrated with cancer. He is beginning chemo next week, but has been made to understand it is only palliative at…
GIST and Neuroendocrine Carcinoid
Hello! I found out yesterday that I have a GIST (gastro intestinal stromal tumor) attached to my stomach and a neuroendocrine carcinoid on my duodenum, Both are very rare types of cancer and my doctor said it is “very unique” to have both of them. It took awhile to get the final diagnosis (my doctors got a second opinion…
Spots on lungs after treatment for Pancreatic Cancer
Finished Treatment three weeks ago and had a CT Scan last week. This is coming from my general doctor, the results show that the pancreas, liver and stomach are all fine, but they found several small spots on both of my lungs. The previous CT prior to starting treatment showed several small spots of indeterminate size (…
Pancreatic Cancer - types of adjuvant chemo
My husband had a Whipple for pancreatic cancer in May and has lost alot of weight before and since then. Surgeons think they got all the cancer they could see (but who knows with adrenocarcinoma). He tried one chemo week (Gemzar) and it kicked his butt (fatigue, nausea, no vomiting) so he is not doing that again. What…

Rare and Other Cancers

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