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Rare and Other Cancers

Archives for March 2004

Cancer of small intestine
Cannot find anyone in the UK who has this type of cancer, sometimes called small bowel or cancer of duodenum, can anyone help, my brother has this type of cancer .
Functional Biomarker For Cancer Treatment
Using a cell culture assay (in vitro apoptosis) for choosing cancer drugs is no different than a marker like estrogen receptor or CD20 or a gene expression pattern. They are all markers. One is a structural marker, the other is a functional marker. A cell culture assay is a "functional" biomarker. A functional biomarker…
Looking for support....
Hi, I saw this commercial and segment last week on the Sharon Osbourne show and thought I would come find out and see what is here. I'm 27 and come from a loving family, but sometimes its hard to show all my feelings because I know they are dealing with things too in their own way. My Mom has pancreatic cancer and is 51…
Liposarcoma and Chemo
I'm on my third recurrence of liposarcoma. the first in 1997 was removed surgically as was the second. I've had one round of chemo and radiaion. I now have another tumor, plus lots of little ones. I understand the success rate for standard treatments is 35% (Ifosmide and dixiorubicin). The second round, as perscribed by MD…
Neuroendricine Carcinoma
Hi! I am a 33 year old female that was diagnosed with a moderatly differentiated malignant endrocine tumor in the head of the pancreas, shortly after the birth of my daughter in 2003. It was removed in sept.2003 after undergoing a modified whipple opperation. Its been 6 months since surgery and I am feeling good. The only…
sinus/nasal carcinoma
In October 1999, in attempt in treat my "unresponsive sinus infection", my doctor sent me to see a local ENT doc. One look in my nose and he turned to his nurse and said -This patient is an office priority, have an immediate CAT scan and biopsy! Having been in excellent health as long as I can remember, I'm now 68, you can…
I could use some support
My step-dad was diagnosed about 5 weeks ago and after 2 weeks of tests and meetings at M D Anderson in Houston they had decided that whipple surgery was not an option and to send him back to Dallas for Chemo. He was given 2-6mo w/o treatment. 2 years tops if he does treatment... I am kinda freakin out!! He is going to…
Unknown cancer
My Mom was diagnosed Oct 2003 with cancer. They originally found a growth in her bone above her knee. They removed the growth and advised us that it did not have the charactaristics of cancer. However, they sent the piece of bone and tumor to the Mayo Clinic. The said they thought it was cancer but not bone cancer. Her…
Clinical trials and hospice
My dad, age 80, was diagnosed with Stage IV pancreatic cancer two months ago. Since his diagnosis I've been frustrated with the lack of coordinated health care management of his life limiting disease. No doctor wants to discuss anything other than the immediate issue, whether that be a particular test or medication or pain…
Paraganglinoma (Abdomen)
My friend (age 47) has been diagnosed with Maglinant Paraganglinoma. The doctors don't want to do anything but continue to remove the tumors. She would just like contact with someone esle with this form of cancer. We are trying to get her into the Anderson Center in Texas. She had her first tumor over 20 years ago.
Side affects of Whipple Procedure
A year and a half ago my friend was diagnosed with pancreatic cancer. Soon after that she was underwent the Whipple procedure. During the past year she has lost a total of 50 pounds. She has been able to gain 12 pounds of it back. However, the more time that passes the harder it is for her to keep down food, or to even…
Islet cell tumor / neuroendricine tumor
Is there anyone out there who has had a whipple operation to remove an islet cell tumor of the pancreas?
Islet cell tumor / neuroendricine tumor
Hi! I am a 33 year old female who was diagnosed with an islet cell tumor of the pancreas a few months after I had my baby last year. In september i underwent a whipple operation and i an feeling great again. The other day i went in for a CT scan as a part of my 6 month check up and they found that some of the lymph nodes…
New - Need Advice
I have been viewing this board for some time as I have undergone tests for PC. I am 40, single mom of 3. About 3 weeks ago I went to Urgent Care with backache, upper ab pain. Cscan revealed possible Pan mass or Volume Averaging and I was urged to follow up. I have since had an MCRP (MRI), Sectioned Cscan, and some sort of…
Cutting into cancer
I have a theory that once they cut into cancer that is advanced it will spread whatever you do I would never have surgery again and certainl;y not radio or chemo its awfultreatment and kills more than it cures although i am sure lots woill disagree with me

Rare and Other Cancers

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