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Proton Therapy
I had my prostate removed in March 2016 after finding 11 of 12 biopsy hits cancerous. My PSA was 17. Gleason score was an 8. Cancer was found in one lymph node. I had no radiation and was placed on Lupron injections. My PSA stayed at 0.02 for 6 months and then increased to 0.04 in February. Cat scans were negative but bone…
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Provenge
Has anyone with advanced prostate cancer had the Provenge treatment, and if so, what were the results? I had my prostate removed in March 2016 after finding 11 of 12 biopsy hits cancerous. My PSA was 17. Gleason score was an 8. Cancer was found in one lymph node. I had no radiation and was placed on Lupron injections. My…
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PSA trending up What should I do?
I a 70 year old guy who PSA is trending up. 6.1 in February. My GP recommend I see a Urologist. Yesterday he said I had a "firmness" on one side. He recommended a biopsy. Do I really need to do that? I do not have frequent need to pee, never have to get up at night. I don't belive the prostrate is enlarged..atleast no one…
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Question about catheter use?
My neighbor had a foley catheter for 32 days. It was removed five days ago. His ability to urinate has declined each day. He is up and going every few minutes and has to strain in order to produce anything. His prostate is quite large with a large tumor on one side. I'm thinking that his ability will continue to decline.…
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LUPRON and effects doctors don,t know about...POWERFUL MED''''Talk 2 me if u like....
this drug surprises me every day I am 6 weeks into a 3 monther...wowow the hot flashes were a breeze...the migraines and my pressure of the charts while being on pressure meds for years....i am excited to know what will happen next...talk to me anytime...I hate being in the dark and will share whatever I know aand/or have…
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PSA Still high after radiation - should I be concerned/worried....
Prior to radiation therapy PSA was 4.9. 4 weeks after radiation 4.4.. I just got test results. I haven't discussed this wirh Dr. yet.. I am concerned.. shouldn't it have gone down much lower like 1... 3+4 2 cores 50% 2 cores 3+3 10% out of 12 cores
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Good news?
My neighbor is responding to the hormone and chemo. His PSA was down from 606 to 314 today. This is good news, correct? They are going to test it every month. Another question. I've done some reading in other threads and it seems that taking calcium may be contraindicated during treatment, but I'm uncertain of that. They…
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Should I be worried?
I just received a PSA of 2.3. It was .9 last year at this time. The doctor will take another one in 6 weeks. Should I be worried? I think my main reason for worry is the fear that it will rise again when I get it redone. I know 2.3 in itself is not alarming, but the fact that it rose from .9 is causing Anxiety, because I…
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Webmaster: what does this mean?
Nothing to do with prostates or cancer, but when I navigate to CSN forums I get the following message: Notice: Undefined property: stdClass::$new_replies in template_preprocess_forum_topic_list() (line 1205 of /mnt/resource/www/html/modules/forum/forum.module).
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More accurate Dx details
Hi all Got a standard cc: from the consultant to my GP which contained the specific details of the Dx. * Gleason 7 (4 + 3) * Adenocarcinoma * 40% of 4 cores, maximum length 6mm * Prostate 20cc * Classfication: Intermediate Anyone know if this sheds further light on my original information in terms of risk? Cheers C
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Erectile Dysfunction Success Stories
Everyone who posts on this, and other, forums seems pretty disappointed by the recovery of erectile function. I am five weeks post RRP and the surgeon (Patel) said useable erections would return in time. I am 43 and had good nerve sparing and he said they have gotten pretty good at predicting ED outcomes. I asked if that…
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Bulk Injection Therapy for male incontinence - Doctor referral in Florida + patient feedback from AU
Seeking: Recommendations for doctors who have performed bulking agent injection therapy on males to treat urinary incontinence. Feedback from diabetic Male patients who have undergone, penal implant / AUS operation. You don’t have to read the following, it’s just provided for (long form) context! My current urologist…
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Enact clinical trial for prostate cancer
Before I began radiation I was recommended todo the the Enact Clinical trial.. I signed up for it , but backed out due to some of the side effects like seizures even though it was a small posibility.. Is anybody doing the trial.. How are you doing with it?
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Lupron Results
Great news everyone. My cancer is now in the undetectable range. In February of this year, right after I learned that the cancer had metastasized to my spine and hips, I started on ADT therapy and received my first Lupron injection. At the time, my PSA was 6.6. Now it's less than 0.1 which to me is a stunning turn of…
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Good (for want of a better word) news
So we went in to see the consultant and senior consultant post my MRI scan. Got told it was "good news" in that there did not seem to be any mets as far as the scan could see and the overall scan looked good. I was told they did not see the need for a bone scan. I even had a good look at the MRI scan and stared down the…
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Rookie, looking for feedback
Hi All, what a great resource. First the stats----PSA Nov '16 5.17, Mar '17 7.98, April '17 8.32, Biopsy --Left Sec "A" (right side), 3mm, 13% of surface area of core biopsy, Gleason 6 (3+3), Sec "D" (next to "A", Atypical Small Acinar Proliferation) Follow up with Urologist April 17... As expected, I'm looking for advise…
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Need some advice-Update
Hi All: I just wanted to drop in and give an update w.r.t. my dad's situation and I could not find my previous thread, so started a new one. History: Back in March my dad got diagonised with a Gleason Score 4+5=9 PCa. He has taken 2 doses of Degarelix and has been on catheter ever since. Update: Two attempts to remove the…
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Incontinence
Finished CyberKnife Surgery for Prostate Cancer in January and bladder control seems to be getting worse. Have to go repeatedly and there is often leakage. Am taking .4mg of Tamsulosine (Flomax) which helps with actually going. But it's the lack of control that is bothering me. Received no helpful advice from radiologist…
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New to this
Hi all, Found out two weeks ago I got Prostate cancer... still coming to grips with it. All started about 7 years ago with a psa test as part of my annual doctor visit... test came back with an 8 so my GP sent me to urologist who did an in office biopsy (never again awake)... but nothing found. So they put me on…
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Radical Prostatectomy
Hello All, My husband has just had a radical Prostectomy. This all came on very suddenly. From the time he started to notice blood in his semen and urine, it was only a week later we were in the hospital. He has been out of the hospital for about 11 days. It was done robotically so his wounds are healing nicely. He has not…
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Dealing with erectile dysfunction
How soon after prostate cancer treatment can I be sexually active again? Now ED drugs don't help me. This is killing me.
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If radiation doesn't work after localized PC will they know right away with first psa test
Ok Still a little worried.. Even though they were predicting it is localized PSA 4.9 with two cores out of 12 being 3+4 @50% and 2 being 6 @5%. No MRI ...Finished Radiation 2 weeks ago. Still get sharp pains in prostate area every so often like needle being stuck in me.. I know worry never fixed anything.. But my question…
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Prolaris Score?
I just ran across this website: https://prolaris.com/prolaris-for-patients/what-is-prolaris/?gclid=CLPw07GQ7tMCFQQxaQodk9EH0g Has anyone else heard of this or had it done? It proclaims to help someone have a better understanding of the cancers progression which would lead to a more accurate estimate of the outlook for an…
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Trying to carry on with life during treatment discussions
Hi all So my review is next week and that starts the process of decided what I do. I know I need to make a decision but I also need to balance family needs and the pressure they are under. We have a holiday booked the last week of this month and we would like to have that as a possobly last "normal" holiday which will help…
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SSI Disability Benefits for Prostate Cancer This might be good info for some...
http://www.disability-benefits-help.org/disabling-conditions/prostate-cancer Sometimes it may be hard to make ends meet. This may help...
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Big Toe toenails turning black after radiation
I finished up 40 treatments of radiation last Wednesday.. Still getting pretty fatigued and around 4 pm I get spasms in my uretha. But This weekened I noticed the toenails on my big toes going black starting at the cutical and about half way up the nail on both toes.. Has this happenned to anybody else after radiation...…
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Testosterone Level When Fighting PCa
I'm looking at my previous blood test results from the Oncology Center and I don't see anything on the report that jumps out at me regarding my testosterone level. What should I be looking for? Do I specifically have to ask to have this value listed? What is a normal value and a low value?
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When a guy won't take care of himself?
Thanks to everyone who has helped with advice regarding my neighbors stage 4 metastatic prostate cancer. It's been so helpful and I need advice from other guys about helping him. He is not taking care of himself in many areas. He is an adult, I know I'm not his mom (acknowledging he is responsible for himself), he is very…
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Kaiser Surgeons - Los Angeles (WLA or Sunset)
Hello All, I am newly diagnosed with prostate cancer, April 26, 2017, and considering robotic assisted surgery as an option. I live in Los Angeles and I am a Kaiser member. Does anyone out there have any experience (good or bad ) with any surgeons at the WLA or Sunset facilities? Thank you. Ken
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Gleason upgrading post RP
Hi all So been reading more about RP as it looks like I am erring towards that (but still not sure) and found some stuff out about diagnostics. As with any diagnostic process there is a margin for error and it seems that there is a 40% chance that a Gleason score of 4 + 3 will be upgraded post RP. I also understand that…