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Imbruvica and NHL
I am hoping to meet others with Marginal NHL that is using Imbruvica. It can be a lonely walk. I began with Rituxin and Bendamustin but did not do well with Ritixin. Bad reactions. So I have been now using Ibruvica for 7 months. Doing well. Maintaining and a small amount of improvement.
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Lymphoma and COVID-19
I am just wondering if anyone on here has had complications in their lymphoma treatments (other than inconvenience) caused by the COVID-19 virus. So far I have been able to avoid it even though my neighbors and their four kids and my daughter and her husband and son have had it. All nine of these people tested positive but…
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BEAM or LACE for Autologous stem cell transplant
Hi, I am from india, aged 41 and diagnosed with Diffuse large Bcell lymphoma with double expressor in March 2019. Got R-CHOP x 6 cycles and radiation. In August 2019, PET scan shows no disease in the whole body. Now in June 2020, the disease relapsed and its stage IV. Now in treatment for it and already finished 2 cycles…
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What were your lymphoma symptoms?
I have nodular lymphocyte predominant HL, in a "stable" state... meaning it's not gone, but also not progressing all too quickly. For the past year, I have had symptoms that include random itching, especially in extremities and in and around my eyes (weird), fatigue, and just a general feeling of being unwell, which is…
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Waldenstrom's & Peripheral Neuropathy
My PN is in both legs and feet. I voluntarily gave up driving three years ago. I guess I am more fortunate than many others that have considerable pain with their PN. I can walk OK using a walker and have no pain. I am unseady on my feet without the walker.
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DVT during chemo for DLBCL
Placed on eliquis. Off chemo for 8 months - US shows DVT is gone. How long to anticoagulate?
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Just found out DLBC. Looking for tips.
Hello everyone. I found this site looking for information to prepare for our journey ahead. This week I just found out my mother was diagnosed with DLBC on the pancreas. We initially got the terrible news that there was a tumor on the pancreas which means game over. Spent 2 days sleepless thinking how it might be only a…
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Throat ache and post nasal drip from chemo?
Has anyone had problems with throat ache and post nasal drip after chemotherapy?
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WBC dropping
Has anyone had fluctuations in WBC/platelet count 8 months out?
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DLBC Lymphoma with out tumor
Question.. Did anyone on here have DLBC without tumors? I am a 57 year old female that was completely blind sided by my diagnosis.I got laid-off from my job in the middle of March because of Co-vid.I had a very active job walking 10,000 steps daily and not working now made me worry about staying active/ not gaining…
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Late relapse of DLBCL Facing R-ICE and ASCT
After a long absence, and without invitation, it is back. Late in 2012, I felt something on my neck that kept growing. It was diagnosed as DLBCL and in early 2013, I went through R-CHOP followed by radiation. All was clear until early June, 2020 when I felt a similar lump on the other side of my neck. After 2 months of…
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LBCNHL Hair loss /R-chop
This is my first post. I haven't navigated around theCSN site enough to find some answers so I'm writing it out.I am still dealing with a lot of shock from friends about myLymphoma, and sometimes I even ask myself "Is this really happening."I finished my 1st chemo 2 weeks ago and was wondering when most people started…
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Remission for 2 years and chiming in to say hello
Hi everybody. Last I was here I was worried about neuropathy and other problems from treatment. Well, let's say I'm alive and very fortunate at that and my minor pains and complaints are small compared to being in the battle for remission or left with no choice except comfort. I hope all is qell with the many folks I…
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Waldenstrom's and Hearing Loss
Can Waldenstrom's or the treatment there of cause a hearing loss?
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ABVD treatment and continued hair loss
Hello,I was treated with the ABVD treatments for Hodgkins lymphoma for 6 months.I never lost any hair until almost the last treatment.Its now been over a year since my last treatment and my hair has not grown back at all.I was wondering if anyone else has had this happen,and what if anything you may have been told you can…
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Rituxan (Rituximab) Shot?
I'm curious if anyone else had their Rituxin by shot form? In my first three treatments I had it by the oral bag but then was offered the opportunity to get the shot instead. It saved nearly two and a half hours off my Chemo treatment so I said yes within seconds. The thing I didn't know is that it took nearly four or five…