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After effects - the bowels
I know, strange subject. Back in 2015, about 2 weeks after my first chemo I ended up in the hospital with a perforated bowel. There had been a lymph node that was pressing against teh bowel. The chem cause it to shrink which ended up tearing a hole in the bowel. Ended up in surgery where they did a bowel dessiction. Never…
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In remission after a year
Hi everybody. I had my blood work, cat scan, and follow-up and find I am still in complete remission. I just wanted to share some good news. I am really hoping others find good news at every corner they come to with this terrible monster. I am so thankful. I still have many unanswered questions as to to origins and final…
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Maintenance completed
Hi all, today was my last Rituxan Maintenance Treatment! Can't believe how fast the time has gone 2 plus years, really feeling blessed and just wanted to thank you all for helping me get thru the rough times I really appreciate you all more than you will ever know. I don't post much but sure do read this site quite often…
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New here
Hi! I’m new here. Just finished 6 rounds of R-EPOCH and had my PET scan that shows no evidence of disease. However, I think I need a support group because I’m scared to death that it’s going to come back. All I can find is a breast cancer survivor support group. I thought I’d come here to see if anyone had any advice. I’m…
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CAR-T firsthand accounts
Is anyone willing to share their experiences with CAR-T? Any recent news on the topic? I only know the little bit I have read in the media.
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Checking in
It has been awhile since I have been on the forum. I see a lot of new names and some of the regulars too. It is almost 4 years since I was declared to be NED. I will see my oncologist in Oct. If all is ok she will have come in once a year going forward. I do have some health issues but they are more from age than fall out…