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Chemo done - some thoughts on my journey
Finished my R-CHOP yesterday. A rough but all in all tolerable ride. I think I can't complain given I never fell sick despite having low WBC at times. Incredibly, both my children haven't fell sick once in the past 6 months which I believe is short of a miracle given they're both toddlers! I wanted to share some thoughts…
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Stage 4 NonHodgkin T Cell Lymphoma
My fiance has stage 4 nonhodgkin t cell lymphoma I'm looking for success stories. We don't know what to expect.
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My Turn
As you can see from my profile and posts, I found CSN and started posting when my wife first discovered an enlarged lymph node and it turned out to be Hodgkin's Lymphoma Stage II. It's been 3 months since her last chemo and so far, so good. About a week ago I noticed an enlarged lymph node behind my left ear. It's location…
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DLBCNHL Treatments complete: 6 RCHOP with 4 intrathecal
Hi everybody! I am here to share my experience and to also ask a few questions. I have another thread here but hope to keep this one simpler and focused to DLBCNHL and/or related cancer therapies. Briefly, I was dx's with stage 4 DLBCNHL after a biopsy of a lesion behind the nose tested positive for DLBCNHL with the 1st…
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Prednisone as it relates to Shingles during Chemo
One individual on the Cancer Support Network indicated that she'd been told by her doctor that Prednisone was the worst thing that could be prescribed for what turned out to be Shingles. It turns out that I am undergoing treatment and have devoloped Shingles. The Chemo - called CHOP - includes 5 doses of Prednisone. I am…
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We need to move on
Hello everyone, I have to say that I look to this board for support, encouragement, knowledge AND guidance in treatment options! They All go hand in hand. We are all scared. I know I am!! Lets all try to get back to the reason this forum was created. Sharon
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Anonymous user (unverified)
Apparently their posts are marked this way when people withdrawfrom the forum.
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DLBCL not complete remission after 4 rounds of R-EPOCH
Hi, My husband 31 yo has been through 4 round of the DA-REPOCH. After a CT-scan, the doctor said one site is still visible (1.9cm dropped to 0.4cm now) although the others are not visible from the CT-SCAN. This does not meet the remission definition and thus she suggested to do another 4 round of treatment as opposed to…
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Has anyone had problmes with mosquitoes after chemo?
I'm about to undergo my 4th round of Rituxan and Bendamustine. This summer I have become extremely sensitive to mosquito bites. Could this be relatted to the lymphoma or my treatment?
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stem cell transplant
Hello everyone I am new to this site. I just got discharged from the hospital yesterday after doing a stem cell transplant for relapsed hodgkins lymphoma. Everything went pretty smoothly and my doc said I was in and out faster than most people he's seen. I've always had pretty low blood pressure but after chemo it dropped…
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Maintenance after R-CHOP
Just curious . . . How many folks need "maintenance" therapy after completing R-CHOP successfully? Percentages if anyone has any to offer would be helpful. Thanks!
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PET Scans
Okay . . . so I'm having a bit of trouble understanding how/why my Terry's initial PET scan showed 4 or 5 lymph nodes with lymphoma and the two that were removed from his abdomen near the tumor (aka: "em'effer", as we refer to it), didn't show any involvement when they were biopsied. He has one in his neck, one in his…
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Afraid Again Update
Just in case any of you were wondering how Terry's third "hit" went this past Thursday . . . All his liver tests were well within normal ranges. HUGE relief to both of us! Yay!!! No reactions to anything they gave him at the chemo clinic this time. Yay!!! Got out of there at a decent time. Yay!!! Had to be put on a 5-day…
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My father was diagnosed with Lymphoma
Hi All, My father was diagnosed with lymphoma and I was looking options treatments beside Radiation and Chemotherapy? I heard about vitamin C IV and also Bone Marrow Transplant. Are these procedure reliable? Can someone tell me other options?
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Double Expressor Lymphoma and Ibrutinib treatment
Hi, My mom 58 yrs old had been diagnosed with double expressor DLBCL. She received 6 cycles of RCHOP. The treatment worked great in all areas she had cancer. But then middle of the chemo we saw very high activity in her lumbar back bone following pet ct. Doc thought it could be fracture. After 2 months waiting we did pet…
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Thrush
Happy 4th of July everyone! The topic for today, whilst Terry is napping and we're waiting for a few folks to join us for a small gathering this afternoon . . . is "THRUSH". I'm not sure this is what's brewing in Terry's mouth; but, I suspect it is. We thought he was developing mouth sores this past week but when we…
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3erd time around???
Hi, Have not been on this sight for a few years. My first diagnosis was 2010 with NH 3erd Stage Follicular,slow growing . Second 2014. Now ... the lymph node that swelled up at first diagnosi in 2010 is sore to the touch . I came down with a 48 hr bug ( cold type bug ) on Friday. By Sunday morning I was feeling much better…
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NLPHL Relapser - AMA
Hi all, First time poster here. Sharing my story in case it's of use to anyone, in particular given NLPHL is not common. First time I was diagnosed was in 2002, 21 y.o. Stage IA. Treated it with extended radiotherapy (mantle field). I believe/understand this now is an obsolete approach. Relapsed diagnosis in beginning 2018…
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Clinical Trials
This link lists 231 Blood Cancers clinical trials currently planned or underway. The date of compilation was around New Year's, and as of that time only a few were already recruiting. I only skimmed it, but spotted several pertaining to T-Cells, several regarding relapsed Large B, several on Mantle Cell (MCL). A few on…