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Pain months after treatment
Hi, last August I was diagnosed with stage 4 Hodgkin Lymphoma and I completed 5 months of chemo at the end of January and completed 17 rounds of Radiation the middle of March. I have a lot of body pain/muscular pain and body aches. Right now my lower back and spine really hurt. I can’t help but always think my cancer is…
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Hep C and DLBCL
Anyone out there have any personal history of Hep C, now fighting DLBCL? Just curious if there are many out there who were treated for Hep C, had it "cured" and then contracted DLBCL. Terry was treated for his Hep C in 2009/2010 for six months and his PCR tests ever since have all come back negative. He has it checked…
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Port Infection/Rejection
Does anyone have any experience with a port incision that looked red and irritated after having one placed mid-way through their 6 scheduled chemo treatments? Terry's has looked "inflamed" for a couple of weeks now. We showed it to the clowns in that ER the other day but when I asked one of the RN's if it looked infected,…
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Be Prepared
Just wanted to throw this suggestion out there if it hasn't been brought up before. But, after Monday's wild goose chase . . . I wanted to share what I think most of us would want to consider in readying for that unforeseen "emergency" we've all faced at one time or another . . . whether as patient or caregiver. Long ago…
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Grrrrrrrrrrrrrr !!!
Okay . . . so we have a situation that arose this past Saturday night that has to do with a Staph infection. At about 9:50 Saturday night, just getting ready for bed, my husband (whom I love more than I can possibly describe, as you all know by now) . . . told me that he had a fever of 101.1, obviously over the 100.4…
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First time getting an outside opinion....
Thanks for taking the time to read this. My name is Charles and I'm a father of a 12yo girl and 5yo boy. My wife and children rely on me heavily as a breadwinner at home. It all started about 6 years ago with a pain in my left side abdomen. I had numerous tests and scans and even a colonoscopy which all failed to result in…
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High calorie, low sugar food suggestions
Me again . . . Sorry. The topic for today is high calorie low sugar food suggestions. Anyone have a short or long list/website with recipes, ideas to help someone like my husband who was on the slimmer side before our issues surfaced and is losing weight, in spite of eating whatever/whenever he can? He's always had a hard…
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Afraid Again Progress Report
For those who may have been following the wicked, uninvited guest in our lives known as "Germinal, Non-Hodgkin's Diffuse Large B-Cell Lymphoma, here's the latest. Thought you'd appreciate an update. Yesterday, was RCHOP, Hit #2 for my Terry. You may recall, we, as well as the oncologist, felt Terry's elevated liver tests…
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How cancer has affected my marriage
I hope folks aren't tiring of my continued posts, as I've traveled this extremely challenging situation with my husband's fairly recent diagnosis of Germinal Non-Hodgkins Diffuse Large B-Cell Lymphoma. Talking about my experiences these past couple of months is my lifeline to coping with so much of what's been affecting…
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Hair Loss and other things at the beginning of RCHOP dosage
I'm reaching out tonight to share our experiences as relatively newly diagnosed Germinal Diffuse Large B-Cell Lymphoma (Late Stage III/Early Stage IV) sufferers. My husband, after having a baseball-sized tumor in his small intestine surgically removed on April 21st, 2018, was given this diagnosis and has had one round of…
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Hair Loss at the early stages
Thought those of you following Terry's and my journey may want to share my emotion this morning. If not . . . scroll on by. We were hoping we may be spared, but he IS losing his hair . . . . . . big time! We are scheduled to have most of it shaved off this afternoon. Sad to see and part of what I've learned from chatting…
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Waiting again
Well I just had my routine 3 month CT scan and it wasn’t clean. I now have a new 9mm groundglass opacity in my left lung and several new 3-4 mm nodules in my right lung. I had a bad bout of bronchitis 7 months ago and at Least 2 CTs since then which did not show these new areas. Report says no reoccurance in chest, abdomen…
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Hodgkin’s- severe mouth sores
Hello, I have Lymphoma stage 2A and started ABVD treatment on Monday. Since yesterday (wed), I have extremely painful mouth sores. It started With my gums and now it’s the roof of my mouth, under my tongue, the tip of my tongue and my lips. It’s been so painful I haven’t been able to eat or drink anything... breathing and…
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Liver Abnormalities
Maybe some of you are tiring already of my pesty questions, but I was wondering if any of you have had either a history of Hep C (since "cured" before starting RCHOP), and/or if anyone had any elevated levels in your ALK Phosphatase, ALT, AST liver tests before and/or after starting RCHOP. Here's the thing. In my verbose…
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Hair Loss
Okay . . . so I realize chemotherapy affects everyone differently; so I know what comes as a side effect for one person may not be the same side effect for someone else. BUT, we were told that hair loss was pretty much a "given". Terry's first chemo was May 24th and, so far, he's been sparied. Anyone else, after that first…
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Shingles
Hello All... I was dx with endometrial cancer on Nov 1 2017, full hys on Dec 8th. Pathology report came back Stage 1A, with Lymphovascular invasion and after genetic testing, confirmed I have Lynch Syndrome, which opens my risk up to mulitple different kinds of cancers. That being the case, I recently developed a bad case…
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Severe Leg Cramps and Raspy Voice
Hi Everyone, Couple of things. First of all, how does the "friend request" and e-mail thing work on this site? There have been a few really supportive folks who have responded to my comments whom I'd like to learn more about and talk to them if they would like to do that. I suspect it has something to do with the fact that…
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Shady....a suggestion
I think that it would be a good idea if you just start a thread where you can air your platform and complaints against any of us for repeating information, or whatever we say that you dislike. That way even if you disapprove or disagree it will not discourage others, especially newbies who are scared to death. You are…
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San Franciso T-Cell Lymphoma patient education seminar
Yes, it's that time of year again. June 30th at the Hotel Nikko in downtown San Francisco. The primary speaker will be Dr. Andrei Shustov, an internationally acknowledged T-Cell specialist and the man who has saved my life three times now. There will also be a patient advocate who will describe a ten-year multi-lymphoma…