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Hearing Loss after Cancer surgery...
Hey Everybody! Two years ago, my dad was detected with cancer. The problem was with his parotid glands. He had gone through the surgery. After the radiation and chemotherapy, he became completely healthy. As the surgery was done in the parotid gland, his face got slight changes. The surgery was done on the lower ear area.…
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Mantle Cell Lymphoma prognosis without treatment
My dad was diagnosed 2 months ago with MCL. He also has advanced Alzheimer's and Parkinson's disease so we opted not to pursue treatment. All information about prognosis addresses treatment. Does anyone have any idea about prognosis without treatment?
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Newly Diagnosed
My husband was recently diagnosed with Germinal, Diffuse Non-Hodgkins Large B-Cell Lymphoma, late Stage III/early Stage IV. No organ involvement on the PET they ran on May 9th; but does have multiple lymph nodes that are affected. (One in his neck, one in his chest, one in his abdomen and one in his pelvis). He had…
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Nuelasta side effects
Hi, I am glad I found this support group. My sister has large diffuse B cell lympoma. She went through the first cycle of chemotheraphy and on the 6th day they gave her nuelasta. She has been having bone pain and other pains all over her body for about 10 days. She took claritin, tylenol with no effect. She tried oxycodone…
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Lymphoma Research Question
I have a very specific question about ongoing research to which I am trying to get a straight unambiguous answer To. Is anything being developed which targets only diseased b-lymphocytes and not all b-cells having a given marker? For example CAR-T technology, like rituxan, attacks all b lymphocytes with a given marker -…
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Relapse During Maintenance?
Is it possible to relapse during maintenance? I have NHFL, did 6 cycles R & B. Last chemo was 1-25-17. Started Rituxan maintenance on 4-21-18, one infusion every three months for 2 years. I guess I have three treatments left. My last PET scan was 8-3-17. It was NED. I had an upper body CT scan on 2-16-18. It showed nothing…
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Stage IV AngioImmunoBlastic T Cell Lymphoma
My 71 year old father was recently diagnosed with this. I'm scouring the internet for information on it and am trying to get as much info from my mother as I can, but she's been by his side at the hospital for about 5 weeks now and is going off no sleep (and possibly denial/grief/etc) so she's not giving me a ton of…
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Cancer clinical trials - placebos?
my chemo nurse told me she would never participate in a clinical trial if she had cancer because even in cancer trials they have a control group that are only given placebos. And no other treatment throughout the trial. Is this true? People with cancer can’t just go without treatment!
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CNS primary Brain Lymphoma Clinical Trials - Stell Cell or systemic and targeted therapies
Hi, Seeking help in finding treatment for my uncle who is currently in Buffalo, New York. He has CNS Primary Brain Lymphoma. We have one time transport for him anywhere on the East Coast and we need help in identifying potential new treatments or trials that may work. We've been told to look for stell cell treatments and…
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False neg PET scan
Hi, I am new to this forum and really appreicate any feed back. I am a 36y/o male. I have had labs and biopsies that all say consitent for T-cell lymphoma. I have double neg cd4/8 plus loss of expression of cd5 and partial loss of 7. I have a m-spike with monoclonal dectected.. I had a endoscope which found a 4 by 3 cm…
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New-scared
throat pain and intense ear pain since Feb. insurance changed had to find new PCP. Fortunately, he sent me right away to an ENT. I had a nasoscope which revealed a smooth tumor. Was sent for a CT scan and scheduled for biopsy immediately Friday (5/4/18). They originally thought it was NPC, however during the biopsy 3 nodes…
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Haploidentical stem cell transplant for Perip T-cell NOS NHL
My dr Is recommending that I get the subject allo stem cell transplant as soon as I’m in remission from the chemo I’m going through now. I’m really nervous about this Though. I’d like to hear from anyone who has had the subject type of stem cell transplant. My dr wants to use my daughter, who of course matches 50%, which…
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Pet Scan Reults.... help please?
Good day. I had a PET/CT scan and I am waiting to have a follow up appointment with my onocologist. I have a copy of the test results. I was wondering if someone would be kind enough to help me interpret the results. I'd rather goto the appointemnt prepared rather than be blindsided with results. After all, knowedge is…