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Heart surgery for Hodgkins survivors
Hi everyone, I'm a 47-year survivor (I was 12 at the time), now diagnosed with aortic valve stenosis. My doctors are debating whether to use a less invasive surgery (TAVR - or a new valve via cathether), or replace the valve via open heart surgery. The TAVR is a fairly new technology, and the valves don't last as long.…
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Need information and insight
Hello everyone, This is lengthy, so I apologize in advance. I found this site today and will confess I’ve already committed the two cardinal sins, but am hoping you will still indulge me and allow me to ask a few questions. My two “sins” are 1) searching the internet regarding symptoms I’m experiencing and 2) presuming a…
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Thymic Rebound/mediastinal mass
Hello, I was diagnosed with stage III T-cell lymphoblastic lymphoma in January of 2015. At the time of diagnosis, a "trivial" pericardial effusion was found. My oncologists mainly focused on my large external nodes and I went through two and a half years of chemotherapy on the ALL protocol. A few notes, I was diagnosed…
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My husband NHL..... remission new issues...
June 2015 my husband underwent surgery partial parodictomy to remove a necrotic salivary gland. They dx him with Sjogren's and then the Biopsy came back... differential: marginal/mantle/CLL he was treated with 12 radiation sessions and has had PET every 6 months since. Blood work points to Sjogrens but other antibodies are…
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radiation of throat
My husband has been diagnosed with Extranodal Marginal Zone NHL, Stage 1. Found in the tonsil, he had his right tonsil removed. Doctor has recommended 15 rounds of IGRT radiation, with side effects of sore throat, and loss of saliva, fatigue. Anyone have had this type radiation for neck? Oncologist says this is a slow…
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side effects with methotrexate
Hello everyone, I am new to this board. I am diag. with DLBCL with involvement in the testes. I had my first treatment with R- chop and received methotrexate (intrathecal . I have been having pain and tightness in the head and back of the neck. It was so bad one day I was injected with voltaren and dexamethasone. The pain…
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Brain Fog
I know this is a topic that comes up every so often and I thought I would share something I just read. Earlier this week I got the July-August issue of Arthiritis Today and one of it's featured articles was "Brain Fog'". The article is about how people with RA and certain other conditions experience brain fog. One of the…
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Neulasta
Hi everyone, mom just received her two day chemo treatment of (Rituxin and Bendamustine) for mantle cell lymphoma. She is supposed to have Nuelasta injection or go home with an on body injector for Neulasta. Has anyone used this on body injector before? The side effects don't sound great for Neulasta- bone pain? Thoughts?…
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anti-emotics Emend Q: Reduce pretreatment IV dosage before ABVD
TLDNR: Anyone else successfully reduce their "pre-treatment" anti-emotic w/o issue? Background: I'm receiving 150mg Emend intravenously before ABVD (3 infusions so far) and would like to reduce Emend dosage due to possible side-effects (neutropenia). I am also prescribed Zofran tablets but fortunately no issues w/nausea or…
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Our Friend has Lymphoma
Our dear friend and well loved, long time coworker, of my husband has been diagnosed with lymphoma. He wasn't feeling well and was going to his family doctor. I don't know what kinds of symptoms he was having as he is a very private person. I do know that his blood work revealed that he was anemic. His doctor ordered a CT…
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Mom recently diagnosed with MCL
Hi everyone I have been snooping around this board for a bit and have found you all to be so informative, helpful and supportive! So, I thought I would post with a question or two. My mother is 76 and was (finally) diagnosed with non-blastoid Mantle Cell Lymphoma last week. She goes for her port on Monday and her first…
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Opdivo injury
Has anyone had an Opdivo injury to their kidney's? My creatinine is 3.1 and has stayed there for a month now. I saw a nephrologist he said most likely I had an acute injury to my kidney's due to Opdivo. He'd usually do a biopsy, but my platelets are below 50. I was just curious
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Relapse Again
My husband has Hodgkins - B Cell type - Not sure if that's technically correct description - He had chemo and was clear for 12 years! At that time, conventional wisdom was after 10 years, they could say "cured." But it came back and he had a round of treatment with Rituxan and relapsed in six months. So he had Rituxan and…
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Newly diagnosed
I was diagnosed on March 25, 2017 With TCell Pll. I took 12 rounds of Chempath, I got so sick that on April 21' 2017 i went for another round. I didn't know my name they immediately put me in the hospitaL. I was there for over a month with a very sick liver. I had told my doctor that I felt the same and something was not…
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Panick Mode has set in
I went to my doctor for a regular check up and blood work and was surprised with more tests and they are setting up an appointment with a hematologist I know what each word on the CBC means and does, but I don't understand it as a whole: WBC 3.7 (which at minimum should be 4) RBC 3.24 (which at minimum should be 3.8)…
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Complete remission
Well got my PET scan results yesterday. Full remission was music to my ears. Finished treatment 5 yesterday and treatment 6 scheduled for 7/3. Then I have PET scan every 3 months. The PET scan did show some spots on the lungs and Dr said it was not Lymphoma he thinks it could be from Chemo. I have an appointment with…
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Suspicious for lymphoma and scared but no concrete diagnosis yet!
Hello everyone i am new to the site and just wanted some opinions and feed back from you very knowledgable and great people out there thank you in advance :) Well first things first i am a 20 year old male in pretty decent shape play alot of sports dont eat to terrible my family has no history of any illnesses to this day…
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Scanxiety
We all have it! Its 8months and 13 days since my SCT and I had a CT scan Yesterday. Appt with the oncologist is Tuesday. The waiting as we all know is excrutiating. When the phone rang last night around supper time and I recognized the phone number my stomach dropped. The nurse was on the other end, and of course I'm…
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Tomorrow I get my chemo and I am afraid!
Hello everybody, as I already posted here, I got diagnosed with LPHL IIA in 03/2017. Tomorrow starts my treatment (2*ABVD + 20 grey IFRT). I start to get more and more nervous and my fear is increasing with every hour. I'm afraid about the pain that could come up during the treatment and all the side effects. Although I'm…
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DLBCL - pet scan post treatment showing activity
Hi there, I have never posted on here until now. My fiancé finished 6 rounds of dose adjusted repoch in early April. He had a Pet scan done 6 weeks after his last treatment that showed a 6cm mass with an active spot. We have a biopsy on Monday. has anyone had an experience like this where it was a fluke and not cancer that…
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Worry Type of Person
Hello, To begin, I am a 26 year old mother of two. I am currently breastfeeding my youngest and have been for a little over 2 years now. I noticed about 2 weeks ago, my left armpit area was swollen. It looks swollen to me and feels like it every time I touch it. It seemed to feel like it goes down, but I can't be 100…
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Various symptoms, not sure where to start for help
I was diagnosed this time last summer with mono, which took months to recover from and still wonder if I'm being plagued with it. I'm also having additional symptoms that my doctor, as of yet, cannot pinpoint to a diagnosis. Ive had severe drenching night sweats for going on a year and a half, to the point I sometimes get…