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My newest challenge
Well, I spent the weekend in the hospital. I've had a dry cough, on and off fever, fatigue and shortness of breath, for about 3 weeks. Had a chest x-ray that showed a few spots in my lungs.. LDH jumped from 175 to 429 during that 3 weeks. WBC dropped to 1.9. Had a chest, abdomen and pelvis CT. it showed the spots/haze in…
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Do I push for further testing?
Hi, I am new to the group, I am a 30 year old female, have not been diagnosed. But have gone thru some tests to figure out what is wrong with me, no answers yet. Let me start off with some history, 11 years ago I was diagnosed with Thyroid cancer and had a full thyroidectomy, and had 2 rounds of radiation treatments, and…
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Hello I'm a Newbie
I really don't know where to begin. I don't know what I am looking for. I was diagnosed with NHL MALT Lymphoma in my right lung back in September. My journey started back in May of last year when I passed a kidney stone and they were checking to see if I had anymore and happened to catch a nodule on the CT Scan. A week…
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Early Reoccurrence after Bendomustine/Rituximab
Hello, After 6 rounds of Bendo/Ritux which ended in October and several clear PET scans, I recently had an MRI for some shoulder pain that showed evidence that the NHL has returned already. This is not confirmed as more tests are needed, but based on what I see I don't have a lot of hope. My question is, has anyone else…
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Need help for my young children at home coping with my cancer
Hi everyone, I was diagnosed with Large Diffuse Mediastinal B-Cell Lymphoma last June and underwent 6 rounds of R-EPOCH chemotherapy. I have 2 children at home who have been coping with me having this disease. They did very well, and maybe because my husband and I felt that being completely honest with them about the…
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Update
Hi to everyone, Sorry to use the forum for a personal nature but I wanted to answer everyone since we also got some personal messages, and I don't want to use that long thread, so I started the new one. We evacuated a week ago tonight, it took us over 4 hours to go 50 miles. We pulled our 5th wheel and ended up parked in…
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Secondary Cancer?
Completed 6 cycles ABVD treatment (no rad) for the Lymphocyte rich version of CHL (stage III) about 8 weeks ago. Just received the results of the follow-on CT & PET scans the other day; good news is that previous sites of cancer appear resolved however, what's new is now I seem to have some enlarged lymph nodes in my…
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Looking for hope
My sister in law has relapsed DCBL and is recieving R-EPOCH. She is 48 and super depressed. Im looking for anyone out there who has been through lymphoma twice and is now living a relatively full and healthy life - somone to offer words of support and hope. R u out there. She needs to know its possible to be healthy again.…
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Son diagnosed with Advanced Stage 4 Hogkin's Lymphoma
Hello, I am writing here as I am looking for advice, stories, anything that will help my family and I through this. My 31 year old son was diagnosed with Advanced Stage 4 Hodgkin's Lymphoma in December. He just finished his 4th session of ABVD and has 8 more to go in this course. It is considered palliative at this time.…
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Undiagnosed Please advise
I've been looking everywhere for answers. I'm hoping that the brace people on this site will be my best resource. Starting feeling very ill last June 2016. Searched months for a general practitioner to evaluate me and many strange symptoms. Having found one in August she gave me a preliminary diagnosis of lymphoma in…
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My Rchop Dose Reduced to 70%
Hello My name is Nitesh 30 year Male, My height is 161 centimeter and weight is 53kg. I had a bisospy in my left armpit and found that I have Diffuse large B-cell lymphoma (DLBCL) Stage 2-B. My onco has suggest me for 6 cycles of Rchop after every 3 week with no radiation therapy. My rchop dose are as follows;- Rituximab…
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Ucsf vs stanford
Was currently being treated at Stanford but I have become unhappy with my situation there I'm thinking of transferring my care to UCSF. How does the care there compare¡??
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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Introduction and Hello
Hello everyone, I'm very new here and look forward to getting to know you all and learning as much as I can about how to be a person with cancer. I have NHL, from what I'm told, Large Diffuse B cell type. Last week I did my first round of chemotherapy in the hospital. I'm getting DA EPOCH R and I tolerated it fairly well -…
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Mantle Cell
Hi everyone. My mom is 71 yo and was dignosed Dec 6 with MCL Stage IV with bone marrow involvement. Her first treatment was the Rituxin and Bendamustine combo in January and she did very well. She had her 2nd round last Wednesday and Thurday. She felt fine up until Sunday and it knocked her on her rear. She was very tired.…
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Pulsatile tinnitis
Good morning....I am wondering if anyone has been diagnosed with pulsatile tinnitis/tinnitis.....I am post radiation to neck for hodgkins lymph 37 years ago....thank you
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Maintenance Rituximab for me
My Onco is starting me on this in a two weeks. I’m almost 7 months post-SCT (autologous) and feeling great. (Although today I had a pneumonia shot, a flu shot and a TDAP shot and my arms are SORE.) It appears from the modicum of reading I’ve done that this is a no-brainer…definitely the right thing to do. So the…
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Brother Diagnosed
Hi All, My younger brother (15 years) was just diagnosed with Acute Lymphoblastic Lymphoma (non Hodkins). It was a few days ago, so we don't have many details yet. All we know is there was a 2+ pound tumor in his chest that was misdiagnosed as mono for about a week (until my brother was having trouble breathing and was…