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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for December 2016

SCT update
Three month PET/CT shows that my stem cells are doing what was planned after the SCT!( diffusely increased marrow signal in the axial sleleton, presumably due to marrow activation). PET shows nothing else!! I am sooooo happy right now, although I keep thinking " been there, done that" Moving on!!
Been through 12 chemo treatments and now going for biopsy
this post is for my son in law. He. Has been through 12 chemo treatments for Hodgkin lymphoma. Today he had a biopsy and was told he may have to go for either stem cell or radiation as the 12 initial treatments didn't get all the cancer. Does anyone have any thoughts on this? Hopefully he will join the forum and have these…
GKH
Where did he go? What happened? Anyone know? I went back to a post from last week I wanted to respond to. I noticed that the replies he made in the thread were now labled as: Anonymous user (not verified). ??? Rocquie
It was sepsis
This time I want to preface my post with an introduction: Please forgive me for barging into the group. Many years ago, before I had a family of my own, when my dad fough pancreatic cancer for six months, I joined an (early) online, disease-specific discussion board which was a lifeline. I was very engaged not just in…
Back/ribs bone pain
My mom is 4 cycles in on R-chop. she's been admitted to the hospital for fever, where they are testing testing testing. Symptoms could be flu (though we didn't think she'd been exposed), or kidney infection. Lots of pain. Mom is 70. She has follicular b-cell (likely transforming) and malt. Anyone experience something…
How to keep a positive attitude?
Hi Everyone! I would like to know how everybody keeps a positive attitude in front of all the treatments and specially the tests? I am terrified always with every little ache and pain that the cancer is back and I don't know how to deal with it all. I know all the theory behind positive thinking , low of attraction but how…
Anyone been through Hyper-CVAD?!
Looking for anyone who has experienced Hyper-CVAD treatments? Scarey stuff!
Christmas came early
Seen dad's oncologists yesterday. The last pet scan showed no activity. Dad's lymphoid are all back to normal size. To think that back in April we found out that Dad hod 3 kinds of cancer. The large B cell tumor was the size or a basketball. We almost lost him in June and again in august. Now it's December and the cancer…
Diffuse Large B-Cell Lymphoma (DLBCL)
The complete pathology report is not in, but initital findings are that the Follicular Lymphoma has morphed into an aggressive Diffuse Large B-Cell Lymphoma. The tumor that I originally thought was 13mm is actually 13cm! yes - OUCH! I start R-CHOP on Wednesday. Actually looking forward to doing something and hopefully…
Infections
Well, the saga continues and I am certain that someone here on this discussion board has experienced something similar. I am looking for input. I was just released from the hospital after being admitted (via ER) witih infection. For over 24 hrs prior, I started a a temp of 101.5. 1 day of Cipro did not bring it down so my…
Indegestion
I was diagnosed Nov. 8 with stage 1. While that is the good news, where the cancer is located is the issue. A tumor around my spine from T4 - T12. I had been in so much pain and had been to two different spine Dr. and they both missed it. From my waist down before treatment started was numb and tingly. I have just…
Primary Bone Lymphoma, anyone?
Hi all, I have Primary Bone Lymphoma, which is deemed a rather rare occurence of lymphoma. My variety is Follicular (indolent), which is even further off the charts (the "usual" type of PBL is DLBCL (aggressive)). Specific information is hard to come by... So I would love to find other folks with PBL, who would be willing…
gray-zone lymphoma
Hello, I saw this forum and because I know how rare this is I wanted to share my wife’s experiences. Hopefully this will help someone. My wife was recently diagnosed with mgzl (mediastinal gray-zone lymphoma). She is 41 and very healthy otherwise. She has rosacea which is an autoimmune disease and we think that made her…
Set back but not cancer
Ok, that is a weird topic name. Last Sunday (first Sunday of December) I went to the massage place in the nearby mall for my weekly massge. With the weather getting colder I haven't been taking many walks outside. I've been doing so good with my walking longer distance I didn't want to lose gorund. Since it is an indoor…
It's back, so I am too
You know how you should take your own advice? Well guess who didn't? That's right - ME! (Yes, I use a lot of sarcasm - anger cloaked in humor). Original diagnosis in 2009, watch & wait until 2010. I started Rituxin only treatments, once a week for 4 weeks every 6 months for 2 years. I was clean! Fast forward Feb 2016, I…
Happy Holidays
Just wanted to wish you all a Merry Christmas and a Happy New Year! 2017 has to be a better year, so let us make the best of it. I am happy to be able to see another new year, and i hope to see many more! Chris
DLBCL Six month scans
After a long and crazy fight, I had been told in April that I was in remission. I had another scan in July that showed no growth as well. Then come August, my insurance at work changes and my doctor is nwo considered out of network. So I appeal, get denied and schedule an appointment with another Doctor that he…
Non-Hodgkins T-Cell Lymphoblastic Lymphoma
Hi all, I was diagnosed with Stage III pediatric T-Cell Lymphoblastic Lymphoma almost two years ago. I finish Maintenance in May. I went through induction, cosolidation, interim maintenance, delayed intensification, and now am in maintenance. Through induction, consolidation, and interim maintenance, I continued on the ALL…

Lymphoma (Hodgkin and Non-Hodgkin)

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