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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for July 2016

Quite a journey isn't it?
Yes it was just about a year ago when I noticed the small lump in my groin...wasn't too worried and headed off to Washington to work on a fire..when I got home three weeks later the lump was much larger so off to the doctor. I went to discover I had DLBCL..wow..treatment began a week before Christmas and lasted through…
TB Test
I am curious if anyone has had a TB test during or following treatment of biologic drugs: Abatacept (Orencia), Rituximab (Rituxan) and Tocilizumab (Actemra). I received a letter from my health insurance company today that it may be necessary to have a TB test since I have received one of these drugs. I know I had to be…
Worried
Hi Everyone, I am in remission from Follicular NHL stage 4 since 09, after doing Zevalin. I had a scan in June and they found 2 small pulmonary nodules with the larger nodule measuring 4.5mm so I worry about that but they said to recheck in a year. I have had scan in early June, and he did not do my neck and my head, that…
Correlation between Hodkin's Lymphoma and Liposcarcoma?
I just finished treatment Of Stage IV Hodgkins Lymphoma at the end of May and am in remission. I just had a 18 cm fatty tumor removed from my thigh that they now believe (and have sent away for more testing) could be Liposcarcoma. I won't know for 3-6 weeks, but is there in correlation between the two?
What to expect post-reatment- Rituxan/Bendamustine
Just found this board and I'm so excited for the oppotunity to interact with other cancer patients/survivors. I was diagnosed in April 2016 with Follicular large B cell Non Hodgkins Lymphoma. It was found by accident during an MRI for hip pain I was having. The cancer is in the bone marrow of my hip and shoulder, but not…
Is it normal, because I'm worried it's not
I saw my oncologist today and he said we would do a CT after my next treatment. I was surprised by that and asked him why, I thought I would finish treatment before being re-CT'd. He said he just wanted to make sure the treatment is working. It will be my 4th of 6 rounds for SMZL. Tonight my imagination is going wild with…
Clinical Trial Failure
I don't think anyone at the Board has mentioned bieng part of this, but it is important to be aware of, especially members with T-cell issues. max http://www.foxnews.com/health/2016/07/08/juno-cancer-study-halted-after-patient-deaths.html . .
Auto cell decision
I'm in Wisconsin and my dilemma for today is that my insurance will cover a stem cell transplant at either Carbone cancer center in Madison (NCI rated) or Froedtert Hospital. Froedtert is not NCI rated but very reputable. Madison is about 90 minutes away, Froedert about 25. I certainly don't want to choose by driving time.…
auto stem cell after DA-EPOCH agressive diffuse large b-cell
New to forum, and would like to ask the question of benifits of doing auto stem cell immediatly after my 6 treatments of Da-EPOCH? I am finishing my 6 treatments for agressive diffuse large b-cell, and my pet after 2nd treatments was great with it almost gone.will have another pet in a few weeks, but doctors want to do a…
Error
SCT or Rituximab after remission
I, 61 years old, was diagnosed with stage IV MCL in November 2015. I have finished six treatments of Bendamustine and Rituximab. An extra three CT scans occured during the last seven months due to bilateral pneumonia and abdominal pain. The last CT scan two months ago showed the enlarged lymph nodes in my digestive tract…
No SCT
Tues I saw the Stem Cell Dr. My bloods were ok. Still not in the normal range but close. She told me that I am doing good. The 2 scans & bone marrow biopsies done this year show no sign of the cancer although they still don't know what the abnormal cells were in the Nov biopsy. It was because of that Nov test they wanted…
Neulasta
A little nervous. Dad gets his first Neulasta shot tomorrow. I hope we made the right choice.
Lymphoma Non Hodgkins
I have began and completed my first round of chemo. I have some questions regarding drinking water through the next 3 treatments. All food tastes terrible and drinking water gets old and hard to keep down. Any suggestions?
SCT club
Well my DLBCL has returned. The plan of action is ptretty much what I have read on this forum and am greatful to have learned from all the different posts. I will start R-ICE on Monday and work up to a stem cell transplant. What can I expect with the R-ICE as compared to R-Chop? Sharon
On my way
Well i am about to drive to Massachusetts, will be my first time driving there. Will take a ferry from the northern part of Long Island, across the long Island sound to Bridgeport CT. I am excited, i am going solo, but i have a co-pilot with me, he has never left my side. I am going to celebrate my remission doing what i…
Be safe out there
Wanted to wish you all a Happy and safe 4th of July, i am grateful to be able to see another holiday, and enjoy it. Be safe out there if you go out!

Lymphoma (Hodgkin and Non-Hodgkin)

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