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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for December 2014

Happy New Year
Happy New Year All, Just wanted to pop in to say that I think of you all and read through the posts most of the time. Life in general has kept me busy, although I move a bit slower these days I am doing okay. Still having problems with my blood counts, very low white and low red, which adds to moving a bit slow. My marrow…
Where is the best place to have the needle for chemo treatment?
Hi. My name is Laura. I am going to have my 3rd round of Chemo in the next 3 days. I have chemo on Thursday and Friday, Rituximab & Benadamustine. During my first treatment in October, the needle was put in my hand. I had issues for weeks after, with the veins in my wrists being sore and popping out. It is fine now. For my…
Bone marrow biopsy discomfort - long term?
Hello, has anyone experienced chronic discomfort from BMB? I had the procedure in 2013 and still experience sorenness at the site. My oncologist dismisses the connection to the procedure and indicated none of his other patients have had this issue. I'm frustrated and would like to find a solution. It is very uncomfortable,…
Question for Max
i saw the spam the other day about MJ oil. Some guy at work also told me about it. I've done a bit of on line research and it hasnt been disproven. What are your thoughts?
Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
"MERRY CHRISTMAS"!
MERRY CHRISTMAS!!! I hope all of you are having a wonderful day with your families! Sorry for not posting more often, but honestly, I've just been overwhelmed with so much that's gone on since we've moved to the river. We love it here and couldn't be happier, but this stupid cancer just isn't giving me a break. We found a…
tis' the season
Tis' the cold and flu season. Ok everyone make sure you wash your hands, wear masks if needed and be wear the big bad flu bugs are out there. I went to court hearing for my son yesterday didn't wear a mask and by late that evening I contracted the flu. My cancer center was on it quick and I have antibiotics but I wanted to…
Ureaplasma urealyticum during chemo
Hello, I was diagnosed with stage II Hodgkin's about two months ago. I have been receiving ABDV every two weeks; so far, I have had three rounds. I will have a PET CT in mid-January to see if the cancer is gone. I f so, I will have radiation therapy. I am trying my best to be positive. I know that Hodgkin's responds well…
Videos of my wifes biopsys and inspirational story :-)
My wife asked me to write my perspective of what we went through in the last year. The site includes our inspirational story and vidoes and pictures, including vidoes of some of the procedures she had to go through. Hope this helps someone. www.roadsuntravelled.com
Last chemo and I'm done!!!!
Hello my lymphoma friends, just wanted to share the exciting news about finishing my last chemo treatment # 12 yesterday and I can't stop feeling excited and happy but at the same time somehow emotional. I'm still under the effect of steroids which are not helping my excitement to go away. I woke up at 3 this morning and…
Wanted to wish all a Merry Christmas
I know its been a while since my last post, just wanted to wish all a Merry Christmas and a Happy New Year, I will be going to Massachusettes, and will be back after the New Year, I have been feeling better since i changed my diet while on a watch and wait, no more symptoms like before, no fevers etc, will have a scan in…
PET Scan
I am a 3 yr survivor, Non-Hodghins, I have not had a PET scan in a while. I have gained a lot of weight since I was cleared from chemo, too much to have a PET scan. How can I be tested to make sure that I am still cancer free. I am having some issues that cause concern. I know that I get a little jumpy when something…
Hair regrowth & bone pain after finishing chemo
Hi!!! This is my first time posting, so I don't really know where to begin. I am 20 years old and I just finished EPOCH chemotherapy four weeks ago. My last Neulasta shot was also four weeks ago, and normally the bone pains go away witihin ten days. My pain went away for two weeks but came back these last few days much…
GURD/Acid Reflux
Hi Everyone, I have GURD. I have had it for years. My problem is this darn heart burn won't stop. I was told by my onc. To not take my prilosec 4 days before and after chemo.thats 11 days . I am wanting to take tums but don't know if I should. When this rollercoaster is over I am pretty sure I will have a healthier diet…
L'Hermittes Sign (Leg tingling) After Radiation
Hello All! i'm happy to say that I finished radiation for NHL in August and have since been in "complete remisson"! With that being said, lately I've been experiencing a mild tingling in my legs, hips, and lower back when I exercise or tilt my neck down (AKA L'hermittes sign). Has anybody else experienced this? It has been…
SURVIVED Stage 4b Hodkins
Just a note to offer hope. I was diagnosed with 4th stage B Hodkins just 3 months ago. The cancer was spread throughout my body, and had two large tumors on my spine. I had lost 15lbs and was having drenching night sweats. I was shocked to say the least. The good news, after a mere 2 rounds of ABVD (4doses) I am cancer…
Numbness , weight gain and life after chemo
Good morning everyone! Yesterday I had the first treatment of cycle #6 which is actually chemo # 11 and as usual every time I feel a little worse than before. My biggest concern is numbness in the bottom of my heels, I have some in my fingertips but it's not as bad. Sometimes it's painful to walk and it feels as though I…
Lumps on jaw and behind ear
Hi all. I have a hard painless lump that moves on my jawline, has been there at least 7-8 years. I also have a hard painless lump behind my ear which does not move and has been there maybe 2 years. I thought nothing of them until the last few months when I have been having night sweats. I also get very itchy at night,…
Latest Journey
After treating my husband's Hodgkins with ABVD, ESHAP, and brentuximab we decided that our best chance to get a clean scan was to go for a stem cell transplant. Our doctors biggest concern is that the cancer will return, so he suggested a tandem auto stem cell transplant. Chris got chemo on Tuesday and his cells on…

Lymphoma (Hodgkin and Non-Hodgkin)

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