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PET scan Appt
PET scan is scheduled for Saturday morning, the following week will let my job know what is going on, then it will begin, the endless doc appts. Will post results of PET scan next week.
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Glad to find this forum
Hello! I've been trying to find a place where I could chat with people with the same problemsas mine and finally found it! :) Here is my story.... I live in Montreal, Canada. Last year while pregnant (14 weeks) and after having two unsuccessful needle biopsies and then later having a biopsy with removal of three lymph…
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R-EPOCH side effect?
Hello there, I'm a new member. My mom (76 years old) was diagnosed in Stanford Hospital in 3 months ago as having c-MYC positive Diffuse Large B Cell Non-Hodgkins Lymphoma (DLBCL). I just recently discovered this online community and was hoping to seek information and share our experience. After having two cycles of R-CEOP…
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Got the results
Saw the doc yesterday, seems that there are a total of 3 areas involved now, she ordered a PET to see if there are more that didnt show up on the CAT scan, she told me that i have 2 options now, rads and chemo like i had the first time which will hand my behind to me again. The rads have a chance of causing raditation…
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News To Share
Good news to share....I was one of 16 students accepted into the Athletic Training Program for 2014/2015 at Saginaw Valley State University...That's right my fellow Lymphomaniacs, one of 16 per year admitted into this Elite Program!! I am so blessed to walk on this earth, let alone have wonderful things like this happen to…
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New drug approved...Zydelig (idelalisib) for CLL, Follicular, and SLL
Hi guys, I receieved this in my e-mail today from the Lymphoma Reasearch Foundation. It's comforting to see new drugs being approved. Sounds like this one might be one I'll possibly be able to use. I'm definetely printing this out to show to my Oncologist. Anyways...thought you all might want to read this and go to the LRF…
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Appt with doc
I have an appt with Onc Friday morning, she wouldnt discuss results over the phone like she usually does, so i will post Friday what she says.
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Extreme mental decline issues with Neulasta ?
Hi just signed up here trying to find any information on mental issues after taking Neulasta. My father was recently recieving chemo treatments through a chest port for lymphoma. He was doing great with it. Then this morning he had to go in for a shot of Neulasta. He walked to the car just fine with very little…
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confused by biopsy results.
hi my name is angie, my husband has been told that he probley has non hodgkins lymphoma. he has this tumor growing on the side of his neck. its huge. now the other side has one growing. he went to an ent they did a niddle biopsy it showed lymphoma. we went to the oncoligist he had a pet scan ordered and another biopsy. so…
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Got scan results
Got the results of my CAT scan and it shows that it has progressed and it looks like a new area has started too, my lymph node has enlarged quite a bit in 5 months as well, am waiting to hear from Onc. and see what she has to say, i feel fine for now, just tired of all of this, i keep telling myself it can be worse, there…
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Checking in with my CSN friends
Greetings All Been a while since I have checked in with you all. Im doing great. Been 2 years since my stem cell transplant!!! Cant believe it, but time has flown by. Im doing great, Adam and I just bought our new home last month and we are finally settled in. Hope you are all doing well and wanted to send my love and care…
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New to CSN
Happy Monday, A little about me - I was diagnosied with Stage 4A classic HL in May 2014, and began my ABVD treatment June 2. I have had treatments two and three both postponed by a week due to very low white and red cell counts. I finally have treatment #3 tomorrow and will begin taking Filgrastim the following week for…
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Treatment Options
I was just curious if anyone would be kind enough to post their thoughts and feelings on alterior treatment options for lymphoma. Is their any way to eliminate lymphoma besides undergoing chemo/radiation? Thanks.
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How to feel/What to expect
I'm soon to be 52 and was just diagnosed with MCL. My family doctor found something odd on a blood test when he was checking for rheumatoid arthritis. He thought it might be CLL but I've seen 2 oncologists since and they both agreed it was MCL.......of course I could manage to get one of the more rare versions of NHL!…
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It's been awhile
It has been awhile since my last post, i am now working full time, i decided that since my last Dx that since the tumor is small i would work to keep myself busy, and to keep me from thinking too much, after 3 times of being diagnosed and it being a small tumor that i would not stress as i know i have beaten it twice…
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Limit to amount of chemo/radiation
Diagnosed with NHL in 2008. Had 8 rounds R-CHOP and 27 radiation sessions. Have been clear until now. So my question...Is there a limit to the amount of chemo/radiation you can have? I don't have symptoms right now but a recent PET showed uptake in the pelvic region and near the trachea. I will see my oncologist on Monday…
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Thin hair & thin facial hair
I'm a 26yr old male and I was diagnosed w/ Nodular Schlerosing Hodgkin's Lymphoma 2B (nightsweats) in my upper chest (both sides - size of a softball). I had 12 chemo treatments over 6 months and my last treatment was on 5/12. Still need to have a last PT scan before my doctor let's me take my port out. Mu question is if…
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Problems with Temodar - interrupt treatment?
I had primary CNS lymphoma in 2012. I got cortisone and then three rounds of four day treatments with Methotrexate, antibodies and other stuff. The tumour vanished. Then my stem cells were collected, I got high dose chemo according to the BEAM scheme and then I got an autologous stem cell transplant. Now I am on 250 mg…
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biopsy-false negative?
I have a question i have been struggling with and thought i would come here. I noticed a swollen lymphnode at my groin on the right side in March 2014. Saw my doctor in April ( about 6 weeks after i found it) he put me on a round of Keflax antibiotics and said to call if it didnt go down. Well it didnt go down so he…
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A very happy day
We got the results of Bill's first CT scan since being on the miracle drug Ibrutinib. There is scant evidence of any lymph nodes left. The doctor and nurses are thrilled and of course so are we. I have been a nervous wreck! This new target drug for relapsed B cell lymphoma is such a hope. Although it has only been released…
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CMR yet Radiotherapy
Hello Folks, I have been getting my RCHOP since Jan and had a PET scan. I was told there isnt any cancer activity and in complete metabolic remission. The doctor told last time that they dont recommend radiotherapy as they would want to leave one treatment method free so that it could be effective for any future treatment.…
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Shoopy (Karl)
It breaks my heard to share this but I just got this message from a friend of Karl (Shoopy): "I am a friend of Karl. I know how much support he felt from this site and I think he would want you to know that he passed away on Saturday. He was loved by so many and I know he died feeling that love. His plan was to live…
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"Deserves a Thread"
Grandma runs from Florida to Maine after four fights with Hodgkin's Disease. (I can barely run across the kitchen ! -- Max) http://abcnews.go.com/Health/cancer-survivor-runs-florida-maine-68-days/story?id=24451847 .
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Long term psychological problems
Cancer survivor for 41 long years. Met my wife when I was 38 and she was 26.after marriage she wanted a child and I didn't. This was because I did not want to leave a young wife and child fearing eventually regturn of cancer given the treatment I received. But I saw thow much it meant to her so we had a daughter when she…
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Life is just full of surprises.
Well, I've never done this before but I am to the point of serious anxiety about this. So here it is: I am a healthy 22 yr old, white male. I am 6'1" and apprx. 190lbs. About four weeks ago I had a really bad bout of strep throat. Since then and before that point I have been in good health. Anyway, about two weeks ago I…
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Happy July 4th Everyone!
Hope everyone is doing well and warm hugs and wishes for those in the battle. Jim https://www.facebook.com/photo.php?v=10202338970866080
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PTCL NOS Remission!
Just wanted to check in and let you all know that I am 155 days post allogenic SCT. I was declared in remission at 100 days! A year ago this week I started chemo, had radiation in November and December, and the stem cell transplant in January. There have been many ups and downs, but more ups. Summer has been pretty good so…
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Tumor fever
hello, my brother was just recently diagnosed about 6 weeks ago with DLBCL NHL. He was a healthy individual before the diagnosis but since past 6 weeks nothing is going right with him in terms of his health. He was intially admitted as he had fever which was accompanied by a seizure and since has been diagnosed with NHL.…
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HL Causes
I thought I already posted this and maybe it was removed. The question I have is why aren't Dr.s asking more about what we did before finding the HL? It seems like they would want to know all of my activities, medicines and habits and then compare to all others with HL. I hope that finding the cause is just as important as…