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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for December 2013

Anyone heard from Po18Guy
Hello everyone, Just wondering if anyone has heard from Po18Guy (Jim)? Last time I saw a post from him, he mentioned that he had relapsed. Take care everyone (((Hugs))) Sincerely, Liz
starting on the journey to diagnosis
Hi there so glad I found this place , I am 35 years old and for the last year I have been having a,range of non specific symptoms. Chronic fatigue total loss of vitality, generalized itch which is worse after even a glass of wine, very achy body, pain in the pelvic bone, and lower right sided abdominal pain which feels…
Merry Christmas
Hello Dearest Friends, Merry Christmas to each of you. I hope your holiday is warm and wonderful and that you are surrounded by family and friends who love you. I have been so busy, back and forth across the country that I barely have time to read all your posts. I should be able to be more active now that things have…
Happy Holidays
Happy Holidays to all I know this can be a joyous or emotionally draining time of the year for all of us.....It was a rough year for me as it was for all of you, I am counting my blessings and trying to cherish how lucky I really am. I hope everyone is doing well and can enjoy some family/friends this holiday season You…
Update elevated WBC
Hi, I just got a call from the doctor, he said I'm at 12 again. He said because of your Dad we can send you to a hematologist. That's an option. I said to hiit could it be from stress he said no not in a chronic form. I saidon't not sick I don't have any infection going on. He said yeah you are fine so we can send you to a…
biopsy done
Hey all, thanks for encouraging the biopsy. Had it done yesterday and it was pretty simple. Recovery has been pretty easy so far, just tired. The surgeon still was emphatic that he feels strongly it's not cancer and the staff at the surgery center sang his praises saying that if he said it was nothing it was probably…
Elevated WBC
Hi everyone, I hope and pray everyone is well or in the process of being well. I may not post often but i do follow each of the posts. I had CBC done yesterday to re-check WBC levels. They've been elevated for few yrs now. The last normal range I had was in 2010 (close to high end limit 9.2). He asked me to call him…
The latest
It's sort of a "mixed bag". On Monday I had the bone marrow harvest where they drill into the hip bone to suck out the stem cells. Yes...it hurt! The good news is that we now have enough stem cells to proceed for the transplant. The last hurdle was the CT and PET scans which I had yesterday and today. I met with my…
Consultant on Tuesday
On Tuesday afternoon I'm seeing my haematologist. It's my 2nd 3-month review but brought forward at the request of my GP, because of an ongoing sore throat. Trying not to think too deeply about it - either the lymphoma is back or it isn't - but I would appreciate prayers and thoughts from now until then, please!
Girliefighter
Carrie, hope you are still doing well. Please update us. How is the book coming?
Anxiety, how do you deal?
Haven't posted in awhile due to no progress, but now my biopsy is coming up (Wednesday) and the anxiety is through the roof. For the past month I've been able to just kind of push off the worry but now that the surgery is upon me the reality is settling in. Every little thing I experience physically has me freaking out. I…
Delicate subject
About a month ago I had a black tarry stool for about 3 days, it went ago, so no worries. Yesterday and today after a bm I have bright red blood. Btw, I am in remission with stage 4 NHL. Any help appreciated.
Worried
My daughter, who has been cancer free for two years last month went to the doctor yesterday. He said she had pneumonia, and started her on antibiotics right away. He also ordered an xray and CT. He said that he is corncerned that the tumor might be back in her chest, but he did say that he might be pneumonia. We are so…
New here...I need advice for my dad's CNS Lymphoma treatment
I have been looking over the Primary CNS Lymphoma discussion board from the shadows for several months as my dad has been diagnosed with CNS lymphoma. He has had 3 treatments with DepoCyt via his Ommaya Reservior. These treatments lead to a headache the first day following treatment, then nausea & vomiting the second day…
Wind in my Hair
I went for a port flush last week. We live in the mountains and my clinic is at the top of a steep hill. It is always windy up there. It was especially windy that day and as I walked across the parking lot I could feel the breeze blowing my hair (which is a whopping 3 inches long now). It felt so good and I smiled as I…
A little help with a brother, please?
So I'm working through the anxiety and depression, and, although sometimes I'm in a tough place, I know it's because I'm transitioning from being/feeling poorly to being/feeling well, and that brings its own anxieties. As does Christmas but pass on..... My kid brother (aged 53) has always been a bit gloom-prone. I'd have…
3 Groin Lumps
Hello, I am new to this website and was hoping you all would be so kind as to give me some advice. I am a 25 year female who is in partial remission for papillary thyroid cancer with a possible new health problem. I was diagnosed with thyroid cancer in 2008 which was very aggressive and located on my vocal cord which is…
Gene Therapy
I'm sure most of you have read this by now but it's pretty cool stuff pertaining directly to most of us: http://www.nbcnews.com/health/gene-therapy-scores-big-wins-against-blood-cancers-2D11708740# (if link doesn't work then google: gene therapy blood cancer). My oncologist and others from Roswell are down at the New…
Diagnosed and not sure what to do...
Hi everyone! I was diagnosed with Hodgkin's Disease in August 2009. I remember the day like the back of my hand. I went through a lot of personal struggles after my diagnosis - I did not know where to turn to or who I could talk to. I wanted to share my fears with people, but I wanted to share them with people that…
Recent Scan Results....
Hi everyone! I got the results back from my scan on Friday. The same lymph nodes are still enlarged but stable. He said I have one somewhere in my right side that I think is new, but I'm not sure of the exact location. (My online chart's not allowing me in today so I don't know any specifics from the report) So we're still…
Diffuse large B cell lymphoma
I am not a cancer patient but a daughter of one looking for support and to hear stories from other patients. My mom was diagnosed with non hodgkins diffused large B cell lymphoma in February of this year. When we discovered the lump the doctor staged it as stage two and localized to the neck area only. She was given three…
Hello after a while - update
Hi friends. Life got really tough. Those who read my earlier posts and responded and consoled me, thank you! I believe in my latest post I updated you all that after the 10 days of the ICU and the month hospitalization (due to C-diff which lead to sepsis) at our local hospital my mom was diagnosed with a second cancer of…
Another Delay
Hi all! I just wanted everyone to know that I've encountered another delay before my stem cell transplant. Unfortunately, I wasn't able to collect enough stem cells last week. They want a minimum of 2 million and after a total of 7 days of total collecting, I only have 1.5 million. They are reformulating a plan on Monday…

Lymphoma (Hodgkin and Non-Hodgkin)

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