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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for November 2013

Is it cancer?
I know..we can't know until the biopsy, but, I hate waiting. Either way, I will deal with it. I just want to know, you know? On 11/5 I started having pain at the top of my thigh and groin. 2 days later the pain was still there and I noticed a bump, probably the size of a quarter. I had fevers and one night had chills. I…
Happy Thanksgiving Happy Hanukkah
Hello Dearhearts Wishing each and everyone of you a very Happy Thanksgiving and a very special Happy Hanukkah. I am so blessed and grateful for all of you. Keeping you close in my heart today... Huge hugs today and always Lisha
scared
I just had my port in today. I have a Ct, PET, and MUGA ordered for this week. Will the radiation/magnetic feilds be okay for my body to have with this port inside of me? Also concerned about my first chemo appointment. What will happen? How will it make me feel during? I know I need to stay positive and quit worrying, but…
The Power of Your Mind & Attitude
Throughout my diagnosis of Hodgkins, I never allowed myself to corrupt my mind with the thoughts of death or disease. Not only did I defeat it on the drawn up time fram, but I would play golf after 8 hour chemo sessions. It is trully amazing what tthe human mind can do. The minute you believe you can demolish any road…
Happy Thanksgiving
Seems like the holidays come faster every year - well for those of us over 50 . As usual with my family, Thanksgiving is three days away and we're not sure what we're doing yet but I'm certain some of us will converge somwhere - probably at my niece's in Virginia who has six children ranging from diaper age to senior in…
best things to eat to boost WBC?
Hello, I posted before about hair and ABVD trreatment, I have since shaved the rest of my hair that was left. I have stage 3A Hodgkins Lymphoma and I have had lots of complications from side effects of my ABVD treatment, ended up in hospital etc. I had pneumonia heading into this as well so my lungs are damaged anyways and…
pain in the neck….
Can anyone out there recommend therapies/ treatment for chronic neck pain due to radiation? Having difficulty holding my head up these days! Don't have much muscle in neck and shoulders and what is there isn't very strong. Seeing speech therapist for issues with vocal chords, also due to radiation, and she has noted the…
Mucositis - HELP
Hello everyone, i am 2/3 througnewish radiation to my face and have mucositis. It ia very painful and I was wondering if any of you have suggestions regarding how to deal with the pain. Thanks!
A Question
Hello. I am a member who came on here awhile ago. I have had two clean PET scans, one in December of 2012 and one in July of 2013. My next scan will be in January. I am in remission for Non-Hodgkins Lymphoma Diffuse B Cell. My last chemotherapy of RCHOP was October, 2012. I have a question to put out there. I had been…
The waiting game...
Hi everyone! I am so sorry for asking these questions since I know I'm not the only one asking them. I also know you guys can't diagnose anything. I just feel like I'm driving myself nuts and I felt like I needed to talk to someone who understands at least a little. About two months ago after a workout I got extremely out…
next steps
Thanks for everyone's advice on the biopsy issue. I have (finally) heard back from the ENT and they said that the ultrasound shows increased lymphadenopathy and a new submandibular node. They didn't mention anything about any nodes decreasing, which my PCP had said so not sure what's what there... Anway, they want to see…
Neulesta
Hi Everyone I am getting a Neulesta shot after each round of chemo and I am starting to develop serious headaches for about 7/10 days after my shot. Has anyone experienced this? Thanks
long term effects of radiation
Hi. Im new here. I'm 41 years old. I had global radiation for Hodgkins in 1989 when I was just 16. Then in 2009 had a double mastectomy for breast cancer. I am having more and more effects from the radiation and my docs don't seem to have a firm understanding of the long term effects of radiation. It started with the…
Hair loss with ABVD
I was diagnosed with Hodgkins Lymphoma stage 3A Oct 4 th 2013. I am currently on ABVD...minus the B because my lungs have not passed lung function test as I had pneumonia when this all started as well. They say however that won't effect anything. They also told me that I would lose my hair. I had hair down past the middle…
Thinking of Jim Today
Hi Jim, I know you are in Scanland today and wanted you to know I'm thinking about you. May the scan be with you! Prayers and hugs, Rocquie
Checking In...
First off I apologize to you guys for being away from the board for so many MONTHS :( I got back from my 2nd trip to the Mayo Clinic mid-July and the one year anniversary of losing my 38 year old brother to lung cancer came. I didn't handle that anniversary well & kind of shut down for awhile... I hope this finds all of…
My Mom's Lymphoma
Hey So, yeah... this sucks. New to this site and new to cancer really. I am usually very well-written, but I am sure this will come across as a rambling stream of thoughts, for which i apologize. I just need to vent to people that I know will understand. Well, today is Sunday 11/10. My mom is 72 and she was diagnosed w/…
Advise about scans while in remission
Hi everyone, I saw my oncologist yesterday. She reaffirmed my status as complete remission -- yay -- and then surprised me by telling me that I don't need to have any further scans. I was really surprised to hear that. I asked her about it and she told me that the latest best practice for my type of cancer - dlbcl/double…
Advise about scans while in remission
Hi everyone, I saw my oncologist yesterday. She reaffirmed my status as complete remission -- yay -- and then surprised me by telling me that I don't need to have any further scans. I was really surprised to hear that. I asked her about it and she told me that the latest best practice for my type of cancer - dlbcl/double…
New To Group
Hi everyone. I have been reading a lot of the posts on here for the last few days. I was diagnosed in September 2009 with Diffuse B cell NHL. I went in for rutine surgery to remove my ovaries and woke from surgery cut from hip to hip instead of the four one inch incisions that I was expecting. They had found that one of my…
Been awhile
Hi i know its been many months since i posted but dealing with zevalin and getting back on my feet took a bit longer than expected. Was nice of Merry and another sweet person who contacted me to see how i was, so i thought i would come here and say hello, been spending my time reading and writing some poems, i go for my…
Itchy Port
I had a Rituxan Maintenance infusion Monday. Since then, the skin over my port has been itching. I can remember it being a little itchy before and finding myself mindlessly scratching the area. But this is a rather maddening itch! My nurse uses an ethyl chloride spray to freeze the skin before she inserts the harpoon…
The Scan was with me!
All, It feels odd for me posting good news. The doctor said that the radiologists report shows one node with minor cancer activity. My doctor is qualitified to read PET and CT scans so he took a look at them too. He said the activity is minor and significantly less than the last PET scan. He feels that "it is on it's way…
Fun Question
You guys are great at coming up with interesting words and phrases (IE: Lymphomaversary). I figured I'd toss out an interesting challenge to everyone. Here's a little background: My bro-in-law texted me asking me about my schedule for this week. I told him that I had PET/CT scans earlier this week and am meeting with…
Early Remission DLCBL symptons?
Just over a week ago my hubby was given the all clear and told no chemo, no radiation and a 3 mo followup. CT scan, no PET. He had gained weight and felt well but then he had just came off his last taper of prednisone. A couple of days ago he was had fluid swishing around his abdomen and he ended up throwing up at 2:00am.…
Has anyone had rEPOCH cycles for DLBCL ?
Completed 6 5-day cycles of rEPOCH for Diffuse Large B-Cell Lymphoma earlier this year and have not met anyone with this treatment and I know there must be others with this experience. How are you doing and how long did it take you to start getting things together? Would appreciate your response(s).
Strange side effect of chemo...
This is a strange one...at least to me. Several weeks ago I completed 6 rounds of chemo for a large abdominal tumor (DBCL stage IV with the only other involvement being in the bone marrow). The post chemo CT scan shows me in full remission. My oncologist wants me to have 15 sessions of radiation starting next week to…
Out of energy
My brother had the transplant in June. He's 61, single. He had Mantle cell lymphoma. It's now November and he's on the phone crying that he has no energy to make food for himself. He's very depressed and lonely. I see him once a week or more and talk to him 3-4 times a day. He feels better after but he returns to a…
First Treatment
Hey everyone, My husband is scheduled to have his first treatment on Monday. He will be getting ABVD. We have been waiting for this, but as it gets closer, I'm becoming more nervous. We have not had our counseling with the nurse yet to walk us through the road map, that will be on Monday as well. As we were setting up all…
To Almost 60
What a nice long vacation you had. Sounds like you are glad to be home. I don't know many folks here now and it feels a bit strange. I wanted to say hello and find out how you are. Love, Mary

Lymphoma (Hodgkin and Non-Hodgkin)

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