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Not so good news from the Doctor
Hey guys! So I basically had to bug the Cancer Center to give me results from my MRI it was rather annoying. I should be able to recieve those results fairly quick. But i did recieve a call from my Doctor today. Saying that the mass on my left lymph node grew from a 1.5cm to a 3.4cm, and the new lump they found on my right…
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Mixed feelings now that my treatments are done.
After over two and a half years of going for radiation, r-chop and rituxan maintanence it feels strange to have no more treatments planned. I did get a good pet-scan in January so that is good news. I really have nothing to complain about and yet I feel unsure of what happens next. I was just curious if anybody else in…
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Hello Everyone,
How is everyone doing, I have not been here a while and thought I would say hello. I have not done my cat scan as of yet. I am to do another cat scan in April. So will see then. Was in the Hospital again for Diverticulitis attack for 3 days. I am also wondering how Donald 51 is, I have not heard and am wondering. I can not…
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Going home!
After 22 days in the hospital, today is the day-- I am being released back to the wild! Having a stem cell transplant has to be one of the most confusing & scary, yet uplifting things I have yet to experience in my life. Every last person that I have worked with here has overwhelmed me with kindness and help-- they have…
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News from my Dr appt Monday
Hey everyone! So my Doctor ended up finding another lump in my lymph nodes on the right side of my neck! :( So now he chose to go the next step up and get me an MRI, I had a CT scan on the 15 of Feb but it didn't come out the best because I am allergic to the dye in the contrast they give you. So I wasn't able to use that.…
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The Latest
Im back from doc appt, no need for transfusion at this time , im officially anemic, platelets are up a bit so she will see me in 2 weeks, she said if anything changes, or i dont feel "right" call her ASAP, she wont do any scans for another 2 months, she wants cell counts up before i can have a scan, was hoping to have one…
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Sad sad day
Hi All, Sadness and loss has hit me again. My dear sweet "other" mom has passed from lung cancer. She never smoked, ever. She fought so very hard and tried everything she could. We all thought that she would be okay. She is a second mom to me and the one I turned to this past year after losing my mom. I feel numb and too…
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So Sorry
Dear Old friends, and the new friends, I am so sorry you have to be here, First let me keep up updated on my NHL. I went to my oncologist for my 6 month visit. My blood work was excellent, and I feel good. I will be having another Pet Ct Scan in July 2013. This will tell the true story. My last CT Pet scan showed…
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Node swelling in uncommon areas!
just wanted to know if anyone has had any lymph nodes swelling in unusual places? My Dr is glad that I had the CT and that the surgon is on top of things, however he finds it odd that I have lump swelling unusually for glands...given my other sysmptoms it does feel that it could certainly be a lymphoma recurrence but of…
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Newly Diagnosed
Hello everyone, My name is Ciri, I am 31 years old and I was recently diagnosed with B-Cell Follicular Lymphoma. I am here for support. With hopes that someone who is going through the same thing can help me deal with it all. I have two little girls who are my world, Delcia who turns 8 next week and Ava who is 2. I am…
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Lump is still here, feels bigger
Hey everyone! Things have not changed much at all since I last posted. My doctor thought my mass was nothing to worry about and that it'll go away. It supposedly shrunk from my last ultra sound on my last check up a month ago. Now it feels like it is harder and bigger? Is been three weeks since I last saw the doctor at the…
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Supplement insurance with Social Security
Fairly certain that I won't be returning to work after my NHL. I am 65 so I will have Medicare, but know that I will need additional insurance. Can anyone suggest a good and affordable program? Thanks! Carol
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Enlarged Lymph Nodes have a surgical biopsy in 2 weeks!!!
I havent been diagnosed yet with cancer but they found two enlarged lymph nodes on my left side groin. I have to get surgery on the 21 of March and all im doing is worrying cause of what the docs have been telling me that im borderline cause my lymph nodes are 2.3 cm big. Im scared and terrifed cause i dont know what is…
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'Lower back pain' is it chemo side effects ?
I have a constant pain in my lower back started today after 12 days of my first ABVD. Does anyone have such pain.
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ANGIOIMMUNOBLASTIC T-CELL LYMPHOMA (AITL) -- have to make a serious decision regarding autologous st
Dear Members, I am new to this forum and would very much appreciate your take on my dilemma. My husband of 20 years, now 65 years old, whom I love from the depth of my being, has just gone through 6 cycles of CHOP chemotherapy and we're waiting for the result of the PET scan he had last Thursday. He has been, save for…
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The Wedding - Pictures ! additions , and just a few more !
Hi, I put some photos from the wedding on my expression page. They were all taken by various guests. The wedding weekend was wonderful. The wedding turned out better than I ever imagined. All I can say is that it was a grand affair with the most beautiful bride. I'll add more pictures as I get them. Thank you all for your…
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thanks
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CT Scan today - other information
I had my CT scan today and I'm happy to report I'm still NED! The oncologist was very encouraged and what a relief! I had scanxiety bad this time. I took Ativan the last two nights so I could sleep. While there I asked him some other questions: SHINGLES VACCINE: Generally he does NOT recommend because: 1. It was not tested…
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To all NLPHL out there, does it relapse for you, Is ST second line of defense?
I am currently been treated for NLPHL on my 1st cycle of ABVD out of 6 cycles. It seems this kind of lymphoma is highly relapsing compare ClassicHL. Should I praise for a relapse . Per my Oncolfist steam cell Transplant is the second line of defense . Appreciate your inputs.
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The Latest
Just got home from doc apt, platelets have gone up a bit but red cell count is going down, if it continues going down will need red blood transfusion, will know next week after labs, also doc said i have thrush, lovely, have to take it easy and dont exert myself due to the light headedness i been having. the last…
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My doctor seems crazy =/
Had a follow up today for my Fav Doctor and he examined my glands on neck and groin his words were ( the glands are too small to be lymphoma ) he gave me some sheet of paper and said he thinks i have Bornholm Disease, due to blood work chest xray and utrasound all coming back fine =/ im more confused then ever he said that…
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Return to Work
I am so conflicted. I was diagonised with stage 4 NHL with bone marrow involement and orbital cancer. Went through 8 harsh chemo, and 17 radiation treatments. Had my last PET Friday and 4 cat scans the week before. My radialogist told me that my scans looked good and he had a good feeling about my PET. To say the least I…
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Return to Work
I am so conflicted. I was diagonised with stage 4 NHL with bone marrow involement and orbital cancer. Went through 8 harsh chemo, and 17 radiation treatments. Had my last PET Friday and 4 cat scans the week before. My radialogist told me that my scans looked good and he had a good feeling about my PET. To say the least I…
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checking in
Hi everybody. Just thought I'd drop in to say sorry for not posting lately. I am fine but been fighting bronchitis and a horrible cough that I just cannot shake. It's exhausting and by the end of the day after talking on the phone all day I am ready to pass out early. I have a really bad habit of reading in bed and falling…
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snafu
I just posted a reply to epicc concerning her mother and when I went back to check it the entire thread was missing. I am sure it will reappear some time or another. I think the site is run by a bunch of Democrats.
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Depression
My mom has been in the hospital for the past 3 weeks. She was admitted with a blood infection and her blood pressure dropped very low. She was in ICU for a few days then back on the cancer floor. A few days after she was back in the Icu. The antibiotics she was on caused some problems with breathing and kidneys. She is now…
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First post
Hi all, My name is Eric Edwards, 55 years old, male, located near Albany, NY, and first and foremost I'd like to thank all of you for your timely and supportive posts. I'm also bipolar, suffer from major depressive disorder, controlled hypertension, high cholesterol, borderline but not diabetic, GERD, and am a recovering…
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Retuxan
It's been a while since I posted...my husband is over half way done with his 2 years maintenance treatments of Retuxan infusions. I have a few questions... Does any one who is getting Retuxan have any side effects such as nerves stomach and cloudy head feeling... just feeling really crappy and irritable. Also does anyone…