Lymphoma (Hodgkin and Non-Hodgkin)
Discussion List
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Tips for treatment
Hello Brethren Blood Cancer People, My name is Michael, and I am a survivor of ALL - acute lymphoblastic leukemia. It isnt the very same as HD, but many similarities. I was diagnosed at 21 yrs. I am now 29 years old and have been in remission for almost 7 years. In fact, this June 6th will be my 8th anniversary of my…
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Radiation
my son is 25 years old and was diagnoised in Jan 2002, with hodgkins, he was in stage v, after 6 months of ABVD, he was in remission, but then two months later the cancer was back, In march 11, 2003, he indured a stem cell rescue but the cancer was still there, in May 2003 he started 25 treatments of radiation so far he…
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Large B-cell lymphoma
HI! My dad is 63 years old today, and last week was diagnosed with NHL Large b-cell lymphoma in stage 3-4. He is currently on CHOP and Rituxin. i was just wondering if there was anyone his age that has survived this specific type of lymphoma.....and any advice on how we can get it into remission fast? :) thanks, I'm just…
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Radiation nerve damage
Was diagnosed with lymphoma of the bone in my left tibia 9 months ago. Had 4 chemo sessions and 14 radiation treatments, ending 01/21/03. Have had pain and swelling ever since in my leg and foot. The foot pain is becoming crippling - the foot is numb on the outside but painfull in bed at night and hurts to walk on it…
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Stay Positive
I was diagnosed in June of 2001 with NHL.I went through chop,and had the BMT done.I was down to 134 lbs,I now weigh 190 lbs.I have had 5 cat scans since treatment and the Dr has told me everything is fine.I still get stinkin thinkin at times any little ache upsets me.I just take it a day at a time stay positive and pray to…
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CNS Lymphoma--long-term cognitive losses
My mom (only 54 years old) has Primary Central Nervous System Lymphoma. She has undergone various chemo treatments for over three years. Now, there is no sign of the tumor, but she is suffering great losses due to the treatment. In the last 6 months my mom's congnitive abilities have drastically declined. She has…
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Itching and Hodgkin's Disease (long)
Back in 2001 I began itching without reason. I eventually went to my general doctor who referred me to an allergy doctor. After allergy test and multiple visits without solving my itching problem I asked the allergy doctor about a gland in my neck that I felt getting bigger than normal. He told me there were no glands in…
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There is light at the end of the tunnel
For those of you undergoing treatments right now for NHL, it can get better. I just celebrated my 8th anniversary of my autologous bone marrow treatment. Yes, I have some residuals but I focus on the positives of life and refuse to dwell on my *problems*. I was diagnosed in 1994 with stage 4 T-Cell lymphoma. Spent a month…
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NHL survivor question
Hi, can anyone answer these questions? I know that John Cullen (professional hockey player) and LaShawn Johnson (professional football player) both were diagnosed with NHL and went through treatments then returned to their sports career. Do you know the types of NHL that they had? Also, Jimmy Carter's press secretary…
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new diagnosis mom NHL
76 yr old mom progressed to spine and in bone any thing they can do? She was rushed today to hospital She cannot get out of bed?
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diffuse large b cell primary mediastinal
Hi, My husband (40 yrs old) is battling dlbc primarily mediastinal NHL. He has gone through 6 treatments of chop + rituxan and appears to have a complete response. He goes back to the doctor for a PET scan and an MRI in late May. Is there anyone out there with a similar diagnosis? Would you share your experience? Thank…
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First chemo treatment - is this normal?
Hi, I just had my first ABVD treatment yesterday. I was extremely scared and worried about all the side-effects. The treatment went smoothly and I began waiting for the sickness or effects to come. However, I still feel normal the day after treatment. I feel like the chemo isn't doing its job if I'm not getting any…
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Diagnosed yesterday
Hi, I'm 24 years old and was diagnosed with HD yesterday. My staging isn't complete. I'm having a PET scan and CT scan next week to determine exactly what stage. My doctor has mentioned the Stanford V or ABVD treatment. I would love any thoughts or insights you have about either treatment. Thanks, Ilaina
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31 year old w/ T Cell Lymphoma
Hi there my fiance is also 31 years old and was diagnosed 12-11-02 with tcell lymphoma, he had 2 tumors, one in his chest, and one in his neck. He received CHOP (6 rounds) and was "cured"...both tumors were 100% gone. Now he is back in the hospital, (May 4) and we found out the lymphoma has spread to the lining in his…
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Anger is a good thing!
Can anyone relate to this message? I am 23 years old and just finished my 12 ABVD treatments and will start radiation. I have an excellent job and make good money. I still finished college even though I have this crappy disease and worked full time while going through treatment. We all know there is a lot of pain and…
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resistant NHL
My husband was diagnosed last Aug, a week after we bought a house. The onc sounded positive and said he'd be staged, treated, and monitored. During the first week he was hospitalized with a chest tube, chemo started and I got another oncologist. He has gone through CHOP, and the tumor still did not shrink significantly. We…
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Stem Cell Transplants
My husband was just rediagnosed with Hodgkins after 2 years. Doctors are recommending a stem cell transplant. I have seen the definitions of both the Autologous and Allogeneic Transplants. Can anyone tell me the advantages of each? We also have my 2 year old son's Umbillical Cord Stem Cells but have been told that they are…
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Stem Cell Transplant Treatment Centers
My husband was diagnosed in April 2001. After Stanford V, Radiation and a Spleenectomy, he was in remission. We just heard last week that it is back and they are recommending a Autologous Stem Cell Transplant. Has anyone shopped around at different treatment centers? And if so, who do you recommend?
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EPOCH Treatment for NHL
Has anyone been part of a clinical trial for NHL patients and treated w/EPOCH (as opposed to the more traditional - CHOP)? I need your feedback. Thank you.