I need at least one survivor of AML monosomy 7 inversion 3
Hi all, My brother is only 29 years old and was diagnosed last year with AML monosomy 7 inversion 3. His doctor told him there is nothing left and he refuses to see any other doctors. She said he has a 0% chance of living and nothing will work. He has been battling for 16 months. He has decided to stop treatment but he is…
Costs of the CLL drug Imbruvica
I was diagnosed with CLL 5 years ago and for the last 2 years I’ve been on a drug called Imbruvica. It has worked wonders on my white cell count and I’m doing great on the drug so far. Unfortunately, I will be going on Medicare soon and I just found out the cost of the drug thru a part D plan! It’s $150,000 a year! I’m…
Graft vs Host Disease
Hi, I'd be interested in hearing from people who are experiencing this, particularl of the mouth. Treatments haven't been successful and research tells me there is no cure and that I'm at a significant risk for oral cancer. Thoughts? Advice? Experineces?
New to this adventure
Hi there, I was recently diagnosed with leukemia, and still dumb founded about it. I'm in the hospital trying to get my blood numbers better so I can start chemo. 9 years ago I had a rare and aggressive small cell uterine cancer and the treatments that saved my life now have resulted in leukemia. I'm scared about going…