my daughters fathers died of this kind of leukemia he was first told he had a flu and then thought he was having a heart attack and was taken to the hospital where he was taken to tisch hosp in manhattan 5 weeks later he died ho come all these other people live so much longer i dont understand they said they got rid of the…
Gleevec after meals??
My fiance has been a remission CML patient for the past 5 years, recently he showed signs of relapse. About 0.03%, doctor feels its due to his irregular schedule of taking gleevec and not following the medicine instructions of taking it an hour after meals. Is this common? Should we been concern that is a sign of the…
Persistent side effects from BMT for AML
I am over 10 months since my BMT for AML. My donor is from Europe. Neither of my siblings was close to a match. I have done very well over all. Surviving the inductions (2) and consolidation was more difficult that getting through the transplant, although the total body irradiation was not fun at all. I had 2 episodes of…
CLL w/transformation to Large Diffuse B Cell Lymphoma
My husband was diagnosed last October with CLL by February of this year it has transformed to Large Diffuse B Cell Lymphoma. He just finished 6 rounds of R-Chop at the end of June. The transformation is a rare thing. Has anyone had this experience? He has testing today to re-stage the lymphoma and then we will see what the…
Diagnosed with APL
Hey all, So my name is Nick and I am 28 years old. On June 11 I was diagnosed with APL leukemia. This was a shock to me and my family as this was something that was not even on our radar. I spent 4 1/2 weeks in induction chemotherapy, then was released last week, only to have a seizure from the Keflex and go back into the…
Chronic and Severe Anemia in 2 year old (please read if you have info)
I posted a question regarding severe and chronic anemia in a 2 year old under childhood cancers. If you might be of help, please check out my post and respond.
my sister in law was diagnosed with AML in December, 6 months after my husband, her brother, was diagnosed with stage 4 NSCLC. She has had two rounds of chemotherapy administered 24/7. The doctor is now telling her that he has tried all the chemo he can on her and her only option is a clinical trial or go home and they…
Bone marrow transplant for AML
I just want to talk with others who have had bone marrow transplants for AML.
To Twinkle 100 and others
My daughter was dx with ALL in November 2011. Horrible journey, she is just out of a serious sepsis infection that almost killed her. Do you have any information on how to avoid these infections in the future? Also I must commend you for being kind and taking the time to educate us. Fortunately, my daughter had many BMB…
Myelofibrosis and CML 190
My husband Joe has both of these rare blood marrow cancers. Anyone know about Leukemia 190? I can't find much about it. My husband is on Gleevec and it decreased the size of the spleen, but now it is back to its original size. Any comments about bone marrow transplants? They have suggested this at some point in time. So…