Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines.
Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide.
Other areas of CSN are restricted to members only and cannot be found by search engines.
Archives for September 2010
Recent CLL Diagnosis
I am a 60 year old man who recently was diagnosed with CLL. It was found thru routine bloodwork preceding a physical exam. I have an oncologist (something I did not think I would have 2 weeks ago) and she has staged it as Stage II with some symptoms (enlarged nodes and spleen, weight loss, fatigue). She wants to treat it…
Myelofibrosis turning into AML. Having a hard time with whether or not to do stem cell transplant!
My father was diagnosed with myelofibrosis 25 years ago. He never required any treatment for it, since he never had any symptoms or problems. In August of 2009 we found out through routine blood work that it had turned into AML. He had two rounds of induction chemo then did consolidation. He was in remission for 10 months,…
ALL- how do you tell "how well" it's going?
Hi everyone. My brother is 23 years old and was diagnosed with Acute Lymphoblastic Leukemia and Non-Hodgkins Lymphoma about a month and a half ago. At that time, they only gave him one to three months because of how far the disease had progressed. We started chemotherapy the next day. The doctors have really been amazed…
Newly AML Diagnosed 08/27/2010
My name is Cassandra, I was diagnosed on 08/27 of this year. Been thru the week of Chemo (3 & 7). I am just writing to see if there is anyone out there that has been thru this that can share. I was told that my bm biopsy came back as Leukemia with dysplasia. They subtype I was told didn’t fit in with the traditional…
New to the boards and recently AML diagnosis
Hi to all, I am enjoying reading the posts. It's emotional and at the same time supportive to read other leukies' stories. It still amazes me how many people have this disease. I was diagnosed May 20, 2010 with AML 2. I was put in 100% remission after 9 weeks. I spent 27 days in the hospital for induction therapy. I have…
cancer treatment centers of america
anyone have experience with these hospitals
Looking to hear from APL long-term survivors
Hi there, I just finished induction for APL and have been in the hospital for the last 6 weeks. It was pretty bad. The doctors tell me that the outcomes for APL are good but I could really benefit from hearing from some long-term survivors of this right now to give me a boost. Knowing there is some light at the end of…
Diagnosed w/APL Eff May '09--Arsenic Trioxide is HORRIBLE
I'm 60 yrs old diagnosed May '09 w/APL; in hospital 2-1/2 months last Summer. Do chemo MWFs each wk for 30 dayz at a time (over 8-11 wks). Can't do ATRA, so doing Arsenic Trioxide. Anyone out there doing this specific 'chemo' treatment & what are your side effects? Thanx.