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NED!!!
It's Ned and hoping to see many more//Thank for your support and positive vibes around.
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Lumps in abdomen UPDATE
On my 4 1/2 year colon cancer ct scan and 2 1/2 year kidney cancer ct scan.....they have found 2 small lumps on the right hand side of abdomen. They are only 1/2 millileter so to small to biopsy at the moment. I will be having another scan in February followed by a biopsy if they are big enough then. This has really thrown…
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Outpatient nephrectomy?
Good morning, I have asked several questions in this forum and received clear and concise answers which I appreciate. I am seeing my surgeon this week for an upcoming nephrectomy. This will be a robotic procedure. He is going to attempt a partial, but because I have had two ablations with resulting scar tissue, he doesn't…
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Active Surveilance Follow-ups with Doc or Assistant (PA orNP)
Hi, Im helping my mother deal with her small renal mass under Active Surveilance. Her Doctor, a kidney oncologist/surgeon, is having his PA meet with us for all follow ups. We asked to meet with the doctor but were rebuffed by the secretary saying it was his policy to have the PA do the follow-ups. Seems somewhat calous to…
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Cystic Renal Masses: How do they fit into the current management of kidney cancer in 2020?
Hi all, As cystic Renal Masses are less common than solid masses. It is not easy to find useful information online and even from our Urologist. I have found this video by Dr. Phillip Pierorazio is an Associate Professor of Urology and Oncology in the Brady Urological Institute at Johns Hopkins University. The video talks…
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questions about process
I have a "friend" who has surgery done very recently from September 17, 2020, and it appears nothing has grown back for at least one month. Apparently, he has a hard time sitting still for long periods of time. What can he do to minimize this pain? He feels scared because he doesn't know how to sit still. He is already…
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Exercise - afraid to push it
Looking for some advice. 8 weeks ago I had my right kidney removed. I am 65 year old male, was in pretty good shape going into surgery. Exercised pretty regularly, walked everyday, did some biking, yoga etc. Haven't experienced real pain, just some discomfort now and again. For the first month, I did nothing except…
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Uncle Ned, I miss you...
Round 1 was 8 years ago I had my kidney and 7 cm Grade 4 tumor removed. I was told I was NED. Six month later, Round 2, there was a solitary met on my lung and part of a lung removed. For the last 7 years ( 2645 days), there was no evidence of disease. My Oncologist had said, the risk of CT is now greater than the risk of…
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New here
I'm new here, so bare with me. I'm not super tech savvy. Last week I was in the hospital for a bowel obstruction. Had a cat scan with contrast done, and it found cysts on my kindeys. One I was aware of, and in the process of getting a referral to see a Nephrologist for. I was surprised when the surgeon had told me there…
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Question to ask
i had my scans he said I was Ned but then he said there was a small spot on my kidney he believes it's scar tissues and not to worry but of course I worry I question him about it he said kidney looks fine and blood work looks great I don't know what to do
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I was Ned today
Doctor said he seen no sign of cancer still got to go every three months for two years
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Here we go again (Update)
Well hello my friends at CSN, I wanted to give an update, I was supposed to have surgery August 7th, but had to be rescheduled to Oct 2nd, thank you COVID... This past Friday Oct 2nd I had my second partial nephrectomy, this time it was my left kidney. I spent one night in the hospital, three nights in an Airbnb, and I…
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Checking In After Long Absence
Haven't been here in so long! Decided to stop in and see how my RCC family is doing. Missed you guys. So many new people! Will catch you all up on me. I had CT scans earlier this week and I'm still NED. I get scans and blood work every 3 months. It's been 5 1/2 years since my adrenal met and adrenalectomy. I'm very…