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Five Years NED
Hello everyone, I haven't posted here for a while. I am dealing with another not cancer related issue of my life which takes all my strength, unfortunately I haven't been able to handle it yet, but I'm doing my best to finally find a way. Because of that I'm dealing with on and off depression but meanwhile trying hard to…
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Todd?
Hello, haven't heard from Todd for a while, wonder how is he... Did anyone heard about him?
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Votrient
I have been on Votrient for 21 months. My kidney cancer had spread into my lung before we caught it. I had both kidney and lung surgery 6 weeks apart. Has any one had cancer come back on votrient? My hair turnd all white. i have some dark hair return to my eyebrows and mustashe..
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Scans coming up in October. Scared.
So my surgery follow up scans are coming up in October. I'm really scared. I've kept my lifestyle, including the occasional drink or two. Just learned that a good friend is battling Type IV liver cancer and has not given that much to live. I'm depressed. I'm worried. I'm not sleeping. :-\ :-\
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HLRCC or type 2 papillary??
Hi, I’m new and looking to see if there is anyone else with HLRCC or type 2 papillary kidney cancer on this forum. It’s rare and difficult to find research, information, or others to connect with for advice so I thought I’d give this a try. I had surgery 3.5 years ago to remove tumor, kidney, adrenal gland, and part of…
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Mets to the bone, how do you know?
So I am wondering what are the signs and symptoms for mets to the bone? What have any of you experienced first hand? I had my kidney removed back in November and since then had clear scans of chest and abdomen back in June. I have had some aches and pains in my Left shin, Left Thigh and Right hip. They aren't bad pain wise…
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Metastasis to spine now
Hi, I had bad news last Thursday. After hurting in lower back, I went to doctor thinking I had bladder infection, so the doctor sent me over for CT scan , it showed a spot on my lower spine L5. Then sent over to get MRI and it showed 3.8 x 3 cm mass. Four different doctors said that day it looked like kidney cancer. The…
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Two year scans coming up
Hi All! Been about a year since I have been on. I do that for my own sanity and anxiety, but boy it's good to see so many of you still active and posting and seem to be doing well! I am of course nervous for my 2 year scans on Friday and thought I'd check in and see how everyone was doing and look for some words of…
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12 Months After Stopping Immunotherapy
I had another one of my three-monthly CT scans last week, 12 months after stopping the immunotherapy I had been receiving for three years. Still no signs of anything, and my bloods are all good, as is my life in general. Going on to six-monthly scans now. Regards, Fred
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Looking doctor recommendation
Hey all it been a minute. Good to read post of the same faithful poster. You are amazing. I commend you all. I have been busy with a new job and daughter in competition dance. But I do read often. I am looking for recommendation on a new urologist oncology specializing RCC In the Cincinnati, Dayton, and Columbus Ohio area.…
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How do you not freak out, and where do you go...
So on July 18tI had the left kidney removed and it want fine. I did have a history of High BP but they always handled it. This time it waas not handled well and that evening my heart went into AFIB. The docs freaked and gave me a very high dose of Amiodarone 200 mg 3 X day and Eliquis 2.5 mil 2 x day. I went home with…
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Mayo Clinic visit coming up
Hi again, I'll be seeing Dr. Stephen Boorjian in Rochester, just wondering if anyone here has seen him and had a (hopefully) good experience. Thanks, Susan
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NED!
Got the call from my doc that my annual CT and Chest X-Ray was negative. 1 1/2 years since my surgery and a year since last summer's scan. Hope to keep going! Cy
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Victoria Trahan
Hi, I am from Lousisana. Me and my husband is going through a custody battle with his ex girlfriend and they have two kids together and when they broke up thats when their little boy had surgery and she never told him anything the doctor said or what was is going with their boy. now that she is court order give us…
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Might be back
It's been quite awhile since I checked in. I had a nephrectomy for rcc over seven years ago. A month or so ago, I was feeling fatigued and had the Dr order blood work which showed my homoglobin down at 8, so she ordered a CT scan as well as upper and lower GI checks. The CT scan came back showing possibly some masses in…
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Complex cyst follow-up
My complex left upper-pole renal cyst that has been monitored for a few years has grown from 4.6 cm to 5.6 cm since last October. I have been doing monitoring near my home in Chicago and sending the reports/discs to the Mayo Clinic, and they called today that they need to see me there for an MRI on their equipment and…
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Canserversery
This week marks 17 years NED (except for the Prostate) and 76 years young. Hope I can get another 17 years out of the Prostate. Here's something from when I was a kid. https://www.facebook.com/100000340756148/videos/795664280454923/ icemantoo
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Complex cyst question
Hello, I have had a complex cyst in my left kidney that has been watched for about 4 years, my last MRI was October of last year, so I'm due for another scan within the next few months. The MRI report from last year stated: Multilobulated 4.5 x 3.6 cm cyst in the upper pole left kidney with a couple of thin internal…