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29 years old, mother of 6, 4.5 cm lesion.
Hi, I don't know if I belong in this area, I am just lost on where else to go. I have had ct and ultrasound done where they found a 4.5 cm mass on my right upper pole. Rim like calcification and was also told I have sponge kidney in the kidney as well. I went in for pain, and was also told my galbladder has polyps and I…
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I think maybe it's a plot, or...?
Tell people who "haven't been there" that you've got any kind of cancer, kidney or otherwise, and you generally get the "Oh, you poor thing" look. They want to bring you casseroles, drive you to your appointments, come by and read uplifting poetry (or Chicken Soup books) to you. Those who are on your care team are…
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Bruising
Did anyone here have bruising on their sides after surgery? My husband is on blood thinners and I'm wondering if this is some bleeding under the skin or if it's normal. Has anyone who is not on blood thinners had this?
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Thank you all but need your help
Thank you all so much ....you have no idea what you have done for me in the past few days. I have not felt right for the last two months with pains and heart palpitations and A slight pain in my side.. I went to Accident and Emergency twice who checked my bloods and heart and said I was fine... then trips to Gp.. I have a…
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Post surgery treatment
I haven't been on here in a while. Our life has been a whirlwind since my husband's diagnoses of kidney cancer. I read everyone's posts and I do find comfort that we are not alone in this battle. My husband was diagnosed with Stage IV Renal Cell Carcinoma in March and had a left nephrectomy April 24th. He had a solitary…
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Nausea
So I'm going into my 4th month of Cabo and nausea has become my biggest problem. I can't keep any food down. Even when I have nothing in my stomach I'm sick as a dog. Doctor told me to stop the Cabo for 3 days to see if I feel better. Well today is day one off of it and I have gotten sick twice. I've lost close to ten…
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Took a little break
I just wanted to say hi to everyone! I took a break for a bit to enjoy my summer with my kiddo while he was out of school. Things are settling back to normal so I'm back with lots of reading and catching up to do! Hope you are all well!
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New to forum, new diagnosis need help for post surgery
Hello, I have been reading here for just a short while, my husband was just diagnosed 2 weeks ago with 7 cm x 3 cm x3 cm kidney tumor. Dr thinks it is RCC but from position may be TCC. Supposedly confined to kidney to the best of the Dr's ability to tell with ct scans. He is scheduled for davinci robotic nephrectomy in 2…
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just had open partial nephrectomy
thank you all for preparing me? I can barely stay awake.
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Length of surgery, stress!
Hey everyone - I'm still processing this whole thing (I have a 4cm on left kidney, back side that was found a few weeks ago by accident while looking for a reason for stomach pains). But today I got my surgery date of Sept 26. My surgeon was playing it like it's not a big deal, no worries, it's the smallest that we usually…
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Chromophobe RCC
This is my first post, although I have gained a lot of useful info from everyone else's posts over the past few months. I have my 2nd scan (6 months post-op) scheduled for next Monday. My first scan was clear, and for that I am very thankful. I pray the same will be true with the next one. My question is this - does anyone…
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1st set of scans this week.
Thursday is our 1st set of scans after my wifes partial back in March. Scanxiety is there but for some reason we both feel really well about it.....cautiously optimistic. Let me back up a bit.......we are seeing our Oncologist Thursday who will be ordering the scans. It may be next week, not 100% sure yet but the sooner…
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It's Our Turn...Surgery Today!
My husband, Mike, is in surgery right now. I want to thank everyone here for your support the last three months. I truly appreciate it. You have all helped me tremendously. I'm scared, but I'm relieved it's finally here. It's going to be a long day.
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cryoablation pain
Had a cryoablation for a 5 cm tumor 5 weeks ago still experiencing swelling and pain and burning nerve pain too. How long does this take to go away. Can do nothing but read and sleep
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Pathology results
I had my first post PN follow up. The results showed a 4cm clear cell papillary renal cell carcinoma (T1a NX) Fuhrman grade 2. The said that these are usually a less aggressive type of renal cancer. From what I've read, this seems to be a pretty "good" kind of renal cancer to get. He wants to do follow up scans at 3,6 & 12…
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Sexual performance after removing 1 kidney
HI, This is a very personal topic for me and difficult to talk about. I am a 54 year old man in decent shape and 90 deys ago had my left kidney removed with a large tumor. Now I find my self having sexual performance issues. Difficulty keeping an errection and taking longer or inabilty to climax. Can anyone shed some light…
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Next steps
Clear cell renal cell carcinoma per surgeon was contained to kidney. Tumor was something like 6cm. Saw oncology yesterday and heading for a brain MRI and PET scan. Hubby doesn't ask questions so I don't know why he is having a brain scan!! So nervous. I first was excited to hear it was contained. Now terrified something is…
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I guess I've gotten spoiled....
OK, maybe I took one of the longer journeys between getting the "mass on kidney" diagnosis, getting it removed, and getting my pathology report. But still, I'm delighted that I saw some really awesome medical people. You might even say I'm spoiled. While all the kidney drama was unfolding, I pretty much ignored taking care…
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White lines on nails
Does anyone have white lines on their toenails? Would be interested in hearing from you!
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Does hydrocortisone reduce nivolumab's effectiveness?
My wife has been prescribed nivolumab for her kidney cancer by her oncologist. The nivolumab has affected her thyroid and adrenal glands. So, her endocrinologist has prescribed hydrocortisone to address the gland insufficiency. drugs.com says hydrocortisone works by decreasing or preventing tissues from responding to…
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First appointment one week from PN
I had my PN last Thursday. I get my pathology report on Friday at my post op appointment. What questions should I ask? I'm feeling pretty good. I just get very tired every 3-4 hours and need to lay down. The pain has been pretty manageable with medication. I haven't taken anything today and I'm feeling a little sore but…
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Sarcomatoid chromophobe renal cell carcinoma
My partner had radical nephrectomy on 26th May 17cm tumor in left kidney. We were told renell cell carcinoma however when they did the pathology they said it wasn't and it is Sarcomatoid chromophobe renal cell carcinoma. They said aggressive rare and prepare for devastation. He's only 41 with our young children. Worst…
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scalp metastasis
Hello. Do any of you have metastasis to the scalp/skin? My husband had three lesions on his scalp before we even knew his RCC had returned. Discovered lung nodules at his five year check up. IL 2, he hated it and it didn't work anyway. Votrient for 9 months....the scalp noduels went away and his disease stabelized. We…
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MRI Adventure
I needed a MRI recently. During the MRI, while in the "tube", I was daydreaming about sci-fi and space travel -- influenced by the sounds and pulse of the MRI machine. Then the power went out. Blackness and quiet -- it was like it got teleported into space!! Kinda cool.
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TNM Staging Report Confusion
HI! I got my pathology report last week. My Doctor said everying is OK and prognosis is good. Just my blood count is quite low but not concern. The reason my blood count is low as i suffered bleeding on the 2 weeks after the LPN surgical (tumor 4 cm on the left kidney) . I lost quite a lot of blood during urinating. But…
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Questions I hope to get some answers
Hi guys, haven't been on for a few weeks . Took a trip across country with my daughter, so inlaw and grandson to Disneyland. Had a great time. Doctor gave me a week off of Cabo while I was away, so that was good. Anyway to my newest questions. Before I went away I went to ER for abdominal pain. I had to follow up with a…
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Just diagnosed..
I'm another newby - Just got diagnosed Wednesday, they found a 4cm tumor on my left kidney. I've been reading through many of your stories, and I find it interesting that many of you went in to get checked for stomach pain, and ended up finding out you had kidney cancer. That's exactly what happened to me - they gave me…
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Cancer center visit to Moffitt
My three month scan was moved up because I was as yellow as tweety bird. Scans showed no new tumors in liver, only in lungs that stayed the same except one doubled in size to 2 cm. Not bad considering off sutent four months due to liver. I had five large tumors are in my liver. They radio emblized my liver in January which…
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Mixed News
Well I had my annual check today with doctors. I got the results of labs and of ultrasound and chest xray. US and chest xray normal no cause for concern however my labs showed slight hematurua in urine culture. I have had this intermittently, just a trace for a couple of years now but this time doc wants to have an…