-
I went!
I made it to the concert! Sat down about 1/2 the time. Man I am gonna be sore tomorrow, I can feel it now. It didn't help we got stuck in the parking garage for 45 minutes after the concert was done. I'm gonna try and sleep for now thanks for all the input! Kerry
-
Newly Diagnosed and Scared...
Hello all, newly diagnosed with renal cancer and will be having a bone scan and chest ct to see if it has spread into my bones as my blood work was concerning to doctor in one area. My kidney function is good and I will be having open partial nephrectomy surgery within next few weeks. Anyone on here have open partial…
-
Partial mri?
Anyone ever heard of this? I had my first 6 month followup today at the scan center. Got the disk, went home and noticed it says "partial"MRI on the disk label. Last one I had before my surgery didn't say that. By the time I got home Dr office was closed to ask about it. Did a quick Google search and don't see anything…
-
Questions
Hi everyone. New to boards and wondering if I should worry about MRI results. First off I have Polycystic Kidney Disease stage 3B, dx when I was 30. I also have cysts in the liver. I'm curious about the size of the cyst because everything I read seems to say anything over 4cm should be removed. I can feel the cyst along…
-
Am I nuts...
Hi everyone! My aunt and uncle have offered us tickets to the Paul McCartney concert. It's on Tuesday and 1 day shy of being 6 weeks post op. I really want to go but not sure if I'm ready to do something that strenous yet Or more that I will wilt before the concert ends. Would you go? Kerry
-
Another Wednesday, another scan...
I've been on Nivomulab since January. Love it! No side effects worth talking about (aint I lucky?). Last time they looked, in March the tumours had reduced in size. I'm getting superstitious. No side effects and tumour reduction sounds too good to be true. Not that I'd be complaining or anything. Best thing is, after doing…
-
Scar pain
Wondering if anyone with a partial robotic lap nephrectomy has pain on/in the little scars? The one hurts and has a little bump on it too. It's been 6 months and just started about 2 weeks ago. Hurts when sitting get back it's the one just below my rib. I'll ask Dr in two weeks. I'm going for my first 6 month mri follow up…
-
Hi Everyone
Its been awhile since I have been on here checking on everyone, but I have been praying for you all. I had colonscopy and EGD done in May and everthing looks ok had 5 polyps removed and all was adenomas pre cancerous polyps. SOme cell changes in stomach was found. Still no new biopsies on thryoid masses, but I go to new…
-
papillary kidney cancer.
hi......i am new in the group...... im am not so good writing,exuse me,im am from denmark,but i will try. it looks like everybody know eachothers here and writing to eachother....i hope some will write to me.. i was diagnosed last year at one month before i was 41 with kidney cancer,type papillary renal cell ,type 1.stage…
-
39 with renal cancer?
A couple of months ago an ultrasound was done on my gallbladder and a 3.7 cm mass was found on my kidney. Last week I had a CT scan and was told it was a solid mass and most likely cancer. I've had past ultrasounds that were fine. I have seen two Urologists. One wants to schedule surgery and one wants to do a MRI followed…
-
Nephrectomy complete; waiting on next steps
Hello everyone, I am 29 years old and was diagnosed with Stage IV RCC in May after an ER visit discovered a 13 cm tumor. Had a radical nephrectomy in June - removed right kidney, right adrenal gland, some surrounding lymph nodes and part of my IVC. I am recovering pretty well from the neph and am having a CT, MRIs and a…
-
Stent to help cough
Hope to start my new chemo, Inylta, on friday. Had CAT scan last week and Sutent not working. They found that here was some fluid on my left lungs and they hve to watch it ???????? I have a tumor in my wind pipe and last March had 15 radiation treatments to shrink it but it did not help. I have had a constant.dry cough…
-
So tired...
Hi fellow friends! quick question...is it normal for so tired and have no energy after 4-5 after a partial neph? I mean I wake up and feel pretty good and then about half way through the day I am spent. I'm a teacher and start back to work in 2 weeks. A little nervous since I teach kiddos with special needs. They have…
-
Scatterbrained
Hi everyone, I'm 5 weeks out as of tomorrow and I am finally out and about doing more things. Still using the auto carts in the stores when I start feeling tired. I do have a question though. I feel like I forget things easily. Someone may tell me something in the morning and by later in the day I totally forgot what they…
-
Just venting
I've been on Votrient and NED for a two and half years. During that time I've secured my dream job with NASA and have been enjoying life. My PET/CT scan last month showed some activity in a lymph node in my chest. Now I've got tender auxililary lymph nodes under my arms. Every new ache and pain gives me question. I can…
-
And now it starts
My wife is wonderful. Even with insurance the cabozantinib costs about a $1,000 a week! I refused. She worked on finding money through patient assistance programs. They said they were all broke. She then persistantly worked with the pharmacists at Yale and the drug manufacturer. I now have recieved my first months supply…
-
Bad blood
It's been a while I've been here.....that's what happens when you live with a RCC partner that acts like an ostrich :-/. So the summary.....RCC (stage 3, grade 2) and total nephrectomy end of June 2015. NED in October 15 and April 16. However, in April 16 he had a GFR of 62, so urologist recommended a check. Now in July…