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Some of our story I shared online
I started writing at the advice of my therapist. I've shared some of our story (and a pic of 6 months NED from last april) on the Story Wall for the Ken Burns Documentary "Cancer: The Emperor of all Maladies: Feel free to read. Did anyone else here share on the wall? Is anyone going to watch the documentary?…
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Metastasis to bone- sutent, nexavar?
My friend’s dad was diagnosed with renal cell carcinoma in 2006 (Fuhrman NG1) - he had a nephrectomy then and the disease retracted. In 2011 he was diagnosed with metastases to spine (with pathological fracture of the spine). He was operated in Dec 2011 (stabilization of thoracic spine and cementing) and in Feb 2012 he…
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Had radical nephrectomy but having issues of pain and feel fluid burst in abdomen
I am new to this site. I was diagnosed with clear-cell renal carcinoma. My tumor was found accidentally. I had my gallbladder out the year before and was still having issues with that area .my doctor did a scan to see if there was Stones in the duct . Having a MRI found a mass on the left kidney 8.5cm stage III. They…
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possible prostrate infection after kidney removal
Good Morning: I wrote before regarding my husband who had a kidney removed in Febraury. He now has a possible prostrate infection. I say possible because that was the doctors diagnosis. We went in yesterday thinking a uti from foley catheher. Anyway doctor put him on a strong antibiotic which would take care of either…
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1st Follow-up Ct
Having my first CT since surgery 6 months ago tomorrow. Wasn't anxious but it got me tonight! I can't sleep a feel like all those little issues i have will lit up on that scan tomorrow. Also bothered that i'll only receive the results in beginning of April, isn't that long?
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just had a nephrectomy, unsure about future care
I had a radical nephrectomy (though just the kidney, no adrenal gland or anything else) 2 and a half weeks ago, to remove a renal cell carcinoma. I know I am very, very lucky since it was caught at 5 cm and looks like it was completely encapsulated in the kidney. Still, I went from not knowing there was even an issue with…
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numbness
On Feb 16 2015 I had a partial nephrectomy. It started as a robotic assist laparoscopic but turned into an open partial nephrectomy. My question is -Is lower abdominal numbness normal on the side of the surgery. I was cut at waist line from bellybutton to right hip. If this is normal how long could it last?
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Scan Results!!! Not what I expected to hear!
Well I have my results and they are not good. The Votrient had stopped working unfortunately I have 30% growth, the lymph in my chest is huge and wrapped tightly around my windpipe, leaving little room to breath. The speed at which the Cancer is growing the pindpipe could be engulfed in a matter of weeks. I have been…
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Living with 1/2 Kidney for 45 years
My daughter said that a person she knows has been living with 1/2 kidney for 45 years, having removed 1 1/2 of kidneys previous to that. Is that possible without some type of dialisis? My dad is living with 1/2 kidney function in both kidneys due to a drug he took that compromised kidney function. But if you combine 1/2…
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Votrient side effects how lng do they last?
It has been awhile since I've visited this site. Cancer now in both lungs and possible liver. Did HD IL2 April 2014. Had 12 round out of scheduled 15 but pulled from it due to blood pressure and vision issues. Can't go back on it. Still have vision issues. Nodulars did stop growing but have started growing again now. Have…
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total removal of kidney
2015-03-10 Hi: First time posting here. My husband had a total removal of kidney with 3.0x2.0.1.5 tumor by robotic surgery Feb 4, 2015. Foley Catheter was removed last week. This is his third week back to work staying about 5-6 hours each day. He is quite tired every afternoon, sometimes with some pain. I have told him…
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financial assistance for votrient?
It has been a long wait from my moms surgery for the report and now her 1st visit with her oncologist... Moms cancer has spread to more areas since her first diagnosis and the weeks leading up to and after her surgery. While she was in the hospital for her kidney surgery her cancer was never mentioned or aknowledged and…
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Pain Resulting from Kidney Cancer
Hi Everyone, I had an open partial nephrectomy in January 2012 which was found after complaint to my doctor of right sided pain. I am curious to know how many of you experienced only pain as a symptom of your kidney cancer? A few months ago I started experiencing the same sort of pain again and unfortunately was in the…
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Doctors use device for blood clot removal to suction man’s kidney cancer tumors
What a fascinating read. This procedure helped him get into a clinical trial since traditional surgery to remove his tumors would be dangerous. Very interesting. http://www.foxnews.com/health/2015/03/05/doctors-use-device-for-blood-clot-removal-to-suction-mans-kidney-cancer-tumors/
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Sigh... Back at Jefferson Hospital...
Hey, guys, Well, I'm posting this from my hospital bed. Some of you may remember how my cancer was diagnosed; for those who don't, here's the Cliffs Notes version: I had a gallbladder attack and the abdominal ultrasound that my doctor ordered led to my kidney cancer being discovered. I'd had another attack back in November…
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Do most recurrences happen in the first 2 or 3 years?
I was told by my doctor that 70% of recurrences happen by year 2 and upto 90% by year 3? Does anyone know if the majority of recurrences happen by year 2 or 3?
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Chemo/med therapy and RCC
I’ve always been confused about something. It is said that chemo as follow up to RCC is ineffective so it isn’t used unless there are mets. But aren’t those mets RCC? In other words, if something shows up in our lungs or bones and it’s RCC then how come chemo/meds are thought to be effective? Why is chemo ineffective after…
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Scan Time, Deep Joy!
I'm off for my three monthly scan this morning. I hate the early morning appointments it's over a two hour drive and the weather is wretched. I have to drink water on the way for the prep, hot coffee would be far more welcome in this weather. Brrrrr! Things have not been going so well for me lately so I am much more…
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Husband has cancer
Hello: I'm usually posting on the colorectal board, hence the amount of my posts. My husband just found out that he has kidney cancer while we were vacationing. We were getting ready for a dinner/show for valentines day and he was showering and blood started dripping from penis. After getting out of shower he urinated…
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Disappointed in my doc
I'm 3 years post nephrectomy (stageT1b, grade 2) and all has been very well. That being said, my urologist (same doc that performed by radical nephrectomy in Feb 2012) told me back in the beginning of this that my follow up would be CT scans in years 1, 3 and 5 and chest x-ray and labs only in years 2 & 4 I thought that…
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3 years out chromophobe recurrence?!?!?
I am three years out from stage 1 grade 2 chromophobe left kidney. A partial nephrectomy was done and until Saturday all my scans have been clear. On Saturday I went to the ER for pelvic pain, and they did a ct of abdomen and pelvis. Pelvis was clear but abdomen showed the following. Soft tissue density mass near adrenal…
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Fluid problems - pleural Effusion and Abdomen
hey all, new to this site. going on 12 months with Sutent. 2/1 50 mg. recently added gemzar to the mix. nagging problem with Pleural Effusion and Abdominal fluid. Occurs towards the end of my off week of Sutent. Typically clears up after a week back on. Gemzar has not made much difference. We are looking at a drug change…