-
phantom parts
After 10 days, I finally got results on a follow-up ct. It took so long because the report had to be ammended to include the impression of a 1.5 cm splenule (previously reported)...the REASON for the f/u ct, in the first place...AND duly noted in my records as being one of two purposes for chest, abd and pelvis scans. The…
-
Tuesday
Nervously I await surgery at 0830 tuesday. Can anyone give me a ball park figure as to how long I will be out? Dr. says surgery should be 3 hours or longer (Da Vinci). Thank you and would appreciate prayers
-
Stage 2a - Clear cell - Grade 3 - advice appreciated
Hi guys, John from Australia here. Long time reader first time poster. Let me first say the support and advice you guys provide to members of this forum is amazing and inspiring. At the age of 34 in 2012 I was diagnosed with RCC - clear cell in my right kidney. I had a radical nephrectomy 15th October 2012 and recovered…
-
bad day-dancnbear
had severe pain in right arm and had to go to er. xray showed possible met to bone in right arm. Dr. asked me to come over to see xray. went to sit down and chair gave. fell directly on bad arm fracturing it right through the mets area. arm immobilized and given pain pills.question now is it rcc and can arm heal without…
-
major-mechanism-driving-kidney-cancer-progression
http://chicagopressrelease.com/science-and-health/study-reveals-a-major-mechanism-driving-kidney-cancer-progression
-
NED, But.....
Friday i had my first 6 month follow up/scans since my radical nephrectomy in September (Chromophobe type tumor 17.5 cm)....My scans looked great, cancer free, except now I have a septated cyst on my right ovary and Hemmeroghic (sp?) cyst on my other...Both about 2.5 centimeters. These did not show up on my initial scans…
-
Nephrectomy
I just had my nephrectomy done on tuesday and I spent one day in the hospital and now I am at home. Everything is going well and I am healing fine. I go back to the dr on the 3rd for the path report. I will keep yall posted. Be Blessed
-
Renal Mass Bioposy's increasing....
I found this surprising http://www.news-medical.net/news/20140319/Renal-mass-biopsy-rates-increasing-in-kidney-cancer.aspx
-
Pathology report
So I followed up with my urologist today. He says as far as he's concerned I am cancer free. I did get my path report today: tumor site: renal ccortex size: 1.7cm focality: single focus margins: all negative histologic grade: nuclear grade 3 pathologic staging: pT1a So the grade worries. My urologist says he will u/s my…
-
battle-cancers-one-by-one
A very interesting read about the future of tumor treament http://www.nytimes.com/2014/03/27/science/enlisting-a-computer-to-battle-cancers-one-by-one.html?ref=technology&_r=0
-
Yesterday was a bad day!
It is almost 5am here and it has been a sleepless night so far. I had started on Votrient a couple of weeks ago, 800mg. I developed severe pain in the liver and nausea to the point I could not eat. I stopped taking it a couple if days ago in the hope that my new Oncologist would agree to make some changes. The previous…
-
what is "met"?
I am getting antsy about surgery next Tuesday. I appreciate reading the posts. I am not sure what many of you mean when you discuss 'met'? I will probably enjoy pizza and beer for the last meal!
-
Support Groups
This forum is all the support group that I want. Posting daily lets a ton of steam out of my pressure cooker. It is so valuable to me. But that being said, the KidneyCancer.org is sponsoring a support group meeting at the Smilow Cancer Hospital @ Yale New Haven next friday, April 4th. I am thinking about going. Less for…
-
After the Everolimus trial
I’m another new member here. We keep showing up, don’t we? With a CT scan in January of 2013, I was found to have a large tumor on my right kidney. Shortly thereafter, surgeons removed the right kidney, the tumor, the neighboring adrenal gland and a number of nearby lymph nodes. It was papillary renal cell carcinoma –…
-
New renal cell carcinoma dx
Hey everyone. My renal mass was found incidentally by ct due to other issues. My doctor did not confirm a cancer diagnosis until after I had a left partial nephrectomy for a 2 cm mass. Pathology reports show renal cell carcinoma. This is fever scary to me. I'm a 31 year old healthy mom of two. I'm still in shock really at…
-
2 years survival anniversary
I am frequent visitor to this forum and posted couple of times. On saturday March 22, 2014, my husband has crossed 2 years mark of survival. He was diagnosed with Stage IV RCC ( about 12 cm tumor with mets to lungs) on march 22. We were shattered. He was only 32 years old that time. We had 5 yearls old twins( now they are…
-
Ipilimimab and Nivolumab Trial-!st CT Scan Results
Got the results of my first CT Scan and was told no expansion and no growth of what I currently have which considering it was compared with a CT Scan taken 10 weeks ago and I only had one infusion is simply great. Next scan in May. They had previously told me to expext some growth with the 1st CT Scan and that we wouldnt…
-
Getting drain removed
I'm heading back to Sloan Kettering today to have my drain removed. Had the little sucker in for a week so it's high time, but I'm also getting very anxious. For one, I'm worried that it'll hurt and for another, Dr. Russo might have the pathology report and I'm really scared of it.
-
About Fatigue from Radiation
My father is receiving radiation treatments for kidney cancer (Stage IV, RCC- poorly differentiated cell type). He is to receive a total of 15 radiation treatments and has had half of them already. Before the radiation, he had enough energy. He could walk around (though not stand for extended period of time); he could talk…
-
NED
Had my follow up this morning w the Onc - NED from Pelvis, Abdomen scan w 1/2 contrast - & Chest XRay Next scans September. Thanks for all the support :)
-
Cabo Clinical Trial
Hi Gang... just found this on another WEB site.. and checked it out... They are recruiting in a bunch of countries all over the world and in many places here in the U.S. This is a Cabo Vs Everolimus Phase 3 Study... FYI... NCT01865747 Says they are looking for 650 participants.. Yes several spots in the U.K. (no Ireland,…
-
Scared of surgery?
I've read this often. Also have read reports like Sindy's who've had many parts removed. Can't scare her with a scapel. It got me thinking....hmm.... elbow bone tumor removed at 12 yo. the start of it all. I ate aspirin like m&ms for a year. Carried a bottle in my pocket. rt. knee, 3 or 4 procedures for bilateral…
-
Staging Question
I'm wondering what is the difference between nx and mx vs no and no? If the nodes or metastasis cannot be assessed how do you know you are a stage 1?
-
The War on Cancer....
FYI. http://www.businessinsider.com/the-war-on-cancer-enemy-of-the-state-2014-3
-
Clinical Trials Question: Did you have to research and bring up the possibility yourself, or was it
Our story: My husband was diagnosed at Stage 4 two years ago. We have been to two large metropolitan teaching hospitals and also local treatment facility. We have seen a total of 5 RCC Oncology Docs. (they keep relocating and getting new jobs). On our very first visit we were told there are 7 drugs and we will go through…
-
planned CSN maintenance this morning
Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
-
Unexplained weight loss, anyone have experience with it
I had unexplained weight loss which lead me to having a ct scan which in turn lead to the discovery of my kidney cancer. After I had my partial nephrectomy the surgeons told me they didn't think it was likely that that small tumor was responsible for my weight loss. So a couple days ago I had upper and lower g.i.…
-
scans coming up and Fox I have report on hip
Its that time again for scans of kidney in 3 weeks. I already dread it lol. Colonoscopy follows in June. Good news is ,,,, my breast biopsy from Monday was benign. I am so very happy. I am at high risk of breast cancer and now every 6 months its a mammogram and ultrasound. They placed tumor marker on the mass i have now to…
-
new member- stage 3a grade 4 considering clinical drug trial of Everolimus
Hi! My name is Stacy and Im 39 years old, very healthy and no risk factors. I'm married with 2 young daughters. I went to the ER 1/5/14 for Abdominal pain that turned out to be an 8.5 cm tumor on my right kidney. It was also hemorrhagic. Had total right open nephrectomy on 1/15/14. Pathology. stage 3 grade 4. No renal vein…
-
Partial Nephrectomy Done!
Hi everyone. Finally able to sit and post. Thank you all so much for all the comments, advice, support, and shared experiences on my intro thread. This board is invaluable and has been such a huge help for me. I had the open partial nephrectomy on Monday, home yesterday on Wednesday. I kept thinking of Iceman’s words of…