-
Pathology Report!! As good as it gets, so I am told........
So, as most of you know I had my surgery (total radical nephrectomy) on 4/29/13 and I have my pathology report. Below are the findings: 1. Renal Cell Carcinoma, clear cell type 2. Fuhrman Nuclear Grade 2 out of 4 3. Size: 4.7cm / I was informed by my Urologist that images taken (CT Scan/MRI) showed a larger tumor size…
-
Nick's Remaining Kidney & Blood Pressure Issues
We had to see a cardiologist about Nick's blood pressure. His BP has not been controlled with either Amlodopine, Felodipine, Ramipril or Losartan although at least with the Losartan there were no side effects. However finally the Oncologist suggested that Nick should see a cardiologist - this was during his 3rd cycle of…
-
What do you wish you had done . . . ?
Okay folks, I am 72 hours out from my surgery. It is a hand assist radical laparoscopic procedure on the right kidney. The surgeon reassessed and it is 5.6 cm instead of the 4 cm they first noted. He was looking at the same CT that was used originally so there's no chance for growth. But on to the question. What do you…
-
Questions
I had a laprascopic partial nephrectomy on April 11th and was told everything went well. Came home on April 13th. April 24th was taken to ER by ambulance for severe urinary track bleeding. Catherized and sent home. On the 27th back to ER unable to urinate at all - catherized and put on continuous irrigiation. After two…
-
Another hurdle
I am just back from the oncologist after completeing radiation on spine mets and ultrasound of thyroid nodule. I need to have a fine needle biopsy of the thyroid on Monday. Appears possible that it is meta static disease which I understand is unusual for RCC but also could be a new primary. Also have a small (8mm) growth…
-
Pathology reports- clear cell with extensive rhabdoid features grade 4
Hello. I have posted previously here about my father and his kidney cancer spreading to the brain. We just now saw a specalist for the first time and was shocked to find out he actually has a rare subtype of renal cell cancer. Here is what the pathology report from his total nephrectomy in June 2012 says. & in case anyone…
-
John's One Year Anniversary on Nivolumab - Votrient Trial
Congratulations to my husband, John (aka one putt) on his one year anniversary (May 10) in the Nivolumab-Votrient trial at Hopkins. It's hard to believe it's been an entire year! With a 58% reduction in tumor burden in this first year, know I'm hoping and praying for many more!!!! Congratulations! XOXOXOXO
-
Cran1
hey cran1 just wondering how you are doing? hope you are ok. eims x
-
Urine Leakage after partial nephrectomy?
Hello..I have been lurking on this board for about 4 months, when my husband was first diagnosed with a Tumor on his kidney,which resulted in a partial nephrectomy in late Feb. It was stage 1 cancer. He is back at work and doing great. He had his first CT scan today..all clear..expect the Dr said he has a small pool of…
-
Anyone with Celebrex experience?
Hi, I had posted on this forum about my husband couple of months back. I will give short description here again. My husband , 33 now, was diagnosed with Stage IV kidney cancer in March 2012 with mets to lungs and brain April 2012- Nephrectomy done, May 2012- Cyber knife for three brain lesions July 2012, October 2012 - two…
-
KIDNEY_ONC
ACOR'S List KIDNEY_ONC is now officially closed and no postings sent to it will appear there - they will be re-routed to be handled at the discretion of the Listowners (and, if appropriate, will doubtless appear on the sparkling new 'Smart Patients' website).
-
Surgery Done 4/29!!!
Hi, Sorry for my little absence as work, school & preparing for surgery was hectic. My surgery was done laparoscopically. Under my left breast my incisions look like -__- with a - right under my breast. I was in the hospital for 2 days and didn't get the best treatment. They never worried about me having a bowel movement…
-
Kidney Cysts
Hi Everyone, I have posted here before whenever I had concerns about my wife which Thank God turned to be a much better outcome in her case but here is my story now: 2 weeks ago I went for an Abdominal Ultrasound to rule out Gallbladder stones or inflammed liver as I was experincing some burning discomfort but instead,…
-
Tired before treatment?
Just a quick question – I know that after surgery being fatigued is normal, but has anyone else noticed if they were more tired than normal before their surgery/treatment? Can kidney cancer make you tired? I’m just trying to figure out why I am so completely exhausted. Wondering if it’s just everyday stress compounded by…
-
New to all this and having feelings
So I am new to all this and scared to death. I went to the ED and they found at 5.3cm x 5.3cm x3.5cm mass on my right kidney and 6.7 cmx 5.3cm x4 .5 cm mass on my right ovary. They will be coming out on May 13, and nobody has said anything about them being connected or oncology or anything! There will be no presurgical…
-
Torisel for Chromophobe RCC
After bone mets were found and confirmed in a CT/MRI/Bone Scan progression - my oncologist is suggesting Torisel. I am moving forward while still investigating other paths... Has anyone had experience with this drug? PK
-
Torisel for Chromophobe RCC
After bone mets were found and confirmed in a CT/MRI/Bone Scan progression - my oncologist is suggesting Torisel. I am moving forward while still investigating other paths... Has anyone had experience with this drug? PK
-
Kidney Tumor
Hi, I just found out I have approximately a 2 in growth in the center of my left kidney. This site has helped me release myself from the fear and take action. Thank you! The urologist that I was referred to was not very informative, I'm wondering if any of you have suggestions about what type of questions to ask. I have…
-
What's the longest anyone's been on Sutent successfully?
Nick is in his 3rd cycle on Sunitinib (Sutent). I was just wondering what it the longest that anyone has been on this drug with it working please? I keep hearing timescales like 8 months or a year and that kind of worries me as it is such a short time.
-
Doea anyone have ideas to deal with emotion overload and how to be a supportive caregiver
There is a lot of information about RCC but what aout how to deal with the emotional side. Has anyone had panic attacks? Emotion overload? How do you handle this?
-
Measuring BP. Reliable devices?
Because I'm on this drug trial and one of the possible side effects can be increased blood pressure, I decided to buy a blood pressure machine and monitor it myself at home. The first machine I bought was an inexpensive automatic one at the local pharmacy. I think it was about $25. It was useless. The readings were all…
-
25th infusion
I had my 25th infusion of MDX-1106 yesterday. My Dr. asked me, " Do you have any pain?" nope. "Night sweats?" nope. "diarrhea?" nope. "Constipation?" nope. "Fatigue?" nope."Mouth sores?" nope. Then she says, "I'll have to write that patient complains of feeling too good." Then I got my hug. I hope I can do this every 3…
-
Thank you for helping me help my daddy
I wanted to thank all of you that have been on this forum for the past few months. I learned so much from all of you. Through this knowledge, I was able to ask the right questions when visiting the oncologist with my daddy - as a Southern girl we tend to call our dads "daddy" regardless of our age! Our journey with this…
-
Wilms tumor, 2cm.Do I have to undergo chemotherapy after partial nephrectomy?
I'm 29,i had wilm's as an adult.i had my partial nephrectomy last April 3,2013..my adult wilm's is stage 1,favorable histology..and its size is 2cm...I don't know if I should have an additional treatment for this...I have discussed this with my doctor but I don't think if he's sure..he referred me to another oncologist and…
-
choices
Hi - I have previously posted about my brother, we are in the UK and his sutent appears to have stopped working (had done very well on it for a year). We are seeing his consultant on Wednesday to discuss next steps, and it would appear this is likely to be enverolimus. He had radical surgery, removal of kidney and massive…
-
Joining the "club"
Hello everyone! I had my robotic partial nephrectomy on April 18th, 2013 and just saw the doctor yesterday for the path report. Renal Cell carcinoma, clear cell, T1a Grade 2, negative margins. The tumor was 3.2cm and completely contained in the kidney, thankfully. The note says additional tests will be performed to exclude…