-
Swollen Axillary Lymph Nodes
Has anybody heard of RCC spreading to axillary lymph nodes (underarm lymph nodes)? Would this show up on CT scans? I'm taking everolimus as an adjuvant therapy and have been NED since my kidney was removed in December. I've been having sinusitis/rhinitis and cold like symptoms which I attribute to the everolimus. Those…
-
Odd Question, but . . .
Since my diagnosis with a mass in my right kidneyon February 27th, I have experienced no overt symptoms of any kind, until, about a week ago I started noting intermittent, very low grade, pain in my right kidney. It is only momentary accompanied by a very brief feeling of nausea. My question is, did/does anyone else, at…
-
I have a big bulge on my side since my kidney removal
I had my right kidney removed in 2010. I have a softball sized bulge on my right side. The doctor said it's because he cut through nerves to remove my kidney. I feel like I look horrible. I can only wear clothes that are loose fitting because of it and we won't even talk about bathing suits. Has anyone else had this…
-
Chuck's Appointment Today
We are waiting to see if a slot opens up in the Trial they are trying to get Chuck in.. they are pretty sure he qualifies at this point...We go back next Thursday for Labs and to go over any questions we have about the information they gave us today(A book) but if something happens and one does not or he does not qualify…
-
Question - Acetylcysteine
Fellow members, I have my 2nd CT w contrast next week at the 8 month point and the 1st scan they used Acetylcysteine (liquid - 1 gram every 8 hours ) to protect my remaining kidney. Worked great, no side effects. This time there is none available, anywhere, and the radiologist has prescribed an alternative [ Theophylline…
-
What’s Coming Down the Pike
There are many new treatments for RCC currently in Clinical Trials around the world. Below is my compilation of what I believe are the most promising treatments that are on the horizon for RCC. Hopefully, these new drugs/treatments will receive FDA approval within the next 1-3 years. Each drug I mention contains snippets…
-
Follow up scan results- some questions and looking for input
I just had my 1 yr follow up CT. My path report 1 yr ago was: 5.5 cm T1b Clear cell carcinoma Grade 2 No nodes tested no mets determined at the time I was not referred to an oncologist and have not seen one to date. Prior to my nephrectomy last Feb., an abdominal/pelvic CT noted a cluster of mesenteric lymph nodes that…
-
One year anniversary
It's been one year since having my cancer removed from my kindney. It has been a rough year but I know things will get better. Saw my doctor today to go over MRI results which were NED. Today is a good day.
-
One year post surgery follow-up
Hi everyone, Well, this week is my one-year anniversary of beating the beast. My surgery was last March 16 where they removed a Stage 2, 7.5 x 6.5 x 4.5 tumor on my right kidney. It was completely encapsulated so in general I am a happy camper. Last week I registered for a 50 mile bicycle ride in May. A year ago, I'm not…
-
Radiation Questions explained
A couple weeks ago I posted a question about why I was to receive so many doses of radiation in one treatment session when we had been told the surgery had gotten it all. Today my radiation oncologist gave me a good explanation. What she is doing is covering a large area, where my kidney used to be, but at the same time…
-
New here with so many unanswered questions
Hello- I am new to this sort of thing. My husband woke up on June 4 and had to be rushed to the ER. He was given an ultrasound that showed a mass on his right kidney. After more testing, it was determined he would need to have the kidney removed. On the day of the surgery I recieved a phone call from the rehab center my…
-
Sutent & High Blood Pressure
My partner was diagnosed with RCC in November 2012. Unfortunately it had spread and there was a small nodule in the lung and a patch on the pelvic bone. Luckily though the main tumour was operable so on 7 December he had a radical nephrectomy and his left kidney was removed via keyhole. In January he was started on Sutent…
-
Votrient. How long?
How long have you been on Votrient? I started in September 2012. I am told it stops working after awhile.
-
He fought the good fight!!!
Quite a few of you know my husband's cancer history. Well he fought the good fight that ended about 10:12 last night. Please keep our family in your thoughts in the coming days and weeks.
-
Update after Chucks 4 week scans(HD IL2 treatment)
Recap... Chuck has Stage 4 Renal Cell Carcinoma with Rhabdoid features(They removed his right Kidney in July).. that matastisized to his Liver and Lungs.. the lungs were just assumed to be cancer no Biopsy was done on them...In November they scanned him and found the Liver Tumor and did a biopsy... In Jan he started HD IL2…
-
Kidney, Thyroid, bone lesion...
Hi all - I'm 0 for three on CT scans! My first one found the large tumor in my left kidney which resulted in a removal of the kidney and a large 14.5cm tumor (RCC - Chromophobic). My first 6 month scan post surgery found nodules on my thyroid (unrelated) which resulted in the removal of my thyroid. My latest - one year…
-
Help, scam message via private email
I just received a private email on CSN from mercyjones. It is a scam wanting help washing $8.3M. I wanted to get hold of the lady running the network but I do not remember her name. Can some one help me. TIA, Ron R
-
Anyone tried inhaled IL-2
Have anyone tried/heard of inhaled IL-2? It is much better tolerated and I read two articals as below. Has anyone's oncologist recommended this treatment? I think it seems better for elder people who cannot tolerate systemic IL-2.. http://www.medscape.com/viewarticle/505610…
-
CT vs MRI
I'm a little concerned about the radiation dosage of frequent CT scans. Does anyone use MRI instead of CT scans for followup? Why would a CT scan be preferred? Is it better at seeing mets?
-
New & hopeful
Hi, I'm new here and on Feb 10, 2013 I found out i have a 20cm tumor on my right kidney. On Feb 12, 2013 I found out it was stage 3 cancer. I'm scheduled to have an open radical nephrectomy on Monday March. 11,2013. The tumor is attached to my Inferior Vena Cava so they will be taking part of my artery, along with…
-
Hurry up and wait
I know that RCC is supposed to be slow growing and that the one that I have is very small at 1.2cm. Still, the doctor is considering the biopsy as nondiagnostic since it came back as normal kidney cells and the biopsy team was having such a hard time getting to it. So, now I get to wait another 2.5 weeks before I can get…
-
Shaving My Head Today for St. Baldricks
Hello, friends. After a lot of thought and flip flopping, I've decided to shave my head in support of the St. Baldrick's Foundation, a charity dedicated to funding childhood cancer research. I'll be geting shaved tonight! This was a difficult decision. As many of you know, I was diagnosed in April 2012 with S4/G4 mRCC. I…
-
Partial Nephrectomy recovery
Hello everyone. I saw a post asking about recovery from Partial Nephrectomy and thought I'd post about mine. Mentally, not doing so well (posted about that). Physically: I'm about 6 weeks post op. The first couple of weeks the pain was awful in the abdomen (where the incisions were). Couldn't bend, sit up from lying down…
-
New here. Can't move on and should I see oncologist?
Hello! I'm 44 years old. I was dx. with kidney cancer in December, Christmas day. I went to hospital for phantom pain in my stomach/inestine. I thought I had food poisoning or something. CT scan showed nothing wrong, but a mass on right kidney. Jan. 21 I had partial nephrectomy. Tumor was 2.7 x 2.7 x 4. Stage 1. Pathology…
-
New to Forum
Hello, I am new to this forum. I am 71 years old and was just diagnosed with cancer on both kidneys and on my pancreas. I had my dye scan on 1/31/13 and that confirmed the areas that are affected with cancer. On 2/7/13 I had a biopsy to confirm the type of cancer that I had. After seeing a urologist on 2/20/13 he referred…
-
First Urologist Visit
Okay, thanks to all of you here, I was prepared for the news. I have my surgery on May 14. The mass is very irregular and, according to my urologist caused kidney function to cease in that kidney a long time ago. Her opinion, at this point of course, is the surgery is likely the only treatment I'll need, with of course the…
-
Disagreement with Dr over staging
When I had my tumor out, the Path report said T1b, grade four (Sarcomitoid). I saw the Dr westerday for followup. He Still refers to is as stage 1, even tough there was a distant metastisis (to the lung). This does not need right to me. I asked, and he said, that even though the met may have been present at the surgery,…
-
Why is this site so slow?
Has anybody ever explained why this website is consistently so slow at loading pages? It's among the worst sites I have ever visited. I just don't believe that it's "poor code", as has been mentioned at other times when we've discussed it. The reason I don't think it is, is because the problem comes and goes. If it was…
-
I need help.
It has been a few months since I posted on this board. TexasWedge was kind enough to send me a message the other day asking how my husband was doing. Between his message and reading Fox's inspiring post, I realized I need help from others experiences. Any feedback is welcome and greatly, greatly appreciated. History: My…
-
Anyone familiar with the VA and RCC?
Hi all! I posted for the first time about a week ago. That was right after my Primary Care Physician told me about a mass 3.7 X 4.7 X 4.0 cm on my right kidney! He immediately requested a consult with Urology and I have been terrifically persistent pushing my own case for a rapid appointment. It is at 1:00 today. Thats all…