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Margins - do we understand the story about margins and implications?
I have heard alot about clear, negative and positive margins. In my case, I did not have clear margins and yet the doctor professed he got it all and is positive that there is a low level of risk for recurrence. In fact, with stage 1 (localized and less than 4cm), he states that he favours doing nehpron sparing surgery…
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Happy New Year
Wishing all my CSN friends a Happy New Year. May you live each day like it is your last and plan your life as if you will live forever. Live well, Laugh often and Love always. Bring on 2013.
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Recovery seems stuck in time
On Friday I was six weeks out from my partial nephrectomy, done laparscopically. I did very well just post-op but I'm feeling frustrated as I seem to be pretty much the same every day. I seem to be ok if I don't do anything, but if I go out food shopping or just try and do a little housework my stomach swells up and I get…
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Rest is not Best: Cancer survival through Active Living
was the title of an hour's lecture given by Dr. Anna Campbell in Dundee, Scotland in January. She's the leading expert (certainly in the UK, at least) on the important role of exercise in the lives of cancer patients, having spent about the last twelve years teaching and researching on that subject. She has a Master's…
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Testosterone Levels
My urologist recently diagnosed me with 'Low T' and is suggesting I take Testosterone supplements. Does anyone have any experience or information on the pros and cons of this, and specifically, from the perspective of having cancer and kidney cancer. Risks? etc? Thanks. M
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Hello I am a new member
I just had robotic surgery for a T1A N0M0 clear cell last week and they tell me I'm cured. I just can't seem to wrap my head around that all my life I cancer was the one thing I feared most. Now I have it. Well my surgeon says I had it but no more. I am 65 years old and would like to think I could get another 10 or 15…
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Is the Cure for Cancer Inside You?
http://www.nytimes.com/2012/12/23/magazine/is-the-cure-for-cancer-inside-you.html?ref=health
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19th infusion
No, not my 19th nervous breakdown. That's for rookies. Although I am beginning to think that my tenure in the MDX-1106 study is waning. I think it is safe to say that essentially ALL soft tissue mets are GONE! And there was a **** load of them. Maybe 1 or 2 small hyperdensities which could be anything or nothing. ( I…
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Pathology Report - Lymph Node Involvement
The doctor called with my path report today. I guess my doctor had tried to call a few days back and my voice mail was full. I did notice that, come to think of it. I'm a T3A N0 M0 and my grade was 3. They were calling me a T1 going into the surgery, so I'm a little shocked. Not very good news, and not what I had hoped…
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Pathology Report - Lymph Node Involvement
The doctor called with my path report today. I guess my doctor had tried to call a few days back and my voice mail was full. I did notice that, come to think of it. I'm a T3A N0 M0 and my grade was 3. They were calling me a T1 going into the surgery, so I'm a little shocked. Not very good news, and not what I had hoped…
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Sad Christmas
This Christmas was sad. How to think of life when the only thing in my mind in death. My mother was in pain all day Christmas Eve. She takes morphine every 3 hours. Christmas day same thing in pain and in tears. Mom was diagnosed 1 year ago. But the last 4 months have been horrible. Its hard to celebrate, to be happy when…
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50/50
My wife choose this movie rental for Christmas Night. In a nutshell it is about Cancer and true friendships. As a survivor I am sure I appreciated it more. Icemantoo
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New Here
Hi. I introduced myself in a reply to another post last week. I decided to post again here at the top. I'm 51 years old. A week before Thanksgiving I was on a business trip and started having blood in my urine and pain in my side. I thought I was having a kidney stone, which I've had before. However, the pain started…
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The first year of my new life begins.
As I sit here enjoying my family today, I think forward a bit to my new life and what it will bring. Was dx'ed with Clear Cell Renal Cell Carcinoma on 11-27-12, surgery 12-4-12 to remove the betrayed organ...it seems like it was yesterday I was sitting in the ER thinking I had kidney stones before the bad news was told to…
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Am I paranoid
Let me preface with some basic information. I am 52 years old, male, former long time smoker. I have in the past year been placed under initial treatement for tachycardia (unknown origin), mild HBP and have experienced two instances of TIA (mini strokes). While hospitalized in April a small renal mass was discovered by CT…
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Something I wrote on my caring bridge journal. It seemed worth reposting here. Merry christmas
[RANT] Based on reading research papers on the internet, the mass on my lung is likely a metatseses of my Kidney tumor. If that is the case, then my cancer is stage IV, not stage I. The 5 year survival rate is pretty low....I can find numbers of 8%...or I can find numbers (for single lung mass) of 60%). Then there is the…
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How Kidney Cancer Spreads to Distant Organs
This is an interesting article: http://www.mskcc.org/blog/new-findings-clarify-how-kidney-spreads-distant-organs Looks like we'll eventually be able to insert an active link however the button is "grayed-out"/inactive for now. --David
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I'm dreaming of a healthy xmas
I'm dreaming of a NED christmas, lust like the ones from before, ...(still working on these words). and may all our masses be benign.
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Funny Bonz II...
There was a newly wed couple who were getting their first look at each other's attributes on their first night together. (Science fiction, I know) Any way, she undressed quickly and jumped into bed, he was somewhat embarresed and moved quite slowly. First he removed his shoes and socks revealing toes that were twisted and…
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Merry Christmas
Merry Christmas to all my friends on this CSN! And to those who do not celebrate Christmas, I hope this end of the year and next year are our most promising. FLY, Fox loves you!
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Help for treatment at distant locations
I've been struck by how little what's on offer here seems to be known to members. The ACS does all sorts of things for you folks (Americans) in particular. From the blue side-bar at left, the 2 items "Lodging" and "Rides to Treatment" are worth looking at, particularly if you don't know about the ACS Hope Lodges. I'm just…
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CSN forum updates
What am I missing? Emails are lost, friend listing is gone, posts aren't in order. And it is as s l o w as ever. Or is it just me?
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Funnies for Christmas
I thought there might be one or two qualifiers here, as recipients of this message, lately received from a golfing pal:- "Do you know what would have happened if it had been 3 wise women instead of 3 wise men? They would have asked directions.....arrived on time....helped deliver the baby.....cleaned the stable......made a…
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MPDL 3280A - Back from Nashville #4
I hope it's okay I started a new thread. The old one was two pages long and quite honestly, I didn't know where to reply..the top or the bottom! Anyway, a short update (that's good!) Everything if fine. My RBC needs some tweaking...9.5, might need some more blood out there in the future. My weight is a bit of a problem.…
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Causes of Kidney Cancer?
Hello everyone and happy "day after the world ends!" I am doing some research online and doing some reading about the causes of kidney cancer. I really haven't found anything definitive. My urologist could not give me much information on it, except to say it was more common among men, smokers, and the elderly. I am none of…
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Familial Kidney Cancer
I learned a lot this week, and though I would share it. For me, kidney cancer is a family affair: My grandpa died of it at 82. My dad at a partial nepherectomy 9 years ago (63) for a 2.4 cm tumor, and now he has nine new nodules. I had a 5.5-6.0 cm tumor removed six months ago at the age of 48. What I learned is that 4-5 %…
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THE MAYAN CALENDER STRIKES CSN
Well i hope they did not pay the person who did this mess,oh well maybe if thay tweak it it might work if not hit the restore button please
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reply to todd
Same problem here. Like tex said.... Unqualified disaster :(
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Can't Reply
I'm not able to reply to any posts. Anybody else having issues? Type my reply, and press submit, and it takes me back to the preview box with the info I typed and my reply never shows up. Todd
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Lung nodules found
Well, I hate to break the streak of NEDs we've been getting lately, but my CT scan from yesterday was not good. I have 2 nodules in my right lung. I had the scans yesterday but the computer system wasn't working properly and my doctor did not get the radiology reports. He did have the scans and thought they looked good…