-
Adios everybody
I’m a writer. Not a good one, but a writer who has been fortunate enough to have had two books published over the last 10 years. I finished those books while working at a full-time job. It was a tough thing to do but, unlike other things I have tried in my life, I stuck with it. I retired in 2009 with the intention of…
-
What does it mean Tumor Present in Renal Vein margin?
Does anyone Know? Been so confused with all the reports and docs don't really make it clear.
-
Tuesday is fast approaching .... I am ready...I think
Tuesday at noon is my lap robotic partial neph. Thanks for all the tips for a comfortable (as possible) recovery. I assume when you are put under there is no recollection. Has anybody had their procedure video taped? I am going to the University hospital and of course signed the waiver that they may use this as an…
-
Surgery date April 30
Just got brave and set my surgery date today..Now all I have left to do before the big day is the pre opt appt's. Feeling tired but a little better now that I have made the decision to go ahead with the surgery.. LD
-
VOTRIENT
I am checking to see if anyone who has used Votrient can give me information on it? We were told today my husband needs to start that in a few weeks to hopefully maintain the size of the nodules in his lungs that were metastacized from his kidney. Any and all side effects that any of you would like to share will be greatly…
-
What are the 'normal' or standard procedures during every 3 months or 6 months check up after the su
Hello all, my 1st coming 3 months check up has scheduled in this coming Jun, it will be chest x ray and ultra sounds on the abdomen/bladder then follow up with Ctscan 6 month post surgery. I've been reading some posts here, looks like some of you have 6months or 1 year check up. Try to get some understanding what kind of…
-
Thank you all
I want to thank you all for your support this past week and for standing by me even when I was less than sweet and being a bit...bitchy. LD..
-
post op pain and depression
Good evening. Hubby had lap surgery Monday afternoon and came home Tuesday afternoon. Today is the worst day yet. I think all the gas pains are gone but he complains of burning inside at the surgical area and is tearful. He is cold (never cold) but he has no fever. Any suggestions on how I may help him?
-
CT scan tonight
I posted earlier that my urologist had once told me that I would eventually need a CT scan with dye. I wrongly assumed he meant that he would order one as part of my follow-up. But what he actually meant, I have learned, was that someday, for another medical reason, I would probably need one. He has no intention of…
-
are we doing the right thing?
First of all, I feel lucky to have found this discussion board, many caring people who have been through similar circumstances. We recently learned my husband has a 7.5cm mass on left kidney and are experiencing every emotion imaginable. He just turned 50, is healthy, nothing other than colds ever. Two weeks ago, he…
-
RCC Expansile
My mom had her surgery by robot last Thursday. It was rough as mom is 79 years old. Does anyone know what RCC Expansile means? I know they removed the kidney and two lymph nodes. One of the nodes was positive the other negative. They graded her stage 3 furman grade 4. I don't have the complete report as of yet. Does anyone…
-
21 cm tumor "Newbie just diagnosed 2/27" removed!
I wasn't sure if I should start a new thread or continue on my original post? I started a new one though cause the old one was looking to long. Anyway here's a little backstory for those who would like to do some reading. I have always been in good shape, exersise regularly and eat well. About a year and a half ago my…
-
Another tumor
I just went for my 6 month CT scan and another tumor the size of a quarter was found in my left kidney, very close to where the one I had removed was located. My doctor gave me 3 options. 1) biopsy, which he said is only 50% accurate. 2) surgery to remove it, which would be an open surgery since last one was laproscopic…
-
Who needs 2 kidneys!
This afternoon I rowed 10,000m and took 33 seconds off my best recent time. I was so pleased I checked my logbook and found that it's the fastest time I've done for 10k in the past 3 1/2 years. I've also won my last four golf matches. So, losing a kidney in December hasn't damaged my performance capacities to any great…
-
new girl on the block
I recently had a radical neprectomy the old fashioned way, due to Clear Cell Renal Cell Carcinoma. I was not informed of all the mysterious things and pains I would be having. My ribs hurt so bad afterward, and still today I have difficulty sleeping because I can not sleep on my back all night. My surgery was 27 days ago.…
-
Thoughts of TW and Friday...
T, Strange, it has been but a few short months, I have yet to see your face or learn your name, and still I have come to know you as more than a friend. You are one of a kind, your intellect, humor, and selfless desire to help others when most would be concerned with self is an inspiration and example for us all. You set…
-
Newbie here. Had surgery on 3/22
I had a partial done with the DaVinci machine last Thursday where they removed 50 percent of my right kidney. I will go back 2 days from now so they can determine if the remaining half will survive because the blood supply is now limited. I've been reading a lot of you're posts and signed up because they are a lot more…
-
biopsy tomarrow
I called radiology today and they have scheduled me for tomarrow..I guess things are going my way. I know I will still have to have surgery but wanted to have this test first. Next big step will be calling and scheduling my surgery..
-
post radical nephrectomy back pain
My wife had a left kidney radical nephrectomy 11-18-2011. Things are going well and she has a upcoming 1st scan in May (which we are nervous about). My question is she is complaining of a small back pain just under her ribs on the side with her remaining good kidney. It is not there all the time but she says it comes and…
-
New to the site just diagnosed
I have just been diagnosed with a 3.9 cm x 5.2 multi locular cystic nephroma,it has been rated a 3 on the scale. I have come here for support from people who have been there..I have not decided on surgery yet and may opt to have a biospy first. They will try to do a partial but feel I will lose the whole kidney because the…
-
Hello my name is Fishknees and I have kidney cancer.
First I would like to wish all of you having surgery next week good luck and a speedy recovery. I am 62 years old female and about 10 pounds overweight. I think I am in good shape physically. On March 2, 2012 I had an ultra sound for a gallbladder that was acting up. I went for a week vacation and when I got home I found I…
-
A shout out to darrlipe and vangusto
I hope I got got the names right ,I remember darril was having problems with his remaining kidney ,I also remembers vangustos tumor at time of dx was rather large but both of them had a very positive attitude,hey if you guys are still out there please let us know how are you doing ,I do think about both of you and have…
-
Stage IV Clear Cell Carcinoma with Sarcomatoid and Rhabdoid Features
My husband had a 12cm mass and his kidney removed last week. We haven't been back for follow up yet but saw on the discharge summary where it is a grade 4 with 30% Sarcomatoid features and 40% Rhabdoid features. Can anyone tell me a little bit about what this means? Thanks
-
Integrative Medicine
http://www.mskcc.org/cancer-care/integrative-medicine
-
Targeted Therapies for Kidney Cancer
http://www.mskcc.org/videos/targeted-therapies-kidney
-
Inlyta (Axitinib) cost
My husband is going to be going on Inlyta. Does anyone have feedback on how much this drug is costing them per month. He has BCBS insurance and will be taking 5mg twice/day.
-
surgery Monday
Greetings oh wise ones! My hubby is having surgery MOnday (he has a 8cm on L kidney). Any words of wisdom for me? Anything you wish you had when you woke up from surgery? They are going to attempt lap but hubby is obese and may have to open. About how long is surgery to be expected? Will path report not be instant? I was…
-
Things your Surgeon may not tell you
Depression can hit hard after a few days you will be asked to pass gas or have a bowel movement regardless of how much it hurts lying on your side (either one) may be a thing of the past for a long time sleep will elude you random pain will make appearances you may feel as if they put something in and not taken it out you…
-
On to the next step (Revised after pathology report)
Well, I'm now on to my next step as a cancer survivor. I had a radical nephrectomy for my right kidney last Friday and just got home from the hospital. It took an extra day or so to hit on the right pain control. Because we hadn't come up with the right scheme for pain control, my BP and pulse rate went sky high. I won't…
-
Question for any Experts
Been reading this board the last few days and got some great advice. I bought the book Three Months to Life earlier today. My Dad is in his late 70s and back in 2008 they removed a Kidney. He was on Sutent during 2009 and stopped in 2010. Everything seemed great until January 2011 when it spread to bones and a section…