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private messages
Does this board allow private messages to other members? How?
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New to all of this-
I am a new caregiver and we are so new to this we don't even have all the lingo yet. My husband had very high calcium and is now being told he has kidney cancer that has spread to the bone. I'm scared and so is he. I know I have to be strong and am trying my best. 4 months ago he was in complete kidney failure and was told…
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is it related?????
Early in the day its not too bad, but by the end of the day it takes all I can to keep my pants on. Everything I own feels tight and constricting, is this the kidney tumor, I've read some thing and seen that it can be, mine is very small surgery on Friday but I'm just curious if alot of the abdominal bloated feeling will…
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Newbie - here for my 80 year old Dad
I am so glad this network is available. I am looking for support and the right questions to ask. My Dad has a "left renal mass" that doctor says is 80% likely kidney cancer.He has had PET scan, CT scans without and with contrast, xray. He was in significant pain and the pain was alleviated by a stent. His ureter looks like…
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small tumor with sarcomatoid features
I was recently diagnosed with a localized 1.8 cm rcc and had a successful partial nephrectomy. The lab report indicated the tumor had clear margins and a prognostic biomarker, IMP3, was negative, indicating it was not likely to metastacize. Such factors are very encouraging, to say the least! However, it was also analyzed…
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Removal of Lymph Nodes?
I am scheduled for surgery to remove a small (CT showed it to be about 1.5cm)kidney mass on December 7th. I'm having a laparascopic partial nephrectomy. I asked my surgeon if he will be removing any local lymph nodes for testing (the CT did not show any lymph node involvement)and he said that he does not remove any lymph…
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Amalgams
I had a friend tell me that having al the dental work done the over the last few years might have exposed me to certain toxic metals when removing my old amalgam fillings to replace with crowns and new fillings,anybody have any thoughts on this subject.
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wow twice in a life time
Hello-5 years ago my husband by chance discovered he had Kidney cancer-It began a long road-kidney removed-all scans from the neck down perfect-2.5 years ago he felt funny-many doctors and finally the last er-They scanned his brain thinking he had a stroke.he came home october 26th and left me November 6th 2009. So…
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RCC chromophobe
Hello. I was diagnosed with RCC chromophobe type, 3.5 mm, stage one, grade 2 five weeks ago after my open partial nephrectomy. It was found incidentally when I was having gallbladder issues. Had to have the gallbladder out first, wait 6 weeks to heal, then the open partial on my left kidney. Since I had so much lag time I…
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New to Board
I am 51 years old was diagnosed with right kidney cancer in April 2011 after being seriously injuand red in a motrocycle accident. My husband was injured as well and really thought I had hit my head hard when I told him the wreck was a blessing in disguise. The tumor was found during an abdominal CT to look for other…
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I am here for my Mom, and I need some help if you can..
The whole problem (other than the obvious issue of cancer) is deciding which board to refer my Mom to here....kidney or bladder. Hmmm....we really have a lot of problems here, but this seems to be one that I can help with. Here is a short version of our wild-ride so far (which I'm sure you are all familiar with)... My mom…
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I survived the surgery!!!!
I had my surgery Friday ( open radical left) , and I am back home today. There were a few days there that were rough going. But I made it through. My temp was up at first then on Sunday my heart rate went way up. But I prayed and had many others praying for me. And I am home today.I still a ways to go but I feel so much…
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More tests, again
Just an update... Five & 1/2 years post nephrectomy plus two recurrences. Had a regular CT, then ultrasound of thyroid, then nuclear scan of thyroid. Next Monday, a biopsy of nodes in the thyroid. Yuck. Guess I'd rather it be me than someone else in the family, or anyone else as a matter of fact. We had to jockey my biopsy…
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Surgery tomorrow
Well, after waiting over a month, tomorrow I get the little monster removed. Still positive, still surrounded with peace. Actually looking forward to some time where I don't have work deadlines, etc., to deal with..... A round of golf on Sunday must have relieved some underlying tension, because I have felt better the last…
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help - really nervous - seems like a long wait for surgery
My kidney cancer was found do to CT at the ER for unrelated problem, MRI confirmed the same. My PCP sent me for a second opinion (didn't like the second opinion) cancer less than 2 cm on the outside of the kidney not in (which I hear is better). The are doing partial in two weeks just seems like its taking forever…
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Help understanding Cat scan not yet diagnosed!
I was wanting to see if anyone could help me understand the CT report? I had went to Er last week with lower right abd pain thinking maybe appendix. Labs normal and urine normal. They did CT scan which showed cyst on ovary causing my pain. The doctor also told me they were more concerned with my left kidney but they could…
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Thank you
I want to thank everyone for the input and encouragement I've recieved on this site. I don't know how I could have handled the last six months without it. I got good news today, and I plan on continuing by better "life habits", and hope I can be of help to others who find themselves in our shoes. Thank you for the prayers.…
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Here's to a Happy & Healthy Thanksgiving...
TWAS THE NIGHT OF THANKSGIVING, BUT I JUST COULDN'T SLEEP. I TRIED COUNTING BACKWARDS, I TRIED COUNTING SHEEP. THE LEFTOVERS BECKONED - THE DARK MEAT AND WHITE, BUT I FOUGHT THE TEMPTATION WITH ALL OF MY MIGHT. TOSSING AND TURNING WITH ANTICIPATION, THE THOUGHT OF A SNACK BECAME INFATUATION. SO, I RACED TO THE KITCHEN,…
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Grading / Surgery question.
As mentioned in my 1st post, I had no idea what my tumor grade was. My Urologists said both kidneys were Stage 1 before the surgery and after said size of ping pong balls left and right sides. I had clean margins on both and I figured that was that. So after seeing how much you all knew about your little buddies I asked my…
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First Follow-up CT
Just got back from having and abdominal-pelvic-chest CT scan. My results should be ready tomorrow. My PC doesn't work on Fridays, sure hope whoever is covering for him can give me my results. I have faith God will pull me through this....but deep down inside I'm so verrrrry, verrrry afraid. Please say a prayer for me…
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Ugh - forget about praying for me
Earlier today I asked for your prayers as I await the results of my first checkup. A short while later, some friends from church lost their 5th grade son in an accident. Truly, it puts even cancer in perspective. Please join me in praying for them and all those who've suffered a loss today.
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First follow-up scans today, results on Monday
I really appreciate all the support here, so I'm going to ask for a few prayers over the weekend. I went today for my first three month scan. We'll meet with the doctor Monday to get the results. I KNOW the results should be fine, but I bet you can understand that I'm anxious anyway. Thanks, in advance, for sending good…
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Very confused! Went in to ER today for unrelated pain had CT shows possible mass.
I went to ER today for ovarian pain. They did contrast CT and just happened to find possible mass on left lower kidney. I am very confused by the possible mass part. They did urine test it was fine but they said this texture on my kidney may be mass or could be infection. They put me on antibiotics and wants to rescan in 3…
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Waiting for surgery and terrified
Hi, This is my first time posting here. I'm a stay at home mom, in my thirties with 2 little kids and always thought I was pretty healthy. I'm slim, don't drink or smoke and eat really healthy. I'd had an abnormal result of a routing urine test - showing some protien in the urine and was concerned, so I followed up with my…
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Yippee I was diagnosed with rcc on 10/04/2011
Hi everybody,thought I would share my exciting story.On 10/03/2011 I was riding my motorcycle home from work when I hit a nasty pothole,upon hitting this pothole I felt a sharp pain in my back.Well the next morning when I went to go to the washroom I saw something,I think you all have a good ideal what it was.Two days…
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Symptoms
What were your symptoms prior to diagnosis?
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Post op Results - Unclassified RCC
Hello All, On Sept 28 I had a open radical nephrectomy on my right kidney. I just had a meeting with my surgeon going over the pathology results with my surgeon. The tumour was 7.5 cm and was considered to be unclassified. The surgeon still had no answer (And is still baffled as I am a 23 yr old female - an unlikely…
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Radiation for Kidney Cancer lesions on Vertebrae
hello group. My mother has kidney cancer and we are terribly scared. A very large tumor about the size of a golf ball was removed (along with the kidney) in June. Just this month she was having severe back pain. We did an MRI and we have discovered kidney cancer lesions on 2 vertebrae (L3 & L5) and many spots in her liver.…
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Metal Stents
I am in remission from having colorectal cancer. Its gone. But I am having issues with my kidneys. The right one has shrunk. The left kidney is fine. Almpst over a year now been going to the dr to have stent replaced or exchanged. Everytime I would end up having a UTI. The dr wants to try a metal stent which would stay in…
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New tumor
I am new to this site, but looking for info on Kidney tumors. I am a 22 year Pheochromocytoma survivor. An 11mm tumor was seen in my left kidney on the CT scan done at Mayo Clinic on Nov 1. I go to kidney specialist on the 17th. Since my right kidney was removed in Feb of 2005, because of the Pheo, the treatment they are…