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Kidney Cancer

Archives for August 2011

Symptoms prior to diagnosis
Hi all, A few times I have seen people have been affected by reflux and stomach issues in these threads, prior to diagnosis of kidney tumors. I was greatly affected by stomach/bowel and reflux issues and had been referred to a specialist who ultimately after some testing and a colonoscopy diagnosed me with IBS. He put me…
Open partial 2 weeks ago. Recovery stories?
Hi there! I had an open partial Nephrectomy 2 weeks ago. I'm 29 years old and my tumor was small. 2.5 cm Stage 1. I was not able to do laproscopic because of tumor placement so I have that big scar on my abdomen. I'll take that scar over cancer any day! Haha! I was in the hospital for 5 days and am home now. I'm still in a…
Does anyone else feel like a "cheater" when they say survivor?
Hi everyone, I am new to the network. I stumbled across it today and i am so happy to be here and be a member! I had RCC and had an open partial nephrectomy on August 10th. Almost 2 weeks ago. I was diagnosed in July, and after surgery am said to now be cancer free! There has been something weighing heavily on my mind and…
Thank you
Hi everyone, I just wanted to send out a big thank you to everyone on this discussion board. I don't post often, but I come here every day, just to feel inspired, connected and informed. I was diagnosed in May of this year, had a radical nephrectomy with an 8cm tumor. Yikes. Part of my liver was also taken out because the…
Financial Matters - health insurance
I've had a chronic disease my entire life, so I'm familiar with the importance of being financially savvy about health issues. I'm neither an insurance agent nor an attorney, but thought we all might benefit from some tips. Assumptions: You are a US citizen between the ages of 18-65, not covered by Medicare, or 18-26 not…
Sadness or depression after surgery
Hi Everyone, I was diagnosed with kidney cancer in late June and had surgery on July 22nd. I was just wondering if anyone has had a feeling of sadness or depression after the surgery? I sometimes wonder what in the heck my problem is because I should be thankful that mine was found early and it looks like they got it all…
Could we discuss recurrence's and the particular's surrounding them?
Hi Everyone, In June of this year, I was diagnosed with RCC. I had a partial left nephrectomy on July 22nd. My pathology diagnosis was: RCC Clear Cell Type Fuhrman Grade 1 Greatest Dimension was 2.2 CM. Negative for Extrarenal Extension Negative for Angiolymphatic Invasion Parenchymal Margin Negative, 0.1 CM AWAY. I was…
Surgery Monday 8/22
I have 1 word....Scared! I am only 45 and the Dr. found a 4cm tumor on my left kidney right next to the uretha. Not sure if he will be preforming partial or complete. I read your posts about what to expect: pain, recovery, etc. My worry is "did it spread", will I need chemo and if I am only left with 1 kidney what drastic…
Surgery Monday 8/22
I have 1 word....Scared! I am only 45 and the Dr. found a 4cm tumor on my left kidney right next to the uretha. Not sure if he will be preforming partial or complete. I read your posts about what to expect: pain, recovery, etc. My worry is "did it spread", will I need chemo and if I am only left with 1 kidney what drastic…
Introduction
Hello there, my name is Jeanne. I am a 43 year old SAHM of soon to be 7 year old ADHD/Autistic twin boys. My husband had a kidney removed in May 2009 and they found a grapefruit sized cancerous tumor inside. He was diagnosed with Stage 4 Renal Cancer in February this year and I have been looking for online support or a…
Healing & Reeling
Wow, I am doing well physically following a crazy whirlwind in the past 3 months since first seeing blood in my urine, then clots, diagnosis of renal cell carcinoma in my left kidney, then having 12- 15 kidney stones poring out of that same kidney the week prior to scheduled surgery, removal of my kidney (larger then a…
Kidney Cancer Mentors, 4th Angel, Cleveland Clinic
About a year ago I signed up to be a 4th Angel Mentor which is sponsored by the Cleveland Clinic, but open to all free of charge.I received training by way of program materials as well as a 1 or 2 hour telephone session with the program director. I limited my interest as a Mentor to RCC stage 1 as that is the only area…
STF-62247 and STF- 31
Has anyone heart about treating kidney cancer with STF- 62247 and STF-31??
Partial Nephrectomy
I am 14 months post right partial nephrectomy & cholecystectomy and have been diagnosed with a urinoma. Also just found out that the partial kidney is dead. Recommendation from the doctor is to leave the urinoma and partial kidney as is. I have continued to have back/right side pain. Has anyone else gone thru anything like…
Post Nephrectomy Gas Pains - Any Personal Experience/Suggestions?
My mother (a very healthy and active 69 yr. old) was recently diagnosed with Stage IV kidney cancer, Grade T3A. She had a 10 cm tumor in her kidney and metastasis to her lungs, thyroid, and trachea. She recently had her main tumor removed along with her right kidney. In good time too, it seems, since the tumor had grown 12…
Radical Nephrectomy to be done 8.17.11 on my husband
My husband, 51yrs old, came into the ER 8.09.11 for severe side pain he had been having for 3 days w/o sleep or eating. They did a CT expecting to find kidney stones. Instead they found a 13cm tumor on the left kidney also blocking the renal vein. After seeing the Urologist and another set of tests (CT w/ contrast, biopsy,…
oncologist referral near Raleigh NC?
Can anyone let me know if they are aware of a good oncologist specializing in RCC, I had Chromophobe I think (pathology report was not conclusive) near Raleigh NC? I searched Duke Cancer Center and found Dr Thomas Polascik, anyone have feedback on him? Thanks in advance, Brent
I'm either freezing or sweating?
Hello Everyone, I'm new here and have had a nagging problem I need help with. I had a partial left nephrectomy on July 22nd. So I am almost 3 weeks post-op. I have had a continued problem since, that is driving me crazy. Around 4 or 5 times an hour, I will within seconds, feel myself get hot and then I break out in a…
Radical Nephrectomy on 08-11-11
Hi all, I am supporting a loved-one who will be having a radical nephrectomy on August 11th. Can anyone share some tips, advice, experience with me? Anything you'd like to say is fine by me. The patient is 64, male, and had colorectal cancer in 2006 - went thru operation/chemo/radiation in 2006/2007. Don't be afraid to…
newly dx kidney and lung both
Hello everyone, My husband just got the dx from our doctor about his lung biopsy. He has a 1.2 nodule that is cancer. I do not know the type of cancer yet. His kidney has a cancer mass also and has been dx as transitional cell carcinoma. Because of the location of the mass, 2.8 x 2.4cm, our urologist will take the whole…
Cord Decompression- has anyone went through neurosurgery?
My mom has stage 4 with mets to her back. MRI from 5 weeks ago showed cord decompression. She is on steroids and went through course of 15 radiations with little relief. Not only the radiation did not relieve mom's pain, it made it even worse. Now we are in the hospital for a week trying to control mom's pain, but still…
info on Chromophobe, furhman grade 2
I just got my pathology report. My tumor was 3.9 cm, overall features best resemebles Chromophobe, and was fuhrman grade 2. The pathology report indicated the fuhrman grading utility has not been firmly established for this tumor. Does anyone have any infomation on this tumor type, or if you have experience please let me…
New Kidney cancer diagnosis.....What now?
Hi: To everyone here,much continued health and happiness to you and your families. Yesterday the Kidney Doctor told me that I have a 4cm tumor on my right kidney. His exact words were its a tumor, its malignant and its cancer..... Wow.. After that I just went numb. He said he only removes the entire kidney so I have been…

Kidney Cancer

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